Most people don't know what it’s like to have a pregnancy complicated by a fetal anomaly. And it shows in our reproductive health policy!
#FetalAnomalyStories is a thread for awareness and empathy, amplifying stories from pregnant people & those who care for them. #PolicyChange
The Trump administration has removed reproductive rights from its annual human rights report, omitting critical data about access to abortion & contraception, freedom from discrimination in health care, & maternal health.
This is CLEAR attempt to cover up human rights abuses.
This week, I taught my final day of Resolve Through Sharing’s Perinatal Death & Bereavement Training, which helps healthcare professionals support families experiencing pregnancy and infant loss.
After 5 incredible years, I’ll miss this work deeply. 🧵
#PerinatalLoss
To Mary Beth Hensel and the RTS team: your behind-the-scenes excellence made every session seamless! When talking about grief and loss, that kind of support matters more than ever.
Republicans just made health care coverage more expensive for our families. For some, a 20% hike could price folks out of coverage entirely, meaning more uninsured families, more sickness and more deaths.
This is the result of the GOP’s policy choice.
New in @JPerinatology:
What drives disparities in care for people facing fetal conditions?
We introduce a new framework to understand how context, systems, and care processes can shape outcomes — and where change is needed.
rdcu.be/euqVT#perinatalcare#healthequity
This figure illustrates the model through case exemplars. These are fictionalized scenarios based on existing evidence and clinical experience, intended to ground the framework in real-world contexts.
#FetalAnomalyStories#HealthDisparities#FetalTherapy#fMMC
Most anti-abortion crisis pregnancy centers (CPCs) “don’t offer real health care,” explains @kylietcheung. But they “have a history of reporting data to—and actively colluding with—government agencies and law enforcement.”
jessica.substack.com/p/we-ne…
🚨 New in #HAScholar@Health_Affairs: Our scoping review on Dobbs-driven expansion of #PerinatalPalliativeCare (PPC) is out now.
We examine the limits of the evidence at a time when PPC is increasingly offered not by choice, but by policy.
bit.ly/4d0ywof
Spontaneous TAPS has been thought to be a relatively benign form of fetofetal transfusion, but these results show that the long-term consequences of this condition should not be underestimated. bit.ly/3uYtkKh#tapssupport#tapsisreal
A new review shows gaps in the knowledge of safety, effectiveness, acceptability, and equity of PPC—underscoring the need for more information to support the growing patient population now directed into it by policy rather than choice.
This is getting lost in the conversation:
Medicaid cuts aren’t just bad for folks who rely on it. They’re bad for everyone.
Hospitals will close & health insurance premiums will go up across the board.