An initiative dedicated to support people affected by Sickle Cell Disease in Australia. Executive Director @AggieMN. #SickleCell #Awareness #TogetherWeRise
Joined December 2014
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@AuSickle is proud of all the members who contributed to this outcome in the application process. Special thanks to Dr Kongolo Kalumba, Dr Anthea Greenway and @AggieMN. Your dedication for the past four years is well appreciated 👏🏽
29 Feb 2024
Today on Rare Disease Day, we announced that two more rare genetic conditions - X-ALD and sickle cell disease - have been recommended for newborn bloodspot screening.
This is an important step in the ongoing expansion of newborn bloodspot screening.
#RareDiseaseDay2024
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Welcome to the newsletter issue of February 2025 from Australian Sickle Cell Advocacy Inc. This issue outlines our annual planner, and our work focus for 2025. Subscribe to receive our newsletter to receive our next issue in your email box. Thank you. - mailchi.mp/755c347d007c/welc…
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CICA, a christian performing art group, will be participating in this year's Telethon on @7newsperth
Supporting @AuSickle and everyone enduring ill health.
Support Telethon by donating: telethon7.grassrootz.com/tel…
#sicklecellawareness
#Telethon
#SevenNetwork
#Australiansicklecell
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On 10th Sept 2024, we hosted the Sickle Cell Forum in the Australian Parliament House Canberra focusing on addressing crucial issues impacting the Sickle Cell community.
The event provided a platform for warriors to engage with all stakeholders
#SickleCellAwareness
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Forr World Sickle Cell Awareness month, @AuSickle, worked with @MariaVamvakinou to host the first-ever Sickle Cell Pharma Forum. The event was held on 10th September 2024 in Dame Enid Lyons Alcove at Parliament House Canberra.
#SickleCellAwareness
#SickleCellDisease
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"June 19, officially designated as World Sickle Cell Awareness Day. 🌍
Today, let's collaborate and make a positive impact together! As we celebrate World Sickle Cell Day, ASCA wishes you good health and advocates for more pathways in newborn screening. 💪 #SickleCellDisease
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"Today is June 19th, World Sickle Cell Day. 🌍 A significant reminder of the importance of early diagnosis and effective treatment. ASCA celebrates the brave sickle cell warriors across Australia—you matter! Together, we rise. #SickleCellDisease #AustralianSickleCell #TeamASCA"
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➡️Observing the World Sickle Cell Day with us on June 15th for ASCA Food Fest! Meet our speaker, Tania Grimshaw.
➡️Scan the QR code and register for free! Join us, bring a meal ‼️
#InspireInclusion
#SickleCellDisease #AustralianSickleCell #TeamASCA
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🎉 Join Us for the ASCA Food Fest!
Let's come together to fuel hope and raise awareness! 🌟
Date: June 15
Venue :CityLife Church Whittlesea, 70 Kingsway Dr, Lalor VIC 3072
Time: 2 PM - 6 PM
RSVP: mail@aussickleadvocacy.org
Tel: 1300 148 824
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🔈Exciting news! The speakers are set for our Dive into meaningful conversations about 'Parenting as a Single Mother' event this Mother's Day.
🌸 Don't miss out! RSVP for the Zoom link events.humanitix.com/mother-…
#SickleCellDisease#AustralianSickleCell #TeamASCA # InspireInclusion
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🌸 Dive into meaningful conversations about 'Parenting as a Single Mother' this Mother's Day.
🌸 Featuring: Inspiring Stories and more
‼️Support our work by making a contribution of $25
🌸RSVP at Zoom link via lnkd.in/g6DYfMxd
#AustralianSickleCell #TeamASCA
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30 Mar 2024
#LadiesNightOut #Brisbane was 🔥🔥
This is an initiative created to bring communities together to discuss physical & mental health well-being in women. Join us in #Darwin on 4th May.
Dress: White with a touch of RED 💃🏾
$80 plus booking fee
Tickets here: megatix.com.au/events/ladies…
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Australian Sickle Cell Advocacy Inc (ASCA) retweeted
30 Mar 2024
Such a great opportunity to share our sickle cell journey as a family but also how we created @AuSickle. Thank you @MedicinesAus @MVEG001 ❤️❤️
25 Mar 2024
Joined by @AggieMN & Katrina Lapham, our panel discussed the devastating impact of delaying assessment of advanced therapies with curative potential, the increasing pace of CGT innovation & opportunities to boost Australia’s health economy & strengthen our position in APAC.
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