Behind every statistic is a person, a family, and a story. The Alpha-1 Research Registry has found that 85% of participants report being affected by either lung or liver disease. By joining the Alpha-1 Research Registry, you can help researchers gain valuable insights that support future discoveries and advancements in Alpha-1 care and treatment. Learn more: alpha1.org/join-the-alpha-1-…

New research continues to move the Alpha-1 community forward. A1F’s May 2026 PubMed Article Summary features the latest published studies and scientific updates focused on Alpha-1 detection, treatment, care, and research advancements. Stay informed on the discoveries and progress helping shape the future of Alpha-1: alpha1.org/may-2026-pubmed-a…

The Elegance in Purple Dinner at the 2026 A1F National Conference was a beautiful evening celebrating the strength and unity of the Alpha-1 community. During a moving presentation, A1F President & CEO Scott Santarella recognized the shared impact of the Alpha-1 Foundation, AlphaNet, and AlphaDetect, highlighting the power of working together for those affected by Alpha-1. As attendees lit up the room, the evening became a powerful reminder that this community stands united in hope, advocacy, research, and support. #A1FNC26

The 2026 A1F National Conference is bringing together leading experts and the Alpha-1 community for impactful sessions focused on the future of research, detection, and clinical advancement. Attendees are hearing from experts during “The Future of Alpha-1 Detection” and an engaging Alpha-1 Research Panel, while A1F Scientific Director Dr. Wilson is helping break down the research process during “Research & Clinical Trials 101.” These important conversations are highlighting the progress being made and the future of care and treatment. #A1FNC26

Tonight’s Piano Bar Glam Dinner at the 2026 A1F National Conference brought the perfect mix of music, laughter, dancing, and unforgettable memories! From glamorous looks to sing-alongs around the piano, the Alpha-1 community showed up ready to celebrate, connect, and enjoy an incredible evening together. 🎹 #A1FNC26

The 2026 A1F National Conference kicked off with inspiring opening remarks from A1F President & CEO Scott Santarella, followed by the “Alpha-1 Empowerment Hour,” featuring real Alphas and members of the Fred C. Walsh Speaker Bureau sharing their stories and experiences. Attendees also learned more about the Alpha-1 Research Registry and Therapeutic Development Network (TDN), and the important role these programs play in advancing research and future therapies for the Alpha-1 community. #A1FNC26

The First Time Attendee Lunch at the 2026 A1F National Conference brought together new members of the Alpha-1 community for conversation, connection, and a warm welcome to the event! From meeting others with shared experiences to learning more about the resources and support available through A1F, this special gathering helped set the tone for a meaningful and engaging conference experience. 💜 #A1FNC26

The Emerging Therapies in Alpha-1 presentations at the 2026 A1F National Conference #A1FNC26 will highlight groundbreaking research and innovative treatments that are shaping the future of Alpha-1 care and bringing us closer to a cure. These sessions offer a unique opportunity to hear directly from experts about the latest therapeutic developments and what’s ahead for the Alpha-1 community. Please note that these presentations will not be available on demand after the conference, making live attendance especially important. Learn more and register: alpha1.org/national-conferen…

The Platinum Sponsor Presentations at the 2026 A1F National Conference #A1FNC26 offer attendees the opportunity to hear directly from industry leaders about the latest advancements, research, and innovations shaping the future of Alpha-1 care. To tune in, register as a virtual attendee today: alpha1.org/national-conferen…

The 2026 Bettina B. Irvine Invitational brought supporters together once again in support of the Alpha-1 community, helping raise critical funds for research, education, and patient programs. Thank you to everyone who helped make this impactful event possible. Read more: alpha1.org/bettina-b-irvine-…

Dr. Kohli will present “Alpha-1 Pediatric Liver 101” at the 2026 A1F National Conference #A1FNC26, offering valuable insight into pediatric liver disease and its impact on children with Alpha-1. Virtual registration is still available, allowing attendees to learn from leading experts and stay connected with the Alpha-1 community from anywhere. Register today: alpha1.org/national-conferen…

The annual A1F Grant Awards Reception brought together more than 200 members of the Alpha-1 community during the ATS International Conference in Orlando to celebrate the 22 in-cycle grants awarded by A1F, totaling $3.75 million. The evening recognized the researchers, clinicians, and advocates whose work continues to advance Alpha-1 research and bring hope for better treatments and a cure. Read more about the event and this year’s grantees: alpha1.org/a1f-2026-grant-aw…

Thank you to our Platinum Sponsors for the 2026 A1F National Conference #A1FNC26! Their support helps make this event possible, bringing together patients, families, researchers, and healthcare professionals to learn and connect. We are grateful for their continued commitment to the Alpha-1 community and to advancing research and care. For more information about the conference, please visit: alpha1.org/national-conferen…

Today, we pause to remember those who gave their lives in service to our nation. We honor their courage and recognize the legacy they leave behind. 🇺🇲 #MemorialDay

Explore the future of pediatric Alpha-1 research with Dr. Teckman at the 2026 A1F National Conference #A1FNC26. His session, “Alpha-1 Pediatric Research – What’s New and What’s on the Horizon,” will share key insights and emerging developments. To attend virtually, register here: alpha1.org/national-conferen…

Clinical trials are essential to advancing Alpha-1 research, and today we recognize the patients who make that progress possible. Their participation helps drive new discoveries, improve treatments, and move us closer to a cure. Learn more about how clinical trials work and how you can get involved: alpha1.org/clinical-trials-1… #ClinicalTrialsDay

The annual A1F Grants Award Reception took place last night in Orlando, FL, during the American Thoracic Society International Conference, bringing together more than 200 attendees to celebrate the 22 in-cycle grants awarded by A1F, totaling $3.75 million. Congratulations to the 2026 grantees, whose work is advancing research and moving us closer to a cure. A1F is proud to recognize the entire Alpha-1 community for their ongoing dedication and contributions to progress in the field.

Support the Alpha-1 community through your workplace! Many employers offer giving programs, such as matching gifts, payroll deductions, and volunteer incentives, that can help maximize your impact in supporting research, education, and patient programs. See how you can make a difference through workplace giving: alpha1.org/workplace-giving/