Axial Spondyloarthritis International Federation. Talking all things relating to axSpA. Retweets are not endorsements.
Joined November 2014
- Tweets 1,893
- Following 122
- Followers 1,298
- Likes 1,060
341 Photos and videos
What an incredible few days at #EULAR2026!
It was inspiring to listen to presentations by patient representatives during the PARE programme; encouraging to hear about the clinical developments and research taking place around the world; and rewarding to ensure the voice of the international #axSpA community was heard throughout the congress!
Thank you to our Trustees and members who spoke on behalf of people living with #AxialSpondyloarthritis.
Thanks to everyone who raised awareness during EULAR by wearing their orange shoelaces! #LaceUpForAxSpA
@eular_org - European Alliance of Associations for Rheumatology
Jun 8
Missed a session or want to revisit your favourite highlights?
📺Access the #EULAR2026 Congress On-Demand and watch inspiring Scientific Sessions presented throughout the Congress, available from Monday 8 June until 31 December 2026!
Register here 👉 pulse.ly/z1ienw7bs1
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ASIF is at @eular_org - European Alliance of Associations for Rheumatology in London!
So good to see old friends and meet new ones and tell people about the International Map of AxSpA and PsA (IMAP).
Lots of inspiring information being shared by our friends and colleagues at different patient organsations around the world during the PARE sessions today!
And lots of people Lacing Up For AxSpA to raise awareness! We are loving seeing all the orange laces!
Come and pick up your pair at our booth on level 3 near the ICC Capital Suits.
@NASSchiefexec
#Eular2026 #axSpA #AxialSpondyloarthritis #LaceUpForaxSpA
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The global average delay to diagnosis is 7.4 years.
If you are searching for an explanation of your back pain check out the @spondylitis resources - could it be #AxialSpondyloarthritis (#axSpA)?
May 26
It's not stress. It's not your mattress. It's not in your head.
1 in 4 patients have seen five or more health professionals in search of a diagnosis. We Move Differently with Spondyloarthritis—long before diagnosis.
If your pain improves with movement, it might be time to ask why.
Getting answers starts with awareness.
spondylitis.org/spa-awarenes…
#WeMoveDifferently #NotJustBackPain #InvisibleIllness #axspa #spondylitis
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Today is World AiArthritis Day!
Join AiArthritis in DRIVING awareness this World AUTOimmune & AUTOinflammatory Arthritis Day!
This year they are showcasing lived experience and amplifying the voices of individuals affected by autoimmune and autoinflammatory arthritis through the campaign theme #MyAiArthritisDisease.
Every lived experience is unique and valuable. By sharing yours, you help shape awareness, advocacy, research, and future recognition for conditions that may still be overlooked.
#axSpA #AxialSpondyloarthritis #AiArthritisDay #LearnArthritis #DRIVEawareness #autoimmune #autoinflammatory
It's World AiArthritis Day! Awareness is the starting line. 🏎️💨
World AiArthritis Day brings the world together to move that forward.
Join in: worldaiarthritisday.org
#AiArthritisDay #DRIVEawareness #autoimmune #autoinflammatory
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Today we are proud to stand with the IBD community.
IBD also affects many people who live with #AxialSpondyloarthritis (#axSpA).
Access to healthcare should not depend on where you live!
#WorldIBDDay #IBDHasNoBorders #AccessToIBDCare #IBDCommunity
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We are looking forward to recognising #WorldAIArthritisDay.
Check out the post below and find out how you can get involved!
For the 450 million people worldwide living with autoimmune and autoinflammatory diseases, understanding is often the missing piece.
Get involved: worldaiarthritisday.org
#AiArthritisDay #LearnArthritis #DRIVEawareness #autoimmune #autoinflammatory
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Patient organisations around the world are raising awareness about #AxialSpondyloarthritis today - #WorldASDay!
#axSpA is #NotOnlyBackPain - find out more at asif.info/worldasday/
Thank you @trighana and everyone for raising awareness!
Today is World AS day. Axial Spondyloarthritis day. It's generally highlighted by persistent lower back pain. Sometimes pain in hips, buttocks, fatigue and widespread pain.
Find out more about this condition.
asif.info/resources-about-ax…
#WorldASDay2026
#LaceUpForAxSpA
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Thanks to @globalafpa and to everyone who has posted and shared their story to raise awareness about #axSpA this #WorldASDay2026!
Support and understanding are vital. Talking about how axSpA and its related conditions affect your life helps others understand what living with them really means.
Learn more on #WorldASDay2026 from @ASIntFed: asif.info/worldasday/
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The first day of the Global Spondyloarthritis Summit was fantastic! We can't wait for the second session today! What a great way to spend World AS Day!
👏 @spondylitis congratulations on such a great event!
Don't forget to tune into this free online event - visit spondylitis.org/global-spond…
#WorldASDay2026
May 1
Day 1 is already off to a great start!
Be sure to join us at 10:15am PDT for the Movement and Exercise session led by Emily Clarke, BSc. (Hons) MCSP.
Emily Clarke is a physiotherapist specializing in Spondyloarthritis, with over 20 years in healthcare practice.
Join us online: spondyloarthritissummit2026.…
#spondylitis #spondyloarthritis #exercise #movement #spondysummit2026
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This #WorldASDay2026, hear real stories showing life with #axSpA beyond back pain.
Fatigue, IBD, uveitis, psoriasis, mental health, and more, often invisible, shape daily life. Diagnosis can take years.
Walk with us and help raise awareness.
asif.info/worldasday
#NotOnlyBackPain #AxialSpondyloarthritis
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Thanks @Official_ASAS for raising awareness of #axSpA through your support of #WorldASDay.
We are loving seeing the number of World AS Day posts increasing across all channels in the lead up to World AS Day tomorrow!
Find out more at asif.info/worldasday
Apr 17
Axial spondyloarthritis affects far more than the spine. Lace up for axSpA, take a step and help raise awareness worldwide.
Find out more at the website:
asif.info/worldasday
#WorldASDay2026 #LaceUpForAxSpA
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🌎 Latin American Map of Axial Spondyloarthritis (#LAMAS) report was officially launched @PanlarLeague.
@WilsonBautista, @MarcoGarridoCumbrera, @FernandoSommerfleck & Julieth Buitrago presented the findings, sharing the burden of #axSpA in Latin America.
📘 Hundreds #rheumatologists picked up their copy of their report throughout the congress!
📄 Download LAMAS in English, Spanish and Portugugse: asif.info/LAMAS
#Rheumatology
ALT Fernando Sommerfleck, Wilson Bautista, Marco Garrido Cumbrera, Azalea Rojas, Jo Lowe and Julieth Buitrago at PANLAR
ALT Marco Garrido Cumbrera presenting LAMAS at PANLAR
ALT Marco Garrido Cumbrera, Jo Davies, Massiel Oro, Jo Lowe and Julieth Buitrago at PANLAR
ALT Julieth Buitrago presenting LAMAS at PANLAR
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It started as back pain in his teens. But for Akash, it didn’t stop there.
#AxialSpondyloarthritis is not only back pain, it can involve fatigue, IBD, uveitis, and more.
Discover his story and share yours, use our guide to help tell it.
asif.info/worldasday
#WorldASDay2026 #NotOnlyBackPain #axSpA
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Walk Your AS Off is back in 2026! Join the global walk on 3 May!
Log your steps, join a team, and connect via the live Zoom event. @spondylitis
Every step helps raise awareness 💙
#WalkYourASOff #WYASO
Sign up: spondylitis.org/walk-your-as…
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People living with #axSpA wait around 7 years on average for a diagnosis.
Working together can help shorten this journey and improve care.
asif.info/worldasday
#WorldASDay2026
ALT Awareness graphic highlighting delayed diagnosis in axSpA, featuring a large number 7 and messaging about a global average delay of more than seven years, alongside the World AS Day 2026 logo.
ALT Promotional image showing a diverse group of older adults in a line, with messaging about raising awareness and improving diagnosis and care for axSpA, alongside the World AS Day logo.
ALT Call-to-action graphic for World AS Day 2026 featuring an orange background, central logo, and text inviting people to be part of the campaign and raise awareness of axSpA.
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Axial spondyloarthritis places a significant burden on people around the world.
New findings from the Latin American Map of Spondyloarthritis (LAMAS) report show:
🔹 Avg annual cost per person with axSpA: US $9,064
🔹 Only 25% can exercise without restrictions
🔹 Poor disease control linked to worse mental health & more comorbidities
📍 Launching at #PANLAR in Panama
📄 Available in EN | ES | PT: asif.info/LAMAS
🎥 Hear Azalea Rojas from Mexico discuss why the evidence matters. Watch more videos online.
#LAMAS #EspAax #PANLAR #EpAax
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Bhushan spent years searching for answers before his #AxialSpondyloarthritis diagnosis. Today, it’s taken his mobility and independence. #axSpA is not only back pain.
Watch his story on our website. Share yours and use our guide to help tell it. #WorldASDay2026 #NotOnlyBackPain
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Even simple tasks like tying shoelaces can be challenging for people living with axial spondyloarthritis.
Join the Lace Up for axSpA challenge.
Tie your laces, share a photo or video, and use #LaceUpForAxSpA and #WorldASDay2026.
asif.info/worldasday
#axSpA #AxialSpondyloarthritis
ALT Close-up of hands tying bright orange shoelaces on a grey trainer. A World AS Day 2 May 2026 logo appears with the message “Lace Up for axSpA” and “Small acts that spark big change.”
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Registration is open for the @spondylitis 8th Global Spondyloarthritis Summit, a free virtual event on May 1–2, 2026.
Explore practical ways to live well with SpA, from fatigue and nutrition to resilience and work.
Join from anywhere: spondyloarthritissummit2026.…
#SpondySummit2026 #axSpA #ChronicDisease #Fatigue #JointPain #BackPain #WorldASDay2026 #NotOnlyBackPain #AxialSpondyloarthritis
ALT Promotional graphic for SAA’s 8th Annual Global Spondyloarthritis Summit. Illustration of a person holding their lower back highlighted in red to show pain. Text reads “Register Now,” “May 1–2, 2026, Free Virtual,” and “Living Well with Spondyloarthritis,” with a Learn More button and Spondylitis Association of America logo.
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Geraldine lives with #AxialSpondyloarthritis, a condition that goes far beyond back pain. Unpredictable symptoms, invisible impact and daily challenges, #axSpA is not only back pain.
Explore her story at asif.info/worldasday #WorldASDay2026 #NotOnlyBackPain
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