Fighting for a world where all who are affected by rare, protein-spilling kidney disease are connected to new and better treatments — and one day, a cure.
Joined June 2020
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The New Era Act is moving in Congress—and patient voices are needed now. Travel assistance is now available for Rare Kidneys On The Hill Day.
Apply & register 👉 nephcure.org/get-involved/ev…
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Join us for Rare Kidneys on the Hill Day where patients, caregivers, physicians & researchers come together to raise awareness for RKD and make their voices heard by Members of Congress.
Learn more & register: nephcure.org/get-involved/ev…
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Did you know NephCure is home to the largest community of rare kidney disease patients? 💙 Join us, connect with others, and find an event near you: nephcure.org/get-involved/ev… #RareKidneyDisease #NephCure #GlomerularDisease #NephroticSyndrome
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This APOL1 Awareness Day, shape the future of APOL1 care. Sign the interest form or share this with someone who could benefit from this experience: tinyurl.com/yca5mcey
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The brilliant minds behind NephCure-funded research are driving breakthroughs in rare, protein-spilling kidney diseases—unraveling complexities and paving the way for new treatments. Meet the researchers making it happen: nephcure.org/about/our-impac…
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Get involved with the IgAN Alliance — join our programs, collaborate on initiatives, and help advance research and patient care. Learn more about our progress in the topline summary of Workshop #1 at IgANAlliance.org.
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Did you know NephCure is home to the largest community of rare kidney disease patients? 💙 Join us, connect with others, and find an event near you: nephcure.org/get-involved/ev… #RareKidneyDisease #NephCure #GlomerularDisease #NephroticSyndrome
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Living with IgAN often means carrying a silent burden. Over the past year, we built the IgAN Alliance to provide timely answers, informed care, and community. Take a look at our progress in improving care and join the Alliance at tinyurl.com/4bwkpu68.
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Join us July 22nd - July 23rd in Washington DC to use your voice for change on Capital Hill!
Click here to register: nephcure.org/get-involved/ev…
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Join us for Rare Kidneys Connect: Nephrotic Syndrome Family Education Day on April 11 from 12:30pm - 4:30pm in Philadelphia! Click to register: nephcure.org/es/evento/rare-…
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Your stories of courage and perseverance inspire us—and give hope to everyone impacted by rare kidney (glomerular) disease. Explore our full collection of patient stories: nephcure.org/support/patient…
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Did you know NephCure is home to the largest community of rare kidney disease patients? 💙 Join us, connect with others, and find an event near you: nephcure.org/get-involved/ev… #RareKidneyDisease #NephCure #GlomerularDisease #NephroticSyndrome
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A new era for rare kidney disease care begins.
NephCure’s new mission is clear: to ensure equitable access to expert care and emerging treatments for every person living with a rare, protein‑spilling kidney disease.
Because progress means nothing if patients can’t reach it.
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March is National Kidney Month, it is our moment to come together as a community and shine a light on rare kidney disease.
Visit our Kidney Month webpage on nephcure.org/kidney-month-20… where you will find ways to get involved and special edition merch!
Stay tuned! 💚
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Navigating the kidney transplant process can be overwhelming. We’ve created an easy-to-understand guide to help patients know what to expect and feel more prepared. Explore the resource here: nephcure.org/intro-to-rkd/en…
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Join us June 25–27, 2026, in New Orleans, LA, for the annual NephCure Patient Summit and Youth Summit! nephcure.org/get-involved/ev…
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