Life's an experiment.

A friend mentioned that her brother is having symptoms including dizziness feeling like he’s going to faint upon standing up or if he’s been standing for a long time. The doctor told him that it is “probably just anxiety” …………. I told her those are symptoms of POTS

Omega 3 is not good for everyone. It's definitely not for me. For the longest time, it knocked me out and made me feel drunk. I initially thought it was just another medication that I took at night, but the other day I took one in the morning thinking, "Hey, this might help my recovery from surgery." I became completely listless and drugged-feeling within an hour. 😵‍💫 Seriously! An Omega-3 supplement did that! I actually was flabbergasted, and I am rarely that surprised. I stopped taking them last night, and my brain has an extra cylinder today. 🤭 Turns out there is a very real biological reason for this. It all comes down to how a chronic virus body plays by an entirely different set of biophysical rules. Here is why high-dose Omega-3s completely backfired on my system: 1. The Brain Handbrake (Cholinergic Overload) Omega-3 fatty acids (specifically DHA and EPA) are incredibly efficient at crossing into the brain. Because this virus leaves our blood-brain barrier highly permeable and inflamed, the Omega-3s flooded right across all at once. The Glitch: Once in the brain, Omega-3s aggressively force the massive production and pooling of a neurotransmitter called acetylcholine. The Crash: While a little acetylcholine helps you focus, a sudden, massive surge acts like a heavy emergency handbrake on a hyper-reactive nervous system. It triggers profound lethargy, severe mental fatigue, and that exact drugged feeling within an hour. The Vascular "Pooling" Trap I originally started taking them to keep my blood flowing smoothly. In a healthy body, Omega-3s do this by signaling the blood vessel linings to release nitric oxide and relax. This is why continued learning is so key to survival.🤭 The Glitch: For those of us carrying structural genetic variants (like my classic EDS/bendy collagen genes), our veins already lack normal elastic snap. The Crash: The Omega-3s forced my blood vessels to dilate and open wide, completely stripping away the remaining tension in my veins. Instead of circulating upward to feed my brain, my blood volume lazily pooled downward into my lower legs and knees. My brain was instantly starved for oxygenated pressure, leaving me weak and groggy. 3. Intracellular Iron Fireworks Because of my H63D carrier gene combined with the persistent virus, my cells are already locked down and hoarding volatile, un-escorted iron (Non Transferrin Bound Iron). Omega-3 oils are highly unstable fats. When a heavy dose of fish oil hits cells that are full of trapped iron, it causes immediate lipid peroxidation essentially a tiny burst of chemical oxidative stress inside the cells that drains your cellular battery. Nursing Note❤️‍🩹 My body was giving me loud, unmistakable feedback (that I ignored for over a year): even "good" anti-inflammatories can throw a massive wrench into a highly delicate, compensated system. If you have low-activity COMT, sluggish liver pathways, or vascular pooling, generic internet supplement advice can be actively toxic. I’m trading the capsules for gentle, whole-food, water-soluble antioxidants like fresh lemon water and a handful of fresh berries. They protect the brain without pulling the vascular emergency brake. Listen to your weird reactions, your body is telling you exactly what it needs to survive this beast!

Honestly, I do believe a lot of medicine is just security theater. We have entire disciplines that can't really do anything for you, but exist as if to give society reassurance that if something happens to them, there will be someone to help

I get particularly concerned when I see DBT applied to health contexts. A core DBT "skill" is "radical acceptance." That means having a frank awareness of reality. All therapies emphasize that as a generally useful perspective. However, I see it frequently misapplied to encourage people to tolerate injustice. Often, therapists will warn, oh I would never do that, and then you listen to them for 5 minutes and realize that's exactly what it's doing. The whole approach was designed for people with severe chronic mental health and interpersonal challenges, so it's troubling the extent to which it has proliferated to so many contexts.

Well I just had my appointment at the Post Covid Clinic CBT and DBT Parasympathetic activation Breath work Stay out of crashes (gosh thanks like my whole life doesn't revolve around this) Fluovoxamine And... Wait for it... LDN (both of which I have reactions to btw) Fuck.

I guess trying to figure out how to dose a supplement non-orally because it makes your gut explode when you swallow it is kind of a fun game 😖 p.s. NEED SOME SUPPOSITORIES PLEASE.

I am very grateful Low Dose Abilify saved my life from very severe MECFS, however unfortunately it gave me PSSD which is truly hell. I can’t feel ANY emotions, nor my genitals, and can’t have an orgasm. Nothing gives me any pleasure, and this condition made me suicidal. 💔

don’t ruin your reputation with AI generated replies.

Anyone with #LongCovid take: “Mito-Q” And if so, what were your results?

the more i vibecode, the more i think: - holy moly this is cool - this is definitely not replacing a software engineer with at least 2 years of experience

Dr. Tim Henrich presented new findings surrounding long term persistence of SARS-CoV-2 proteins & RNA in Long COVID gut tissue at PolyBio’s recent Spring symposium. “We actually see [gut viral persistence] in both areas, the epithelium—which turns over every several days to week—to the lamina propria where you have long-lived myeloid immune cells… suggesting there may even be replication in some individuals,” said Henrich. Using a highly sensitive method of detecting viral RNA, “around 20-25% of the time, we see detection… all the way up until 3-4 years after initial infection” in Long COVID patients.

I have tried independently every single strain from Custom Probiotics and most of the mixtures (many multiple times), all the Pendulum products including single strain and mixtures of Akkermansia, both the Nella products, many of the New Roots/Genestra mixtures, many strains and brands of L. reuteri, many MANY brands of bifido only and MANY lacto/bifido mixtures - too many the count, probably 30-50, very high multi-strain formulas - including the highest (Equilibrium, both versions) and Seed. I have done a few trials including using incredibly high doses of Visbiome (one of those triggered a remisson event, I was also on antibiotics at the time) and longer-term lower doses. I have tried many single strains and mixes of spore probiotics - from AOR and other companies. Indeed, I probably have done more direct probiotic testing than anyone I know. I have also tested common prebiotics including HMO (the pinnacle) from layer origin, PHGG, polyphenols, resistant starches (from food and from supplements), and many many types of fibers. I have also tested post-biotics such as from AOR, and heat killed probiotics. Tried many brands of S. cerevisiae. Tried O. formigenes, oral probiotics from numerous brands, nasal probiotics. Realistically - around 100 related products most likely. I have also published on using probiotics (meta-analysis).

RT @JoannaTeglund: 1. If you are curious how much COVID—regardless of severity—increases the risk of mental disorders, this study is for yo…

Simone Biles is cooked. 126bpm ‘resting’ heart rate doing absolutely fuckall laying down in bed. same exact heart condition proven to be caused by covid, want the receipts?

I don't know who needs to hear this, but if you "cured" your ADHD by sleeping 8 hours a night, exercising daily, and cutting sugar out of your diet, then you did not have ADHD to begin with.

Looks an awful lot like trying to get medical care for chronic illnesses to me…

Today I received my 4th infusion of SGF (Stem Cell Growth Factors) at Edogawa Hospital in Tokyo, Japan. What is SGF? 🦷 SGF is derived from the dental pulp of children's naturally shed baby teeth. No stem cells are injected. Instead, the infusion contains the signaling molecules, growth factors, cytokines, and regenerative proteins that stem cells naturally produce. These biological messengers help coordinate communication between cells and are believed to support tissue repair, immune regulation, blood vessel health, and nerve regeneration. These growth factors are small enough to cross the blood brain barrier and reach the brain and nervous system directly. For someone like me with confirmed neuroinflammation, white matter atrophy, and small fiber neuropathy destroying my nerves from the inside out, the goal is remyelination. Rebuilding the insulation around my damaged nerve fibers.💯 Researchers have studied SHED (Stem Cells from Human Exfoliated Deciduous Teeth) for their regenerative potential in areas such as nerve repair, neuroinflammation, tissue healing, and age-related degeneration. Some people have nicknamed therapies like this the "Fountain of Youth" because the goal is not to replace damaged tissue, but to activate the body's own repair and regeneration pathways. Whether that nickname is deserved remains to be seen, but the science behind cellular signaling and regeneration is fascinating. Japan has become a global leader in regenerative medicine and allows access to therapies that are not currently available in the United States under its regenerative medicine framework. As Patient #27 in the McCairn–Edogawa Protocol, I am grateful to have the opportunity to experience this emerging science firsthand. 🧬🦷🇯🇵 #SGF #SHED #RegenerativeMedicine #StemCellScience #Neuroinflammation #SmallFiberNeuropathy #EdogawaHospital #Tokyo #MedicalInnovation

I tried brain retraining in the early stages of my Long COVID and it did nothing. 1) The first thing that helped me was anticoagulants for microclots. 2) The second thing was an antiviral peptide, to clear persistent SARS-CoV-2. Feel free to read: longcovidbegone.substack.com…