ALFP Mission: Improve the management of lymphedema and related disorders in the United States while contributing to global international advancement.
Joined September 2012
- Tweets 1,417
- Following 141
- Followers 292
- Likes 133
52 Photos and videos
ALFP retweeted
24 Apr 2020
New Action Alerts - EMAIL and/or TWEET Congress! Congress is beginning to work on the next #COVID19 response package! Contact them & ask that the #LymphedemaTreatmentAct be included! #lymphedema
Email votervoice.net/LTA/Campaigns…
Tweet votervoice.net/LTA/Campaigns…
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ALFP retweeted
20 Apr 2020
As lymphies, we're already hyper-aware of changes in our skin. Although more information is needed, here's another reason to keep an eye out for rashes or other dermatological symptoms.
via @ClevelandClinic #COVID19 #coronavirus #dermatology
consultqd.clevelandclinic.or…
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ALFP retweeted
15 Apr 2020
LE&RN honors Annerose Zorn-West with 2020 Impact Award. mailchi.mp/lymphaticnetwork/…
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ALFP retweeted
18 Apr 2020
During these unprecedented times of self-quarantine and #socialdistancing, it's important for all of us to take steps to ensure we stay healthy.
Use these self-care resources to take care of yourself this weekend and beyond. #endcancer bit.ly/3cp1iOE
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ALFP retweeted
17 Apr 2020
Help us validating a QoL tool for greater understanding of how lymphoedema affects lifes of children and young people:
English: surveymonkey.co.uk/r/LYMPHOQ…
Danish: surveymonkey.co.uk/r/LYMPHOQ…
German: surveymonkey.co.uk/r/LYMPHOQ…
French: surveymonkey.co.uk/r/LYMPHOQ…
Italian: surveymonkey.co.uk/r/LYMPHOQ…
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ALFP retweeted
2 Apr 2020
‼️Its more important THAN EVER in this #covid19 public health crisis, to pass the LTA to keep patients out if the hospitals, at home and healthy••🦋🇺🇸•• #lymphaticdrainage #covid #coronavirus #lymphedema… instagram.com/p/B-fHetXg4G8/…
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ALFP retweeted
14 Apr 2020
Something as simple as a small knock can turn into a non-healing wound or ulcer so look out for your legs! If you do knock your leg, keep a close eye on it and if it doesn’t heal as normal get in touch with your GP surgery #selfcare #legsmatter #protectourNHS
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ALFP retweeted
13 Apr 2020
Thank you so much for the sharing, @TheLymphieLife. Stay safe.
13 Apr 2020
"We are all living with fear these days. Sure, there is a lot of variance in the kind and the level of fear we each face and are trying to manage [...] I am afraid too. I live with fear, yes. But do I live in fear? No."
via @NancysPoint
nancyspoint.com/keeping-fear…
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ALFP retweeted
13 Apr 2020
Lymphedema not only affects the patient's physical health, but their quality of life and psychological well-being, too.
via @LymphedemaGuru #lymphedema #lymphoedema #QoL
lymphedemablog.com/2020/04/1…
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ALFP retweeted
13 Apr 2020
Gordon Research Conference award winners. LE&RN recognizes researchers at GRC. mailchi.mp/lymphaticnetwork/…
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ALFP retweeted
12 Apr 2020
Even though we may be apart, wishing you and your loved ones a joyful springtime holiday season 🌷
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ALFP retweeted
13 Apr 2020
"We are all living with fear these days. Sure, there is a lot of variance in the kind and the level of fear we each face and are trying to manage [...] I am afraid too. I live with fear, yes. But do I live in fear? No."
via @NancysPoint
nancyspoint.com/keeping-fear…
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ALFP retweeted
9 Apr 2020
Made a bingo board for us lymphies - I was able to fill a few rows and columns myself! 😅
#lymphedema #lymphoedema
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ALFP retweeted
8 Apr 2020
"A cure for lymphedema would help restore my honor, give me my freedom back and a new future to look forward to," Kelly Bell. Read Kelly's story; submit your own. We will take them to Congress. #RemoteLymphLobby #VoicetoCongress #LERNadvocacy #NotInvisible lymphaticnetwork.org/congres…
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ALFP retweeted
7 Apr 2020
Today free online Symposium: "Managing LE Under COVID-19 Stay-At-Home Orders" with Kathleen Shillue. mailchi.mp/lymphaticnetwork/…
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ALFP retweeted
7 Apr 2020
LE&RN's advocacy efforts continue and we need your help. We need your story to continue the fight. mailchi.mp/lymphaticnetwork/…
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ALFP retweeted
6 Apr 2020
Make your home into your exercise zone! You don't need equipment or special space. A lot can be done in your chair. If walking is difficult, just move your feet around in circles, then up and down – you can do this sitting down #selfcare #legsmatter #protectourNHS
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ALFP retweeted
4 Apr 2020
It all began with a curiosity about the molecular mechanisms of lymphatic anomalies in mice. “That’s how the journey started,” says Tamara Terzian, PhD. “Revealing this new and central role of p53 in #lymphedema is just amazing.”
via @CUAnschutz
news.cuanschutz.edu/news-sto…
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