We are the Cork Centre for Cystic Fibrosis (3CF) at the Cork University Hospital. Updating our patients, the public, and researchers on our work
Joined October 2019
- Tweets 245
- Following 524
- Followers 261
- Likes 2,147
83 Photos and videos
3CF retweeted
27 May 2025
📢 Calling all people with CF, and carers & families of pwCF!
Can you give 8 to 10 short minutes to anonymously tell Tamara Vagg at @3CF_ie what electronic tools you are using to support CF care, and if there are any skills or training you need to use these tools confidently?
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We want to hear from #cysticfibrosis #careteam members with experience using #telehealth on what #digitalCompetency proficiency levels are needed, to use telehealth safely and effectively. To find out more, click here: ucc.qualtrics.com/jfe/form/S…
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We are interested in learning about the experiences of the #Irish #CF #community with using electronic tools to support their care. We are especially interested in what digital skills the Irish #CysticFibrosis community have and may need. ucc.qualtrics.com/jfe/form/S…
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3CF retweeted
4 Feb 2025
The THCF have 3 surveys currently out exploring #telehealth within #CysticFibrosis. If you are a member of a #CF Registry, Patient Association, or CF Unit - please consider answering one of our surveys. All opinions and insights welcomed: ecfs.eu/telehealth/research
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3CF retweeted
31 Jan 2025
And that's a wrap! The #INCFC2025 is now closed. Thank you to every speaker, every delegate and the organising committee - Prof Barry Plant, Prof Barry Linnane, Prof Ed McKone, CFRI and CFI for making this an insightful and informative meeting.
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Wooohooo, congratulations to Mairead O'Donnell for receiving third place at the #INCFC2025 conference last week. Well done Mairead! #research #CF #CysticFibrosis 👏👏🥳🎖️
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Well done to our pharmacist Sarah, physio Fiona, and research fellow Tamara on their poster presentations last week at #INCFC2025 #CF #CysticFibrosis đź‘Ź
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Well done to our consultants Kevin Hisham, and our Regs Noreen, Mairead and Seamus on their poster presentations last week at the #INCFC2025 đź‘Ź
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Delighted to the have Irish National CF meeting back in Ireland #INCFC2025 with our own Prof Barry Plant opening the meeting #CysticFibrosis #CF
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3CF retweeted
Le groupe ECFS Telehealth for Cystic Fibrosis organise des réunions d'échange de réflexions et d'expériences concernant la télésanté pour les personnes vivant avec la mucoviscidose. Prochaine réunion le 17/12 à 19h - Pour plus d'informations, consultez ecfs.eu/telehealth/meetings
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Delighted to share that our #realworld #ETI study has been accepted to #ERJOpen. This study looks at #ULD #CT, Inflammatory Markers, and #PROMS in 61 #PWCF and is #OpenAccess, check it out here: publications.ersnet.org/cont… #CysticFibrosis #CF
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Such a great initiative! For anyone attending Cork who are registered and have any questions about the registry or would like to know more, please share your questions below:
28 Nov 2024
đź‘€ CFI Signpostâť—
Do you want to know more about the Cystic Fibrosis Registry in Ireland @CFRegistryIE?
Some of the aims of the CFRI are to:
👉 Provide CF specific info to the public
👉 Use data to help assess and plan health services for pwCF
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3CF retweeted
28 Nov 2024
đź‘€ CFI Signpostâť—
Do you want to know more about the Cystic Fibrosis Registry in Ireland @CFRegistryIE?
Some of the aims of the CFRI are to:
👉 Provide CF specific info to the public
👉 Use data to help assess and plan health services for pwCF
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3CF retweeted
18 Nov 2024
We are running a global survey for #cysticfibrosis units to share their experience of #telehealth. The results will be used to create best practice guidelines for telehealth in #CF care. Open to all CF units, even those not using #telehealth. ucc.qualtrics.com/jfe/form/S…
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3CF retweeted
6 Nov 2024
Julie Bellew and the #Telehealth team shared a live demo of how a virtual ward works in the patients own home.
#DigitalForCare #Virtualward
@Jcwemyss @bellew_julie @frthompson
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3CF retweeted
7 Nov 2024
CFI are proud to have been able to support our member Alice Ward & her incredible team, in making 'SALT' - a film exploring the role salt & the ocean have played in Alice's life. 'SALT' premiers tonight at the @LonSurfFilmFest & we wish Alice and her team the best of luck! 📽️🌊💜
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3CF retweeted
Ready set book!
The webinar will be covering the below bitesize hot topics: Â
•PERT shortage update – Kerry-Lee Watson
•Overview of UK CF Trust Standards of Care – Elizabeth Owen
•Highlights of North American CF Conference 2024 – David Proud
bda.uk.com/events/calendar/c…
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3CF retweeted
31 Oct 2024
Is Telehealth taking over regular face to face consultations? - Free registration webinar on Wednesday 27 November 2024 at 12-00-13:00 CET - 11:00-12:00 UK time. More information on us02web.zoom.us/webinar/regi…
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3CF retweeted
29 Oct 2024
Thanks to Anna Scanlan and the @iEdHub for hosting this podcast. Loved the conversation with Laura Sahm and Sarah Robinson— always so much to learn from their inspiring expertise! #digitalHealthLiteracy #healthLiteracy #DigComp2_2 youtube.com/watch?v=oAVTuvYJ…
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