The Sappani Foundation is a CRA registered charitable organization dedicated to empowering vulnerable persons and marginalized communities. 🇨🇦 🇺🇸 🇮🇳 🇱🇰
Joined April 2021
- Tweets 142
- Following 131
- Followers 125
- Likes 181
17 Photos and videos
Sappani Foundation retweeted
2 Mar 2024
Interesting presentation from @jonirutter from @ncats_nih_gov on new paths for rare diseases . @SappaniFDN has two gene therapy projects ; on CNS and retinal for CDG almost ready for human trail with @PerlaraPBC on drug repurposing . Investing in R&D is only way for new cures
1
2
1,606
10 Nov 2023
Congrats to Humnah Tahir ,recipient of 2023 Sappani Foundation Ela award in partnership with @CNIB . The award is for an exceptional Canadian visually impaired BIPOC girl student in low income situation to support post secondary education.
24 Nov 2022
Congratulations to Areebah Qureshi, the 2022 recipient of The Sappani Foundation Ela Award. In partnership with @CNIB, the Ela Award supports post-secondary education for BIPOC girls with sight loss.
For more information, visit cnib.ca or sappanifoundation.com.
94,038
Sappani Foundation retweeted
12 Apr 2023
The @SappaniFDN, @CureSrd5a3 and @VJsapps created an Ela worm avatar for drug repurposing in 2019.
After many twists and turns, HMG-CoA reductase emerged as a target that may restore the balance between polyprenol and dolichol. perlara.substack.com/p/low-d…
5
7
1,296
28 Feb 2023
Our biggest funding is towards rare diseases . 70% of inherited genetic disorders can be prevented . 95% of rare diseases don’t have a cure . Govts need to do more to fund prevention, incentivize pharma companies to invest more in rare disease cures .
1
5
533
Sappani Foundation retweeted
20 Feb 2023
Looking to start a conversation on rare diseases with young people? With our School Toolkit, you can use:
👨🏫 2 lesson plans
📗 2 books, Merlin, the Little Feline & A Friendship Story
💜colourable poster
✨ Upcoming Teenager Lesson Plan next week!
➡️ cutt.ly/g20AhGl
1
34
62
5,589
Sappani Foundation retweeted
15 Feb 2023
A great way to raise awareness 📣 in your network and show your support for #RareDiseaseDay is to use a personalized frame for your profile picture on Twitter.
Check out the tutorial on how to create your profile frames and apply them to your photos ➡️ cutt.ly/w9tI5Pb
14
29
2,864
Sappani Foundation retweeted
25 Nov 2022
The #16Days are...
Time to take action.
Time to stand with survivors.
Time to end #SGBV.
This and every year, we join the global #16DaysOfActivism campaign to end sexual and gender-based violence.
Join us. Together we can #UNITE #Orangetheworld, and #EndVAW.
2
6
20
24 Nov 2022
Congratulations to Areebah Qureshi, the 2022 recipient of The Sappani Foundation Ela Award. In partnership with @CNIB, the Ela Award supports post-secondary education for BIPOC girls with sight loss.
For more information, visit cnib.ca or sappanifoundation.com.
1
5
5
New CDG pages are published on #cdghub ! Learn more about disorders of N-linked #glycosylation ALG2-, ALG9-, ALG11-, ALG14- & DPAGT1- CDG here cdghub.com/cdgs/
3
2
28 Aug 2022
An op-ed by @VJsapps and @shuvmajumdar on how Canada can work with India and Pacific democracies to help Sri Lankans rebuild collectively for a pluralistic democracy and counter China
thestar.com/opinion/contribu… @McKinnonDavid @AnitaAnandMP @gary_srp @MASumanthiran @surendirans
1
2
28 Aug 2022
"For major Pacific democracies determined to establish a rules-based order, this is an opportunity to counter Beijing’s hegemonic ambitions and demonstrate how collaborative interventions can help Sri Lanka overcome the crisis...."
1
28 Aug 2022
"...Set within a clear-minded agenda for Canadian interests, this would enable Sri Lanka to emerge as a resilient and strong democracy, and provides an opportunity for Canada to earn some needed respect in a region it has been absent from for too long."
Sappani Foundation retweeted
23 Aug 2022
For Pacific democracies determined to establish a rules-based order, @shuvmajumdar and @VJsapps argue that "rebuilding a bankrupted #SriLanka is an opportunity to counter Beijing’s hegemonic ambitions." #cdnpoli macdonaldlaurier.ca/sri-lank…
1
3
21 Jun 2022
Call for Climate action champions. 100 of them 🇱🇰 🇮🇳🇧🇩🇳🇵🇧🇹, 18-35 yrs. 50% Women, 12 months , virtual and in person . Details here. orfonline.org/climate-action…
1