The European ME Alliance is a grouping of European organisations who are involved in supporting patients suffering from myalgic encephalomyelitis (ME or ME/CFS)
Joined December 2011
- Tweets 1,091
- Following 179
- Followers 1,066
- Likes 1,547
202 Photos and videos
European ME Alliance ๐ช๐บ retweeted
2
6
78
European ME Alliance ๐ช๐บ retweeted
WHO Regional Director Europe opened #IIMEC18 affirming-
"ME is a serious, complex, multi-system physical illness,
involving neurological, immune, and metabolic dysfunction"
- Dr Hans Kluge @WHO_Europe
Press release:
investinme.org/IIMER-PR-2026โฆ
#mecfs #WHO #InvestInMEresearch #IIMER
4
25
47
3,254
๐๐ป๐๐ฒ๐ฟ๐ป๐ฎ๐๐ถ๐ผ๐ป๐ฎ๐น ๐ ๐ ๐๐๐ฎ๐ฟ๐ฒ๐ป๐ฒ๐๐ ๐๐ฎ๐ ๐ฎ๐ฌ๐ฎ๐ฒ
From awareness to action - The Work Behind the Awareness
europeanmealliance.org/emea-โฆ
#mecfs #InternationalMEawarenessDay
16
18
213
European ME Alliance - An Updated Constitution and New Members
A change now allows non-European groups to become Associate members of EMEA and partner with us to improve the future for people with ME and their families
europeanmealliance.org/news-โฆ
#mecfs #InternationalMEawarenessDay
5
8
121
๐๐ค๐ง๐ก๐ ๐๐๐๐ก๐ฉ๐ ๐ฟ๐๐ฎ 7 ๐ผ๐ฅ๐ง๐๐ก
and EMEA announces its selection for the WHO/Europe Public Health Innovation Platform, focusing on policy, governance, and financing
europeanmealliance.org/news-โฆ
#mecfs #WorldHealthDay #HealthForAll #EuropeanMEAlliance
4
6
301
International Long COVID Awareness Day
Rasing awaness of the profound effects of Long COVID
Echoes of ME
europeanmealliance.org/news-โฆ
#mecfs #longcovid
3
8
138
EMEA at the European Patientsโ Forum Congress 2025
EMEA Becomes New Member of EPF and Attends EPF Congress
europeanmealliance.org/news-โฆ
#mecfs
4
6
266
Germany has launched the National Decade Against Post Infectious Diseases (2026โ2036) - EMEA comment europeanmealliance.org/news-โฆ #mecfs @FatigatioeV @euromeresearch @YoungEmerg
5
8
270
3rd International Symposium on Chronic Fatigue Syndrome, Long COVID and Post-Infection Syndromes, held in November 2025 at the Institute for Cardiovascular Diseases "Dedinje" in Belgrade, Serbia
Video available
europeanmealliance.org/news-โฆ
#mecfs #research @euromeresearch @YoungEmerg
1
123
European ME Alliance ๐ช๐บ retweeted
Impressions from Invest in ME Research grant awardees at the recent Young EMERG International ME Workshop in Vienna
investinme.org/yemerg-grant-โฆ
#mecfs #research @YoungEmerg @euromeresearch @EUROMEALL
4
5
206
10 Dec 2025
10 Dec #HumanRightsDay
Human rights mean recognising suffering, and acting to end neglect
๐๐๐๐จ ๐๐๐ฃ๐ฃ๐ค๐ฉ ๐๐ช๐จ๐ฉ ๐๐ ๐ฌ๐ค๐ง๐๐จ
They must be ๐๐๐๐๐๐๐๐๐๐๐
into actions for people with #mecfs, and their carers
europeanmealliance.org/humanโฆ
#DignityForAll
#HealthEquity
6
10
329
5 Dec 2025
Grateful to MEP Romana Jerkoviฤ @JerkovicRomana for her support in raising EMEA's questions to European Commission regarding progress research and treatment of ME
europeanmealliance.org/news-โฆ
#mecfs #EuropeanMEAlliance
2
3
6
1,112
3 Dec 2025
3 Dec #InternationalDayOfPersonswithDisabilities โ โFostering disability-inclusive societies for advancing social progressโ
Advancing social progress ought to be more than just words
europeanmealliance.org/news-โฆ
#IDPD2025 #DisabilityInclusion
#DisabilityDay #mecfs
1/3
1
2
3
155
3 Dec 2025
#InternationalDayOfPersonswithDisabilities
Too often people with #mecfs are excluded from care and life because ME is not recognised
EMEA is committed to meaningful change through action
europeanmealliance.org/news-โฆ
#IDPD2025 #DisabilityInclusion
#DisabilityDay
2/3
1
2
1
117
3 Dec 2025
Building disability-inclusive Europe means acknowledging โinvisibleโ conditions such as #mecfs Ensuring policies, funding, services reflect that reality
Genuine disability-inclusive societies ensure no one is left behind
europeanmealliance.org/news-โฆ
#IDPD2025 #DisabilityInclusion
3/3
2
2
125
European ME Alliance ๐ช๐บ retweeted
'Registration Extended!'
November inโค๏ธienna!
next ๐๐ค๐ช๐ฃ๐ ๐๐๐๐๐ ๐๐ฃ๐ฉ๐๐ง๐ฃ๐๐ฉ๐๐ค๐ฃ๐๐ก ๐๐ ๐๐ค๐ง๐ ๐จ๐๐ค๐ฅ 27-28 November
youngemerg.com/yemerg06v.shtโฆ
#mecfs #research @YoungEmerg @euromeresearch
31 Oct 2025
๐ข #YEVienna2025 โ Registration Extended!
Good news: you now have until 7 November to register for our two-day workshop for early career researchers in ME/CFS.
You can still:
๐งโ๐ Attend the workshop
๐ฐ Submit a poster
๐จ Request discounted accommodation
8
8
385
13 Nov 2025
Serbia: International Post-covid and ME Conference
14 November 2025
at the Institute for Cardiovascular Diseases "Dedinje", Belgrade, Serbia
europeanmealliance.org/eventโฆ
#mecfs #research #LongCovid
1
4
6
313
14 Nov 2025
1
1
1
124
European ME Alliance ๐ช๐บ retweeted
31 Oct 2025
๐ข #YEVienna2025 โ Registration Extended!
Good news: you now have until 7 November to register for our two-day workshop for early career researchers in ME/CFS.
You can still:
๐งโ๐ Attend the workshop
๐ฐ Submit a poster
๐จ Request discounted accommodation
5
8
672
30 Oct 2025
European ME Alliance statements at the 75th session of the World Health Organisation Committee for Europe in Copenhagen
europeanmealliance.org/emea-โฆ
#rc75cph #mecfs #EuropeanMEalliance
7
13
301