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Cleft Lip and Palate Action @CLAPACOMMUNITY

Supporting, celebrating and championing the UK cleft community at every stage of life.

Joined September 2009
  • Tweets 10,332
  • Following 298
  • Followers 5,171
5,261 Photos and videos
πŸ“£ Will you help us shape the future of CLAPA’s services? Join us for a Co-development workshop this December! πŸ“† Tuesday 2nd or Wednesday 10th December ℹ️ Full details - buff.ly/O00rybM
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The Great North Run, the UK's biggest half marathon, is back on 13th September 2026! πŸƒ Whether you're an avid runner or looking to get started, why not go the extra mile for CLAPA like Ryan and Jenny? To register your interest πŸ‘‰ buff.ly/6UH8fgC
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β€œIt's incredible really. It's not an aesthetic issue - we need dentists for our health because we need to eat with our teeth, and speak with our teeth. And even more so with a cleft.” πŸ“° Read Sarah’s story – buff.ly/PRGsqgF #CleftDentalCrisis
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Well done to Jack who cycled from London to Brighton, raising over Β£2,100 for CLAPA πŸš΄β€β™‚οΈ To read more about Jack's story, visit buff.ly/OCtpiQQ #FundraisingFriday
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We're delighted that CLAPA CYPC member, Thomas, and his mum, Tamsin, were interviewed by BBC Radio 2 as part of this year's Children in Need πŸ“» Tune in at 3.20pm to hear them talk about Thomas' cleft journey and the support they've received from CLAPA.
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Join us for the final CLAPA Lounge of 2025! Whether you've got a question to ask, an experience to share or simply want to listen to others, we'd love to have you involved. πŸ“† Tues 16th Dec, 7:30 pm (Zoom) πŸ’™ For adults born with a cleft 🎟️ Book: buff.ly/Aqc0UI6
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Have your say! πŸ“£ The RCSLT are looking for those with a lived experience of cleft to share their views on their Cleft Lip & Palate Guidance. To read the guidance and complete the survey (15-20 minutes), please visit buff.ly/MnxsD2W
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πŸ“£ Could you be CLAPA's new Digital Fundraising Trustee? πŸ“… Applications close: 9am, Monday 24th November To find out more or apply, visit buff.ly/FFXxoxc
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The Kiltwalk is Scotland's favourite mass participation walking event and it’s back for 2026! 🏴󠁧󠁒󠁳󠁣󠁴󠁿 πŸ“ Take part in Glasgow, Aberdeen, Dundee or Edinburgh πŸ‘Ÿ Choose your distance - options range from 3-23 miles Find out more: buff.ly/3IJSXay #FundraisingFriday
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Fiona has been desperately seeking an NHS dentist for more than two years. β€œA private dentist is just unaffordable. There are monthly dental plans but my Pierre Robin Syndrome complications put me in a highly expensive band." πŸ“° Read Fiona’s story – buff.ly/a1ppX0t
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Come along and explore sound and babble play techniques, to help your little one gain speech and language skillsπŸ’¬ πŸ“† Tuesday 2nd December at 10am πŸ”΅ For parents/carers and grandparents of a child born with a cleft 🎟️ Book your free place now: buff.ly/6UxpiPO
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Do you want to help shape the future of CLAPA and support for the cleft community? πŸ“£ We're running Adult and Family Co-development workshops in December and we want you to join! πŸ“† Tuesday 2nd OR Wednesday 10th December ℹ️ Full details: buff.ly/kBffxAu
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Join CLAPA at our next Antenatal Support Group for new and expectant parents/carers with a cleft diagnosis. πŸ“† Monday 24th November @ 7:30pm via Zoom 🎟️ Book your place: buff.ly/vXunnYb Kindly funded by Smile Train.
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After decades of poor dental treatment, Anne needed hospital treatment for gum disease – treatment that could’ve been avoided if her dentists had been more knowledgeable about cleft. πŸ“° Read Anne’s story – buff.ly/n0I70Hp
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A huge thank you to CLAPA trustee and cleft nurse, Izzy, and her friend Ricardo, who completed Swim Serpentine last month πŸŠβ€β™‚οΈ The duo swam in the annual event at London's Hyde Park, raising an incredible Β£2,400 for CLAPA πŸ‘ #FundraisingFriday
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β˜‘οΈ 2500 Signatures Thank you to everyone who has signed our petition to end the cleft dental crisis. CLAPA is calling for guaranteed lifelong NHS dental care for people born with cleft in the UK. But we cannot do it alone. πŸ“ Sign our petition buff.ly/eMDd4qB
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🚨 We're hiring 🚨 We're looking for a Major Donors and Partnerships Coordinator to join our Fundraising team! πŸ“† Applications close: 9am, Monday 17th November To find out more or apply, visit buff.ly/YXX3IiK
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After years of painful and preventable treatment, Claudia had to sign up with a private dentist because of the lack of understanding and care in NHS dentistry. πŸ“° Read Claudia's story buff.ly/JwIZ5GX
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Win BIG and support CLAPA in the All Weathers Lottery!πŸŽ‰ Sign up in October, and CLAPA will receive Β£10 for each new player! πŸ”— Play now for your chance to win Β£25,000 and raise donations for CLAPA - sign up at buff.ly/kgGwGpW
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Join us for our Parent Cleft Journeys event this November! 🟑 Open to all parents/carers of a child born with a cleft ℹ️ Seek advice/info from others πŸ—£οΈ Share your own experience πŸ“† Wednesday 12th November, 7.30pm (Zoom) 🎫 Book your place: buff.ly/qtRHtMF
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