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TSC Alliance @tscalliance

The TSC Alliance is a source of hope and support for people with tuberous sclerosis complex so they can live their fullest lives. #HopeNoMatterHowComplex

Joined August 2008
  • Tweets 5,991
  • Following 968
  • Followers 2,588
1,740 Photos and videos
The RDCTN team & our partners at Rare Disease Research Catalyst Consortium (RDCat), are proud to join #TSCGlobalVirtualRelay for Tuberous Sclerosis Complex (TSC) awareness! Follow the digital baton across all 7 continents! #TSCGlobalDay #ConnectingTheWorld4TSC #LighttheWay
A team of people facing the camera in front of a poster, three of them are holding posters to support the TSC initiative

ALT A team of people facing the camera in front of a poster, three of them are holding posters to support the TSC initiative

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#wearblue for #TSCGlobalAwarenessDay! Together, we unite for everyone impacted by tuberous sclerosis complex (TSC). Learn more and get involved: hubs.li/Q04gNKdk0 #TSCAlliance #RareDisease
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TSC RESEARCH IN THE NEWS! Apertura Gene Therapy and the TSC Alliance Announce Collaboration to Advance Gene Therapy Programs Designed to Treat Tuberous Sclerosis Complex (TSC) hubs.li/Q04fq26-0

Apertura Gene Therapy and the TSC Alliance Announce Collaboration to Advance Gene Therapy Programs...

News Press Release – Gene therapy programs developed through the collaboration will use Apertura’s TfR1 CapX™, a novel, intravenously delivered AAV capsid – NEW

aperturagtx.com
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TSC Alliance retweeted
ECHO Epilepsy Ontario@ECHOEpilepsy
Apr 23
Join Session 1: Introduction to TSC 🔎Review the clinical diagnostic criteria for Tuberous Sclerosis Complex, including key dermatological findings. 🧬Explore the genetic basis of TSC and implications for care. 📅 Apr 29 | 12–1 PM 🔗 Register: oen.echoontario.ca/qs-tubero…
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New to a TSC diagnosis? You are not alone. Join us tonight at 8 pm ET for TSC 101 for newly diagnosed individuals or families, to gain a clear understanding of TSC and learn how to build a coordinated network of care for your journey. Register: hubs.li/Q04dTrWV0
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TSC Alliance retweeted
Ben Kuhn@tacowagon84
Apr 26
TSC Alliance Walk In Chicago Team Ezra! Cure TSC @tscalliance
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2026 TSC Alliance Research Grant and Postdoctoral Fellowship program is now accepting LOIs! LOIs must be submitted by Monday, May 18, 2026, on ProposalCentral. Access the program description, information on how to submit an LOI, and more: hubs.li/Q047w-tw0

Grants & funding

I will forever be grateful to the TSC Alliance for funding my research and for their support throughout the grant process. Having a leading TSC organization believe in my work

tscalliance.org
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TSC Alliance retweeted
Senator Mark Kelly
@SenMarkKelly
Mar 15
Jerry, sorry no. Terry, no wait, that’s not right... Jim! Jim O’Heir and the @tscalliance stopped by the office to talk about tuberous sclerosis complex and the fight to improve care and research for families living with it. We’ve got to keep supporting the medical research that helps turn breakthroughs into real treatments.
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2026 TSC Alliance Research Grant and Postdoctoral Fellowship program is now accepting LOIs! LOIs must be submitted by Monday, May 18, 2026, on ProposalCentral. Access the program description, information on how to submit an LOI, and more: hubs.li/Q046X2Qc0

Grants & funding

I will forever be grateful to the TSC Alliance for funding my research and for their support throughout the grant process. Having a leading TSC organization believe in my work

tscalliance.org
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Join us for the 2026 TSC World Conference, from July 30-August 1 at the Gaylord Rockies in Aurora, CO! 🏔️ Register and learn more at hubs.li/Q046RcQc0.
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The TSC Alliance wishes you a happy and safe new year! #2026 #tscalliance
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TSC Alliance retweeted
Tracy Dixon-Salazar@TracyDixonSalaz
8 Dec 2025
#AES2025 #WhereIsSavannahRaine @LGS_Foundation #LennoxGastautSyndrome @CanineAssistant @curedravet @tscalliance @PERCepilepsy
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Join us at AES 2025! The TSC Alliance is excited to attend AES 2025 in Atlanta, GA this year. Come find us at our booth (#639) at the Georgia World Congress Center from December 5-9. **Not sponsored or endorsed by AES.
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The TSC Alliance wishes you a happy and safe Thanksgiving holiday!
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Eleventh Annual Infantile Spasms Awareness Week Scheduled for December 1-7. Learn more: hubs.li/Q03VSK420 #ISAW

Eleventh Annual Infantile Spasms Awareness Week Scheduled for December 1-7

/PRNewswire/ -- From December 1 to 7, 2025, a coalition of organizations will mark the Eleventh Annual Infantile Spasms Awareness Week (ISAW). The goal of ISAW...

prnewswire.com
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SUDEP Action Day is Oct 15. This year’s theme, “Hope Begins with a Conversation”, reminds us that talking openly about SUDEP risks & prevention can save lives. Every conversation builds safety, understanding & hope. Learn more & join us: hubs.li/Q03NLMF90
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SUDEP Action Day on Oct. 15 is a crucial time to raise awareness about Sudden Unexpected Death in Epilepsy (SUDEP). Join us and our partners in continuing this important conversation. Learn more: pameonline.org/ #SUDEPActionDay2025 #BreakDownBarriers
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2025 TSC Biosample Seed Grants Available! The TSC Alliance announces a funding opportunity for 2025 Biosample Seed Grants to support research using blood, tissue, and/or cells, DNA, or RNA isolated from samples in the TSC Biosample Repository. Apply here: hubs.li/Q03MJR7-0
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Safety is a top priority when managing your epilepsy. Building your healthcare team can help reduce your risk for SUDEP. Visit the @AmEpilepsySoc website to find specialty care and discuss how to reduce risks for SUDEP: my.aesnet.org/findadoctor
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2025 TSC Biosample Seed Grants Available! The TSC Alliance announces a funding opportunity for 2025 Biosample Seed Grants to support research using blood, tissue, and/or cells, DNA, or RNA isolated from samples in the TSC Biosample Repository. Apply here: hubs.li/Q03L_gpQ0
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