A community for people affected by axial spondyloarthritis and ankylosing spondylitis. Learn, share, and connect with peers and healthcare professionals.
Joined April 2019
- Tweets 439
- Following 203
- Followers 1,383
- Likes 301
9 Photos and videos
Pinned Tweet
22 May 2023
🎉 Exciting News! 🙌 We‘re bringing together our communities under one roof. Starting May 25th, all AS and axSpA articles, stories, and more can be found at AxialSpondyloarthritis.net!
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3 Nov 2022
We're on TikTok now! Follow us @axialspodyloarthritis or click here tiktok.com/@axialspondyloart… #ankylosingspondylitis #spooniechat
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11 Oct 2022
What symptom other than pain and stiffness bother you the most?
#ankylosingspondylitis #axialspondyloarthritis #spoonies #spooniechat #ankylosingspondylitisawareness
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28 Sep 2022
"What helps you? What makes things worse? Do you notice any patterns in your life that cause you flare-ups..."
Respond to your fellow #spoonie here so they can see! -> bit.ly/3SoDz6E
#ankylosingspondylitis #spooniechat
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29 Aug 2022
We're excited to introduce the 2022 Social Health Awards winners! After getting nominated, endorsed, and going through the judging process, these winners are truly outstanding individuals. Check out the winners and read about their incredible impact: wegohealth.com/2022/08/15/wi…
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17 Aug 2022
What are some topics you are interested in reading about on AnkylsoingSpondylitis.net? #ankylosingspondylitis #chronicpain #SpoonieChat
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17 Aug 2022
Dawn gives us all an important reminder: "This will end. Do everything possible to be here when it does." ankylosingspondylitis.net/?p… #ankylosingspondylitis
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12 Aug 2022
Time for another Pop Quiz!
Let us know how you did in the comments!
ankylosingspondylitis.net/?p… #ankylosingspondylitis #axialspondyloarthritis
11 Aug 2022
Check out this video created using your responses to the prompt, "AS Does not define me, I am _________"
ankylosingspondylitis.net/vi…
#AnkylosingSpondylitis #AxialSpondyloarthritis
AxialSpondyloarthritis.net retweeted
10 Aug 2022
PS this @ankylosing_hu community is great!
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10 Aug 2022
Is anyone here living with AS in its advanced stages?
ankylosingspondylitis.net/st…
#ankylosingspondylitis
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8 Aug 2022
How would you rate your pain today from 1-10? 1=baseline pain, 10=worst pain every experienced #ankylosingspondylitis
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8 Aug 2022
Did you know we have forums on our community site? Check out some popular convos here: ankylosingspondylitis.net/fo…
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28 Jul 2022
"Oftentimes I tip the scales–I do too much in a day–but don’t realize until it’s too late." axialspondyloarthritis.net/?…
#ankylosingspondylitis #spooniechat #axialspondyloarthritis
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18 Jul 2022
What diets have been helpful in managing gut health? #ankylosingspondylitis #spoonielife #ankylosingspondylitisawareness
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15 Jul 2022
Managing gut health with AS is important.
Read more here: ankylosingspondylitis.net/sy…
#ankylosingspondylitis #spooniechat #ankylosingspondylitisawareness #axialspondyloarthritis
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13 Jul 2022
Pop Quiz! bit.ly/3z3qZ5J
How many did you get correct?
#spooniechat #ankylosingspondylitisawareness #AnkylosingSpondylitis
12 Jul 2022
Auldyn and Keegan vlogged about the nuances of getting through a family trip while in a painful flare-up here: ankylosingspondylitis.net/?p… #ankylosingspondylitis
11 Jul 2022
How do you manage your #fatigue?
Join the conversation here: bit.ly/3AKbEYO
#ankylosingspondylitis #spooniechat #ASwarrior
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7 Jul 2022
Does fatigue affect your daily life?
Check out Steff's video about her daily experience:
ankylosingspondylitis.net/vi… #fatigue #ankylosingspondylitis #spooniechat
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