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Pulmonary Fibrosis Foundation @PFFORG

We imagine a world without pulmonary fibrosis. pulmonaryfibrosis.org

Joined August 2009
  • Tweets 26,736
  • Following 1,068
  • Followers 6,587
7,086 Photos and videos
PFF Board of Directors member and lung transplant recipient, Laurie Chandler, wrote a letter for the New Hampshire Union Leader to urge lawmakers to pass the SOAR act. Read it below: 📰 unionleader.com/opinion/lett… #SOARActO2
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PFF Summit 2023 sessions are now rolling out on YouTube! In our first Summit premier, join a panel of experts to learn how federal agencies play a crucial role in research for pulmonary fibrosis. Watch now! youtu.be/bOB-sL8a3Ds?si=kpYT…
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Chronic cough has a significant impact on pulmonary fibrosis patients’ physically and mentally. Learn more about the causes, treatments and impact on quality of life by registering for EU-PFF’s webinar this Thursday, May 9th. Sign up at us06web.zoom.us/webinar/regi…
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Have you ordered your Shop PFF merch yet? Raise awareness of PF everywhere you go at goshoppff.com/
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Join the 18th annual FREE in-person patient/family education day event hosted by The American Thoracic Society’s Public Advisory Roundtable (PAR) in sunny San Diego! Date: May 18, 2024 Location: San Diego, CA RSVP: Email par@thoracic.org by MAY 10, 2024 See flyer for details!
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In our newest post, Dr. Amy Hajari Case talks about how AI will improve healthcare for the PF community. Read it now at pulmonaryfibrosis.org/blog
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April is National Volunteer Month. Today, we’re highlighting one of our PFF Hill Day volunteers, Marla Brady. Thank you Marla for your contributions to the PF community!
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THANK YOU to everyone who has joined the PFF Community Registry so far! 🎉🎉 As a token of our gratitude, you can show your support of pulmonary fibrosis research with this profile picture. Haven’t enrolled yet? Get started at bit.ly/joinpffregistry.
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April is National Volunteer Month. Today, we’re highlighting one of our class of 2022 PFF Ambassadors, Karen Smoot. Thank you Karen for your contributions to the PF community!
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Take it from our current enrollees. Your participation matters. Enroll now at bit.ly/joinpffregistry!
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April is National Volunteer Month. Today, we’re highlighting one of our PFF Ambassadors, Gretchen Cararie. Thank you Gretchen for your contributions to the PF community!
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PFF Ambassadors are available to speak at your next event! Find out more at pulmonaryfibrosis.org/resear…
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April is National Volunteer Month. Today, we’re highlighting one of our PFF Hill Day volunteers, Julie Rossignol. Thank you Julie for your contributions to the PF community!
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With more than 50 full-length webinars available for FREE on our YouTube channel, we’re confident that you’ll find answers to your most pressing questions about pulmonary fibrosis. Check out the playlist and watch now! youtube.com/playlist?list=PL…
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April is National Volunteer Month. Today, we’re highlighting one of our PFF Hill Day volunteers, Jamie Lederer. Thank you Jamie for your contributions to the PF community!
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☀️🌷 With warm temperatures on the way, get ready for spring with merch from the Shop PFF store! Raise awareness of PF everywhere you go with tshirts, caps, bracelets and more at goshoppff.com/
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This year’s 'Broadway Belts for PFF!,' held on March 18 at Sony Hall in New York City, shattered fundraising records with $516,00 in donations and continues to climb. Thank you Broadway Word for the press coverage of our annual gala! broadwayworld.com/off-broadw…

Broadway Belts for PFF! 2024 Raises Record $516,000 for Pulmonary Fibrosis Foundation

This year’s Broadway Belts for PFF!, held on March 18 at SONY Hall in New York City, shattered fundraising records with $516,00 in donations and continuing to climb.

broadwayworld.com
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Pulmonary rehabilitation (PR) can unlock the potential to live a better life with pulmonary fibrosis. Visit livebetter.org/ to use an interactive map to find PR near you! Thank you to the American Thoracic Society for providing this valuable resource!
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Pulmonary rehabilitation includes exercise training; breathing exercises; anxiety, stress, and depression management; nutritional counseling; education; and more. Learn all about it at pulmonaryfibrosis.org/pr #PRWeek2024
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In an effort to increase and diversify research, the Pulmonary Fibrosis Foundation envisioned a new approach to collecting usable medical data — asking patients directly. clinicalleader.com/doc/commu…

Community-Driven Registries Drive Understanding Of Rare Diseases

In an effort to increase and diversify research, the Pulmonary Fibrosis Foundation (PFF) envisioned a new approach to aggregating usable medical data — asking patients directly.

clinicalleader.com
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