Raising money for medical research into Ataxia Telangiectasia (A-T) - rare, neurodegenerative, genetic disease leading to disability and premature death.
Joined January 2012
- Tweets 3,575
- Following 271
- Followers 1,012
- Likes 1,253
572 Photos and videos
Apr 13
We’re proud to be partnering with @GOSHCharity to fund vital new research into A‑T at the @ManchesterUniv. See actionforat.org/targeting-uf…
None of this happens without the generosity of our supporters.
Together, we’re moving A‑T research forward. 💛 #ATresearch #ActionForAT #GOSH
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One of ongoing corporate partnerships providing support for our A-T research programme.
Feb 2
We’re proud to support our charity partners, Action For A-T, and to have helped raise £22,500 throughout 2025.
To learn more about the incredible work they do, head over to @ActionForAT.
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Jan 20
Researchers working to transform outcomes for children with Ataxia‑Telangiectasia (A‑T) — this is your last chance to submit an outline application for the @ActionforAT & @actionmedres Joint Grant Round.
📅 Deadline: 28 January action.org.uk/research/apply…
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16 Dec 2025
📷New Joint Grant Call Now Open📷
Thanks to your generous support, @ActionforAT & @actionmedres have joined forces to fund cutting-edge projects that aim to transform the lives of children and young people living with A-T. Visit action.org.uk/research/apply… to apply or find out more.
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4 Dec 2025
Thanks to everyone who has supported Action for A-T through the @BigGive Xmas Campaign — £6,760 so far but there are still plenty of matched funds available. That means every pound you give will be doubled helping us accelerate research into A-T. Visit donate.biggive.org/campaign/…
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27 Nov 2025
Huge thanks to our friends at the @TheQuietSite who kindly donated glamping packages for auction in 2025. Their award winning #lakedistrict site was a big hit with our event guests raising £3065 for more A-T research. Please get in touch if your company could help us in 2026.
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14 Nov 2025
Our pre Christmas auction with @MashieGolfUK is now live, many thanks to everyone who has donated prizes. Visit the site to check out all the prizes on offer uk.givergy.com/Mashiecharity…
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3 Nov 2025
Huge congratulations to Chris Spedding for completing the New York Marathon yesterday. Please also join us in thanking Chris as his efforts generated £3,800 for more A-T Research. Rest well Chris, you deserve it.
#runningforresearch #ataxiatelangiectasia #charityrunner #newyork
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24 Oct 2025
Huge thanks to Stephen Russell of Clarion Golf & everyone who attended the Clarion Pairs event at @WoburnGC yesterday for our final golf day of 2025.
£13k was raised & these funds will be committed to new A-T research shortly. See you on the fairways in 2026.
#charitygolf
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10 Oct 2025
Run for Research in the 2026 TCS London Marathon!
Action for A-T has 4 guaranteed places available — and they’re waiting for passionate runners like YOU. Visit actionforat.org/2026-04-26-t… for more details.
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6 Oct 2025
Huge congratulations to the @Brightwake team for completing their 272km, "Way of the Roses" cycle ride from Morecambe to Bridlington. The team battled through some tough conditions, over 3 days, but all completed the ride safely raising £10,391 for more A-T research 💪🙌🙏
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3 Oct 2025
The team at @Brightwake are cycling 270km for @ActionforAT — inspired by Emilia, diagnosed with A-T at just 6 weeks old 💙
Every mile = hope. Every donation = progress.
Thank you, @Brightwake, for riding with heart 🙌
#BrightwakeForAT #CycleForACure #EmiliasJourney #RareDisease
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24 Sep 2025
One week on from the Constellation Automotive Group walk & cycle event, we are delighted to confirm that £100,000 was raised for more A-T research. We are so grateful to everyone who took part plus sponsors & volunteers for their incredible support.
@cinchuk @MarshallMotorGp
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10 Sep 2025
The sun shone, the greens ran true & the donations were generous at the stunning @royalautomobileclub yesterday. £13,200 was raised for more A-T research. Thanks to everyone who supported and congratulations to all of the prize winners #charitygolf
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Action for A-T retweeted
27 Aug 2025
I am raising sponsorship funds for @ActionforAT: justgiving.com/page/rafael-j….
This September I will ride the "French" Camino de Santiago (478 mi/770 Km) in support of @ActionforAT, which has funded my lab's research project actionforat.org/crispr. Please sponsor if you can, thanks
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9 Jul 2025
Huge congratulations to all the @QuestLondon students who graduated today. Their fundraising efforts raised over £17k for more A-T research we are so grateful for their generous support. Enjoy the party tonight guys, you’ve earned it. #teamwork #ataxiatelangiectasia @rorybremner
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2 Jul 2025
Huge thanks to our good friends at @StewartGolf and their generous customers for helping us raise £15,000 via their online auction. These funds will be committed to new A-T research in the coming weeks. #CharityGolf #CollaborationForACure #ataxiatelangiectasia #thankyou
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Action for A-T retweeted
30 Jun 2025
Only 24 hours remaining in the @ActionforAT charity auction, with some incredible prizes on offer:
⛳️ Golf for 4 at Hollinwell, Royal St. Georges & Moor Park
🏝️ Trips to Jamaica, Barbados & Spain
🎟️ Once-in-a-lifetime experiences
View all prizes here 👉 tinyurl.com/y3d4mfry
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24 Jun 2025
🚴♂️ Roger Sibley is cycling 2,000 km around Europe to support @ActionforAT and raise awareness for children with #AtaxiaTelangiectasia 💙
Follow his journey & help turn every km into a step toward a cure:
🔗 blog.rogerrides4at.org/
#RogerRides4AT #RareDisease #CycleForACause
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20 Jun 2025
Today we’re proudly going #RedForResearchDay2025!
Every red outfit worn supports vital research into rare diseases like Ataxia-Telangiectasia (A-T).
Join us, wear red, and help drive forward the science that gives hope. 🔬❤️
#RareDiseaseResearch #ATawareness
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