I don’t normally use social media to share personal family matters, but today is an exception — and I hope you’ll take a moment to read this, as it’s incredibly important to me.
Today is PANS/PANDAS Awareness Day— a condition my daughter has been suffering from for the past three years. It’s a condition that has turned our family’s life upside down and has been stealing my daughter’s childhood.
While PANS/PANDAS is treatable, it is often misdiagnosed. In the UK, it’s still not officially recognised, which means accessing the right treatment is almost impossible.
My daughter, Anna (13), wanted to do something special for Awareness Day to help others understand what living with PANS/PANDAS feels like. She wrote a poem — entirely in her own words — that is honest, brave, and deeply moving. It breaks my heart, but I’m also incredibly proud of her strength and courage in sharing it.
Thank you for taking the time to read and help raise awareness. 💛
#PANSPANDASawareness #LightUp4PANS