We're teaming up with the International PNH Interest Group to improve care for people with Paroxysmal Nocturnal Hemoglobinuria (PNH) in low-resource countries. PNH is a rare, debilitating blood disease that requires frequent blood transfusions & poses high risk without treatment.

Join our PNH Awareness Campaign! 🌟 From Sept 6 to Oct 12, let's raise awareness about Paroxysmal Nocturnal Hemoglobinuria. Share our posts with #PNHAwareness2024, join discussions, and support those affected. Together, we can make a difference! 💪 #DidYouKnow #TreatingPNH

Access for all to support is vital

It was amazing to represent the wider multidisciplinary team at EHA presenting about PNH with the patients at the centre of everything. #eha2024 #pnh #acp @GlobalPnh @PNHSupport @PNHScotland

Fantastic poster session yesterday. 🎉 Congratulations 🎉 to @AlexandraCPike and the team at Leeds, and to @AlexLubin6 & @bethpay and the team at UCL on their ASH Abstract Achievement Awards - a double win for Blood Cancer UK funded grants! 🏆 #ASH23

Dr Jens Panse reminds the audience that 80% of #PNH patients have no access to #treatment = significant #inequality As #patients we collectively lobby to address this where we can @lichterzellen @aamdsif @pnhaacontact @hpn_asociacion @PNHCanada @AAundPNHeV @ERNEuroBloodNet

Another very nice selected abstract evaluating disease burden and it’s implications for patients with #pnh within a UK-F-G consortium including QLQ-AA/PNH54 developed by ⁦@UniklinikAachen⁩ with strong support and collaboration ⁦@lichterzellen⁩ and ⁦@AAundPNHeV⁩

Congratulations to @UniversityLeeds' Prof Peter Hillmen for being awarded the Ernest Beutler Lecture and Prize, for 30 years of research on paroxysmal nocturnal hemoglobinuria. Great stuff! thelimbic.com/uk/haematology…

Very proud to say that that the recent Leeds Covid vaccination study, funded by The Aplastic Anaemia Trust, has been published in The Lancet Haematology. theaat.org.uk/Blog/covid-vac… @TheLancetHaem

Congratulations to Dr Pike for her recent publication assessing SARS-CoV-2 antibody response to vaccine in patients with aplastic anemia and PNH; thank you to the patients for their participation thelancet.com/journals/lanha…

New comment in @TheLancetHaem> #COVID19 vaccination antibody responses in patients with #AplasticAnaemia and paroxysmal nocturnal #haemoglobinuria thelancet.com/journals/lanha… #PNH

Today musicians gather at 3pm in Trafalgar Square 💛💙#playforukraine @decappeal