Joined March 2014
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421 Photos and videos
May 31
The last day of ALS Awareness Month. Where things stand: nearly 600 research projects launched through Neuromine. 88 peer-reviewed publications to date. Champion Insights actively enrolling toward its 500-participant target. New projects launching every week on four continents.
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May 31
The last day of ALS Awareness Month. Where things stand: nearly 600 research projects launched through Neuromine. 88 peer-reviewed publications to date. Champion Insights actively enrolling toward its 500-participant target. New projects launching every week on four continents.
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May 31
The last day of ALS Awareness Month. Where things stand: nearly 600 research projects launched through Neuromine. 88 peer-reviewed publications to date. Champion Insights actively enrolling toward its 500-participant target. New projects launching every week on four continents.
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May 31
The last day of ALS Awareness Month. Where things stand: nearly 600 research projects launched through Neuromine. 88 peer-reviewed publications to date. Champion Insights actively enrolling toward its 500-participant target. New projects launching every week on four continents.
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May 31
The last day of ALS Awareness Month. Where things stand: nearly 600 research projects launched through Neuromine. 88 peer-reviewed publications to date. Champion Insights actively enrolling toward its 500-participant target. New projects launching every week on four continents.
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May 29
Answer ALS began with 1,100 participants who contributed blood samples, clinical information, and long-term follow-up data. Many did not live to see what their participation would build. What their contribution built: 250 terabytes of harmonized multi-omics data. Roughly 1,000
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May 29
patient-derived iPSC lines at Cedars-Sinai. Genomic, transcriptomic, proteomic, and epigenomic profiles used by researchers at 24 institutions and counting. Nearly 600 active research projects drawing on their samples. Their names are not public. Their contribution is in every
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May 29
paper published from the portal. answerals.org #ALSAwarenessMonth #ALSCommunity #ALSResearch #AnswerALS #EndALS #TogetherToAnswerALS
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May 27
Nearly 60 new research projects have started on Neuromine since January 2026. At this pace, Answer ALS resources will enable more than twice the research in 2026 as they did in all of 2025. The new projects include: AI-driven identification of ALS molecular subtypes, machine
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May 27
learning models for predicting ALSFRS-R decline, investigations of gene-environment interactions, RNA editing analyses, lysosomal dysfunction studies, cuproptosis pathway research, and drug repurposing pipelines. They come from academic labs, biotechs, and pharmaceutical
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May 27
companies across four continents. Explore Neuromine: dataportal.answerals.org #ALSAwarenessMonth #ALSResearch #Neuromine #OpenScience #AnswerALS #EndALS #ResearchProgress
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May 25
Today is Memorial Day. Military veterans develop ALS at approximately twice the rate of the general population. A 2017 meta-analysis across nine studies found a 29% increased ALS risk for those who served. The reasons remain unclear. Champion Insights, our remote-participation
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May 25
study, is investigating the genetic and metabolic factors behind this pattern. Matt Bellina, a former Navy Lt. Commander living with ALS, is among the initial cohort alongside Steve Gleason, Kerry Goode, Tim Green, Andrea Lytle Peet, and Eric Stevens. Today we remember the
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May 25
service members who gave their lives. Learn more about Champion Insights: ChampionInsights.org #MemorialDay #ALSAwarenessMonth #VeteransHealth #ChampionInsights #AnswerALS #EndALS
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May 24
Our Advisory Board Chair, Ed Rapp, recently marked 10 years living with ALS. In March, Ed delivered the opening address at the Packard Center's 26th Annual ALS Research Symposium in Baltimore. He spoke about striking a balance, a theme from his final presentation at Caterpillar a
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May 24
decade ago when he announced his retirement as Group President following his ALS diagnosis. Ten years later, Ed still chairs the Advisory Board at Answer ALS, advises Stay Strong Against ALS, and continues working in business and with family. Watch his original 2016 talk here:
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May 22
Today is a Day of Action for the ALS community. One minute: share a post about ALS with your network. Five minutes: call your representative at (202) 224-3121 and ask them to protect ALS research funding. Ten minutes: read about the early signs of ALS at
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May 22
answerals.org/understanding-… so you can recognize them. An hour: explore Neuromine and see which researchers are working on the question closest to your experience. ALS is still here. We’ll be here until it isn’t. answerals.org #ALSAwarenessMonth #DayOfAction #ALSisHere
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