Joined January 2019
- Tweets 9,927
- Following 589
- Followers 1,719
- Likes 16,022
755 Photos and videos
Pinned Tweet
New #blogpost : Mini Me Update - My Mum’s #Cancer Diagnosis 🌸
invisiblyme.com/mini-me-upda…
(On Insta > instagram.com/p/DWrIlspjNSI/)
#blog #invisibleillness #breastcancer #chronicillness #health #nhs #healthcare #cancerawareness #disabled #hospital #surgery #disability #blogger
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Yes to this! There's a mistaken belief that you've got a low pain threshold, that #opiods are making you feel the pain more, that it can't possibly be that bad b/c you're a woman, that you look okay. When I say my pain is agonising, I mean it.
#chronicpain #chronicillness
“Because the body’s nerves are constantly firing they never get a rest, so when they get triggered by “smaller” things, they will hurt more than a “regular” person.” Please Don't Confuse #ChronicPain With Low Pain Tolerance buff.ly/GOw4yWr #intractablepain #chronicillness
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If only... 🤣🤣🤣
I didn't have much to start with. I have less since chronic illness & weight loss 😯
instagram.com/p/DZpQvsfDGW3
#wtf #chronicillness #spoonie #funny #lol
ALT A sachet of seasoning rub that says "Breast Enhancer"
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InvisiblyMe retweeted
Jun 15
This is a major flaw in the system.
If someone is medically diagnosed with a lifelong /or deteriorating condition a vast amount of money is wasted in a programme of reassessments.
There needs to be a shift to acceptance of lifelong being just that and if someone is identified at needing the highest level of support then that being confirmed forever.
The stress of unnecessary reassessment also complicates people's lives - the fear of losing the needed support etc
Disabled people with lifelong conditions facing ‘unnecessary’ Pip reassessments
‘Pointless’ reviews are wasting public money and ‘significantly harming’ the mental health of claimants, charity says
theguardian.com/politics/202…
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InvisiblyMe retweeted
Disabled people are being hurt, harmed and killed by the Department for Work and Pensions at a scale that overshadows every other scandal in British society in recent decades, MPs have been told.
#DWP #DWPdeaths
disabilitynewsservice.com/dw…
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Jun 13
Limited time FREE #Kindle #ebook Thrown Into Caring, a guide for those caring for an elderly parent, loved one or friend 👇
amzn.to/4awoLxP
#caring #carer #carers #carersweek #free #uk #england #chronicillness #spoonie #disability #kindlebooks #books
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InvisiblyMe retweeted
Jun 10
Are you a carer?
You can get help and support if you're responsible for looking after someone who has a disability, is getting old or has become ill.
Learn more about what a carer is, your rights as a carer and the support available ⤵️
citizensadvice.org.uk/family…
#CarersWeek
ALT Text reads: "Are you a carer? Find out how you can get support."
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Jun 10
While others can learn & empathise, only the person living it can truly know what it's like. It's more than just the illness/pain/disability, it's the whole experience that can affect all areas of life. That person is the expert of their own experience but they're often ignored.
"Disabled people are experts in our own lives – listen to us." Associate Professor Bernadette Jones speaks out about the system's failure to adequately respond to the crisis in Disability Rights and Healthcare.
newsroom.co.nz/2026/06/09/di…
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InvisiblyMe retweeted
Jun 8
"#Pain is a deep, dark pit that co-exists with the poisonous snakes of severe #depression, #anxiety, and yet more pain. There can always be more pain, and there can always be different kinds of pain": buff.ly/Fqebe2V
#ChronicPain #ChronicIllness #NEisVoid #MondayBlogs
ALT “Pain is a deep, dark pit that co-exists with the poisonous snakes of severe depression, anxiety, and yet more pain. There can always be more pain, and there can always be different kinds of pain.” Read the Post: Why Painkillers are One of My Biggest Allies for a Decent Quality of Life, on A Chronic Voice .com
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You’re not failing at #life if you’re finding things difficult. 💜 Struggling means that you are trying, despite the challenges you face.
instagram.com/p/DZXqKNJjKk0/
#tuesdaythoughts #quotes #quote #chronicillness #chronicpain #mentalhealth #inspiration #motivation #blogger
ALT A background of colourful smoke with reds, purples and yellows. White text is overlaid that reads “you may be struggling but that does not mean you are failing”. The Invisibly Me dot com website address is at the bottom.
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InvisiblyMe retweeted
The DWP is secretly testing sweeping new rules – described as a “recipe for disaster” – on disability benefit assessments, which will reduce the influence of healthcare professionals and hand greater responsibility to civil servants.
disabilitynewsservice.com/dw…
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A rainy #weekend is a good excuse for a little spring cleaning, something that seems to have become a never-ending task for me since living w/#chronicillness & #chronicpain.
🌻 7 Things To Spring Clean In Your Life 🌻
invisiblyme.com/7things-spri…
#blog #blogger #lifestyle
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InvisiblyMe retweeted
Jun 3
"From a clinical perspective, a #doctor might dismiss the #pain, as “#men do not ‘really’ get #ChronicIllness or #fibromyalgia”. Within a societal narrative, men r often expected to b “strong & stoic” — pain is..suppressed voluntarily, yet reluctantly.": buff.ly/6cJoqbU
ALT Guest Post by: Stephen White. Men with Fibromyalgia — The stigma, barriers, and challenges faced as a young man in school and in society. Read on: A Chronic Voice .com.
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InvisiblyMe retweeted
We're launching a nationwide conversation to understand what matters to Disabled people today. We want it to inform our strategy and how we campaign for years to come!
Have your say👇
Survey surveymonkey.com/r/DRUKstrat…
Easy Read surveymonkey.com/r/surveyeas…
BSL surveymonkey.com/r/strategyB…
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Yet another awful case of a #woman w/#pain & ill #health dismissed, with deadly consequences. Just b/c you can't see it, doesn't mean a woman is exaggerating, making it up, wanting attention or that it's "just stress".
mol.im/a/15864785
#healthcare #nhs #sexism #news
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InvisiblyMe retweeted
All comments returned
Understanding The Let Them Theory: Why It’s Changing Lives
We live in a world where a sense of control is often lacking, yet we still desire that sense. But two simple words can set us free: Let them
unwantedlife.me/understandin…
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May 30
It makes it all the harder when PIP questions aren't relevant to your personal situation, abilities or requirements. There's no grey areas allowed in answers either. It's like trying to explain the problems when you aren't allowed to use words.
May 29
I worked for the NHS for over 20 years in disability rehabilitation, before my disability wasn't accomodated by my employer during the pandemic. PIP has been the most dehumanising, humiliating experience of my life. It degrades me. I wish non PIP claimants understood that.
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May 29
Seems the #heatwave is already on the way out but it has been a welcome change, albeit challenging w/ #chronicillness 😎☀️🌻
instagram.com/p/DY6847MjCl3/
#chronicpain #uk #summer #milkshake @ShakeawayLand #Health #disability #invisibleillness #spoonie #ostomy #stoma #blog #blogger
ALT Image Description : A photo of me with a milkshake at Shakeaway.
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May 28
They should do it for those with chronic, long-term conditions that aren't going to or are unlikely to improve, too. Claimants can be asked every 2yrs if anything has changed, but w/o another application/ review unless there's improvement.
May 28
❗️People with terminal or lifelong conditions and disabilities shouldn’t have to keep proving they’re ill just to get support.
We're standing with @mariecurieuk to call on the UK government to change this, so people don't have to go through repeated stress and uncertainty.
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InvisiblyMe retweeted
May 28
#NewBlogPost When you live with #ChronicPain, you have to adapt. Adapting doesn't make everything perfect. It might just make things a little easier. But pain never stands still. It changes, and you need to adapt again. And again...
despitepain.com/2026/05/28/a… via @DespitePainBlog
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InvisiblyMe retweeted
May 27
‼️Ends Tomorrow! ‼️
Have a #Disability, #chronicillness #chronicpain or are a #carer? Please consider submitting your thoughts on the Timms PIP review👇
gov.uk/government/calls-for-…
#Health #UK #England #politics #benefits #labour #government #news #Health #healthcare #disabled
ALT A dark background with white text overlaid that reads: “Proposed Changes To Sickness & Disability Benefits : Do you have a disability, chronic illness, or are you a carer for someone who does? Please consider giving your feedback for the Timms review of PIP / Personal Independence Payment. “Evidence” can mean your own thoughts, experiences & opinions. Let your voice be heard.” The Invisibly Me dot com website address is at the bottom.
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