Official account of the Biomedical Ethics Research Group, Murdoch Children's Research Institute. Views expressed are our own and do not represent those of MCRI.
Joined October 2018
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11 Photos and videos
3 Aug 2023
Check out our new paper where we analysed submissions sent to the Senate Committee that informed drafting of the Mitochondrial Donation Law Reform (Maeve’s Law) Bill 2021 @JemimaAllen_ @DanyaVears @MCRI_for_kids @UniMelbMDHS link.springer.com/article/10…
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20 Jul 2023
Check out the new position statement by the Human Genetic Society of Australasia on Genetic Carrier Testing for Recessive Conditions led by @DanyaVears with @biomedethics @Amcinerneyleo @jacobs_chrisj and Jackie Boyle doi.org/10.1017/thg.2023.15
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26 Jun 2023
New research analysing the first porcine cardiac xenotransplantation, with BERG’s Chris Gyngell, @konstantinov_ie, @juliansavulescu, Prof Megan Munsie, Prof Misao Fujita, and Dr. Carrie Thiessen.
jme.bmj.com/content/early/20…
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Biomedical Ethics Research Group retweeted
10 Jun 2023
Looking at some of the issues around overdiagnosis/misdiagnosis of ADHD through the lens of an ethicist. Great to work with @CPAGyngell and Jonathan Payne on this. Hope it stimulates conversation @UniMelbMDHS #ADHD sciencedirect.com/science/ar…
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Biomedical Ethics Research Group retweeted
13 Jun 2023
Huge thanks to the #ESHG2023 organisers for letting @CelineLewis23 and I on the decks at the conference party and to the attendees for bringing their best moves to the D-floor! We had the best time 😁
The #chromatones completely rocked the house at #eshg2023 congress party. #einekleinehousemusick #spcmembers @CelineLewis23 @DanyaVears
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31 May 2023
Rapid genomic testing poses many ethical challenges – we surveyed intensivists from around the world to see what they think. Read about their attitudes in our new paper out now! mdpi.com/2227-9067/10/6/970
@MDPIOpenAccess @MCRI_for_kids @UniMelb
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31 May 2023
Thanks to co-authors Sachini Poogoda @genetic_Fi @ZornitzaS @NeonatalEthics @juliansavulescu @DanyaVears & Chris Gyngell
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29 May 2023
New Position Statement issued by @HGSAAustralasia providing guidance on genetic carrier testing for recessive conditions in adults and children cambridge.org/core/journals/…
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28 May 2023
New paper out by @KatieArkell10 @DanyaVears @ZornitzaS and Chris Gyngell on ethical issues relating to use of rapid genomic sequencing in critically ill children mdpi.com/2227-9067/10/5/824 @MCRI_for_kids @UniMelb
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11 May 2023
📣 More data from our study exploring Australian public perspectives on #genomic data storage and sharing - OUT NOW in @ejhg_journal
Read it here: rdcu.be/dbNj2
@genetic_Fi @YanMeng27 @drstephbest @IliasGoranitis @juliansavulescu Chris Gyngell & @DanyaVears
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22 Mar 2023
Just out! Our postdoc @DanyaVears along with Isabelle Budin Ljosne and Nina Hallowell, led the development of a practical checklist for return of results from genomic research in the European context @UniMelb @MCRI_for_kids @CBMER_KULeuven
rdcu.be/c8bY9
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16 Feb 2023
Should we offer secondary findings from #genomics in children? What do parents want to know?
Read our latest blog post outlining some of our recent research on this!
16 Feb 2023
📚 “Offering secondary findings from genomic testing in paediatric settings” – part 3 of the #AQuestionofEthics blog is out now! 🧬
@DanyaVears @drdavidamor @drlildownie @BERG_MCRI @MelbGenomics
#genomics #blog #genomictesting #secondaryfindings
australiangenomics.org.au/of…
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15 Feb 2023
Featuring BERG fellow Chris Gyngell!
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9 Feb 2023
Data sharing is so important for #genomics - check out the next blog in our series on this topic!
In this piece, we explore the pros and cons of #bigdata sharing, and what the Australian public thinks about it!
9 Feb 2023
📚 Part 2 of #AQuestionofEthics #blog explores #bigdata in #genomics: to share or not to share? 🧬
@ZornitzaS @genetic_Fi Chris Gyngell @DanyaVears @MCRI_for_kids @MelbGenomics
australiangenomics.org.au/bi…
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3 Feb 2023
Read our latest blog post exploring the #ethics issues of #consent for #genomictesting
Courtesy of @AusGenomics by co-authors @genetic_Fi @DanyaVears @ZornitzaS and Chris Gyngell
3 Feb 2023
#AQuestionofEthics - new blog explores #ethical issues facing families when considering #genomictesting for their child. 🧬🧬
📚 Part 1/4 – Should parents be allowed to decline genomic testing for their children? Out now!
#genomics #blog #ethics #consent
australiangenomics.org.au/sh…
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24 Jan 2023
Interested in clinician perspectives on decision-making in paediatric home mechanical ventilation? Check out this paper by Juliette Jeffreys, Mayukh Rahman, @DanyaVears @BigjohnMassie onlinelibrary.wiley.com/doi/…
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4 Jan 2023
Should children with hearing loss undergoing exome sequencing also be offered secondary findings? Lauren Notini @DanyaVears @ClaraGaff and @juliansavulescu asked health professionals offering this testing what they thought @MCRI_for_kids @UniMelb
tandfonline.com/doi/full/10.…
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8 Dec 2022
What do the Australian public think about #genomic data storage and sharing?
Check out our recent paper answering this question from co-authors @genetic_Fi @YanMeng27 @drstephbest @IliasGoranitis @juliansavulescu Chris Gyngell &
@DanyaVears
8 Dec 2022
Data sharing is essential for #genomics - the Australian public are mostly supportive, but concerned about how the data might be misused.
Read more in our recent study: authors.elsevier.com/a/1gDCI…
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