We are a group of like minded adults born prematurely that strive to connect with and advocate for other adults born early.
Joined January 2021
- Tweets 125
- Following 26
- Followers 354
- Likes 112
24 Photos and videos
Adult Preemie Advocacy Network retweeted
Calling all UK neonatal teams! COLLABORATE, an adaptive, 2-randomisation, real-world-data-enabled RCT to reduce NEC will go live 06/25! We are running a series of webinars to explain & discuss the study Join us! All welcome! Web-links at
imperial.ac.uk/neonatal-dataβ¦
@BAPM_Official
3
374
Adult Preemie Advocacy Network retweeted
22 Jan 2025
1
108
Adult Preemie Advocacy Network retweeted
27 Nov 2024
That's a wrap for @Adultpreemies webinar series: Adults Born Preterm - The Honesty Sessions.
Grateful to all the excellent speakers who took part including @Premmiemum @MichelleMKelly1 @The_BPD_Collab @DrColeFletch
1
3
10
706
Adult Preemie Advocacy Network retweeted
2 Nov 2024
π Today is the day we go live with our webinar series! @Adultpreemies @julietteprem28 @99nicu @vickypayne π₯³π₯³
Still time to register and catch the 1st in the series live at 3pm GMT.
Adults Born Preterm: The Honesty Sessions
zoom.us/webinar/register/WN_β¦
2
6
8
806
29 Oct 2024
Join us for the first webinar in The Honesty Sessions on the 2nd November where Lauren and Juliette will be discussing their path to advocacy
Sign up in the link below π½
1
3
4
411
22 Oct 2024
Join us as we explore some important topics relating to adults born preterm. 'We just catch up right?' live on 2nd November with Lauren and Juliette
4
8
704
Adult Preemie Advocacy Network retweeted
22 Oct 2024
Adults Born Preterm: The Honesty Sessions zoom.us/webinar/register/WN_β¦
1
2
119
Adult Preemie Advocacy Network retweeted
14 Oct 2024
Excited to reveal that @Adultpreemies will be hosting a series of webinars across November, powered by @99nicu More details to follow.
11
23
2,608
Adult Preemie Advocacy Network retweeted
10 Oct 2024
Coming soon! β¦@BAPM_Officialβ© β¦@Blisscharityβ© β¦@Adultpreemiesβ© β¦@NeonatalSocietyβ© β¦@NNAUK1β©
16
21
1,568
Adult Preemie Advocacy Network retweeted
16 Sep 2024
Protocol for new study in preterm birth, funded by @The_MRC.
Preterm birth as a determinant of neurodevelopment and cognition in children (PRENCOG): protocol for an exposure-based cohort study in the UK @BMJ_Open bmjopen.bmj.com/content/14/9β¦
13
20
1,881
Adult Preemie Advocacy Network retweeted
9 Sep 2024
Influence of Preterm Birth and Environmental Context on Academic Performance and Neurodevelopmental Outcomes dlvr.it/TD15ks
3
2
259
Adult Preemie Advocacy Network retweeted
27 Aug 2024
Registration has opened! Sign up to attend this year's Salvesen Lecture either in person eventbrite.co.uk/e/salvesen-β¦ or online eventbrite.co.uk/x/salvesen-β¦... or scan the QR code below
23
36
4,564
Adult Preemie Advocacy Network retweeted
3 Jul 2024
πWe did it - 5000 visits to the @Adultpreemies website! Thank you everyone and keep spreading the word.
1
7
464
Adult Preemie Advocacy Network retweeted
2 Jul 2024
Improving neonatal palliative & end-of-life care is vital to ensure we're providing care that families need. If you're a parent willing to share your experiences, please contact us, we'd love to hear from you @PeepsHie @mancini_smith @dadmattersuk @zephyrsnotts @Adultpreemies
18 Jun 2024
Weβre looking for parents/carers to participate in a study exploring how we can improve palliative care for babies in neonatal care (UCL REC 16059/012). Please contact us at neopace@ucl.ac.uk @DrKatie_G @SandsUK @Tog4ShortLives @agnes_agyepong @MotherhoodGroup @Jas_Sanghera_KN
1
9
10
1,502
Adult Preemie Advocacy Network retweeted
24 Jun 2024
Our first APAN stand is starting off like us... Small but mighty. Excited to spread the word about all things adult preterm. @Adultpreemies
4
13
989
Adult Preemie Advocacy Network retweeted
31 May 2024
Final call for participants!
Survey closes 3 June 2024.
It would be great to hear from #AdultsBornPreterm
For more info please below:
staffordshire.qualtrics.com/β¦
Grateful for shares!
Thank you to everyone who has supported my survey so far π
17 May 2024
PARTICIPANTS NEEDED!
Would you consider taking part in a short online survey about your motor coordination skill and quality of life?
Adults 18 born preterm, or term. More info below:
staffordshire.qualtrics.com/β¦
Grateful for shares! #AdultsBornPreterm #QOL
3
802
23 May 2024
There's still over a month left to be a part of this exciting research
22 Apr 2024
We co-produced this survey with @ChiesiGroup for those born prematurely living with asthma and/or Chronic Obstructive Pulmonary Disease (COPD). Open until the end of June for preemies in the UK, USA, Germany, France and Spain
adultpreemies.com/research-3β¦
#asthma #COPD #adultpreemies
3
172
Adult Preemie Advocacy Network retweeted
17 May 2024
PARTICIPANTS NEEDED!
Would you consider taking part in a short online survey about your motor coordination skill and quality of life?
Adults 18 born preterm, or term. More info below:
staffordshire.qualtrics.com/β¦
Grateful for shares! #AdultsBornPreterm #QOL
4
7
1,397