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Our 2026 MSD Virtual Summit speaker lineup starts here 👉
We’re proud to welcome from CHOP:
Dr. Becca Ahrens-Nicklas & Dr. Laura Adang. More details TBA soon!
🗓 September 18–19
💻 ZOOM | FREE to attend
Learn more: curemsd.org/2026-virtual-sum…
#MSDVirtualSummit #InPartnershipWeThrive
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Today, we honor & remember Jean-Paul Sietz, who passed away from MSD three years ago at age 16. His kindness, joy, & love radiated out to everyone who had the privilege of knowing him and will forever shine in our hearts. #NeverForgotten #MSDAngel
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Today, we wish Alice a very happy 7th birthday! 🎉 As your mother, Clariana, beautifully shared, “The first step is to believe.” We hope your special day is filled with all the things and people you love!
#HappyBirthday #EveryBirthdayisSpecial #RelentlessHope #RealProgress #MSD
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This #AutismAwarenessDay, we stand w/the #autism community, & w/families on the shared journey of seeking a diagnosis. #MSD can look like #ASD, as all children with MSD experience developmental delays. But this rare, progressive disease often brings more questions than answers.
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Happy 16th Birthday to Zeuri! From all of us at United MSD Foundation, we hope you have a wonderful day filled with love, joy, and fun! Let's celebrate Zeuri with more birthday wishes in the comments!
#happybirthday #birthdaylove
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Next Tuesday, 3/24, Student Ambassador Emily Sandlin will take over our IG to share a glimpse into her day as a United MSD Foundation Student Ambassador!
Follow us @CureMSD to see Emily sharing her experiences and journey!
#TakeoverTuesday #InstagramTakeover #StudentAmbassador
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BIG NEWS! 🚨 Save the date for the MSD Virtual Summit, hosted by the United MSD Foundation this Sept 18–19! Our global community of MSD families, researchers, clinicians & more will unite on Zoom because in partnership, we thrive.💡Learn more & join us at curemsd.org/2026-virtual-sum…
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Shout out to our #ZebraRun in-kind sponsors! Your support keeps everyone fed, entertained, informed, hydrated, & headed the right direction. We couldn't do this without you! Thanks to Chik Fil A, Dubba's Delights, Images Galore, MGCCC, Mitchell Distributing, The Shed, & TatoNut!
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We’re proud to again recognize Stein LTC Group for their generous support of the #ZebraRun. 🦓 Partnership like yours drives our mission forward to bring us closer to a treatment for #MSD. Thank you for helping to raise awareness, amplifying our message of #relentlesshope! 🖤🤍
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From the pre-race warmups to the moment the medals are placed around proud finishers’ necks, the #ZebraRun is going to be an unforgettable day! 🦓✨ Take a look at the full event schedule & secure your spot today. We can’t wait to see you there! 👉 ow.ly/is3x50Yoctt
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Thank you to Haute Designs by Nate, official photographer for the #ZebraRun, for capturing all the dazzling moments! 📸 Don’t forget to flash that winning smile when you see him at the finish line! Not signed up yet? Join the fun here: ow.ly/c0bX50YoaUe
#RareDisease
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🎉 Join us for #ZEBRAFEST on Fri., March 6, at 5PM at Val's Sports Bar as we kick off #ZebraRun weekend with heart! 💙 Grab your race packet early; bid on Silent Auction items to support #raredisease families; & enjoy entertainment, food & fun! 👉ow.ly/Myzq50YmJ2a
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We’re proud to recognize Stein LTC Group for their generous support of the #ZebraRun. Their continued sponsorship, year after year, helps us share a message of #relentlesshope. Thank you, Stein LTC Group, for standing with our #MSD families and fueling the fight for a treatment!
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Registered for #ZebraRun yet? We're in 24 states & counting & thrilled to be racing alongside our amazing supporters in our newest states: FL, GA, MD, MA, MI, MT, NV, NC, & VA! 💙 Register today & join the fun here ow.ly/ss2650YkwqU.
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