We are Ambitious, Brave & Compassionate in providing care for our paediatric Cystic Fibrosis population in the West Midlands.
Joined June 2020
- Tweets 1,372
- Following 682
- Followers 518
- Likes 1,552
43 Photos and videos
ECFS 2025 third poster from our team. Parent views of parallel Nurse led clinics @Bham_Childrens @BWCCFNurses @ECFSConference
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ECFS 2025 second poster from our MDT team. Behavioural issues & management strategies in patients on ETI. @alisontennant1 @Bham_Childrens @BWCCFNurses @ECFSConference
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Come join our fab team in an exciting new role bwc.nhs.uk/working-here-bwc/…
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Good luck to all our young people collecting A level results today 🌟🌟
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Birmingham Childrens Cystic Fibrosis Unit retweeted
20 Jun 2024
The ECFS has published 4 papers, updating standards for the care of people with CF. Covering everything related to living with and caring for people CF they are a great source of information for all CF teams. More information on: ecfs.eu/ecfs-standards-care/…
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Birmingham Childrens Cystic Fibrosis Unit retweeted
20 Jun 2024
The lovely Elizabeth Green (aka Jade from @bbceastenders) will be wearing yellow tomorrow… will you? 💛
➡️ ow.ly/oiXy50SmExC
#WearYellowDay #CFWeek #cysticfibrosis #eastenders
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Amazing news announced today that modulators will continue to be available for all our eligible patients. #lifeunlimited
20 Jun 2024
Today, NICE have given approval for the life-changing #cysticfibrosis modulator drugs to be made available on the NHS in England. This follows many years of campaigning by Cystic Fibrosis Trust and people right across the CF community.
ow.ly/XGMs50SmgJR
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Birmingham Childrens Cystic Fibrosis Unit retweeted
28 May 2024
Martha’s Rule rolled out across 143 hospitals in England nursingtimes.net/news/hospit…
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Birmingham Childrens Cystic Fibrosis Unit retweeted
24 May 2024
Please share with anyone interested as we have a Full time band 6 Cystic Fibrosis Dietitian post out from today❣️jobs.nhs.uk/candidate/jobadv…
@bda_cf @BDA_Dietitians @BDA_EastEngland @PapworthAHPs
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Birmingham Childrens Cystic Fibrosis Unit retweeted
23 May 2024
“You don’t get a day off from cystic fibrosis, it’s always there.”
Charlotte, who features on the posters for our ‘No Day Off’ campaign, shares the reality of living with #cysticfibrosis as well as what she would do if she had a day off from CF.
➡️ ow.ly/CI8T50RNuOX
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Important information regarding Creon availability. At BWC we are working hard to ensure all our families continue to have access. More information for our families will be sent shortly.
16 May 2024
We have updated our website today to provide the latest information about Creon availability, and what to do if you are experiencing difficulties in accessing the medications. (1/3)
➡️ ow.ly/saKP50RI1zi
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Birmingham Childrens Cystic Fibrosis Unit retweeted
15 May 2024
We currently have 18 clinical trials on the Trials Tracker. These studies are looking for lots of people to take part, including children and people who are not taking CFTR modulators.
You can search all UK CF clinical trials on our website.
➡️ cysticfibrosis.org.uk/trials…
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NEWS: Designed to revolutionise respiratory care, the Cystic Fibrosis Team from @nhsswft and @nhsuhcw, in collaboration with @TheHydrantUK, have developed a pioneering device called HydroBubble. Read more: bit.ly/3yqXM6z
ALT Ivan Wright, a Cystic Fibrosis patient, pictured with the HydroBubble device with Mum Rebecca Bott (back row, second from left) and members of the cystic fibrosis service team.
ALT The HydroBubble device.
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Birmingham Childrens Cystic Fibrosis Unit retweeted
13 May 2024
Whooping cough (pertussis) cases are currently very high, & the disease can be life-threatening for newborn babies. If you're pregnant, it's important to take up the #Pertussisvaccine when offered. It helps protect your baby in their first weeks of life ukhsa.blog.gov.uk/2024/04/12…
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Birmingham Childrens Cystic Fibrosis Unit retweeted
14 May 2024
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Birmingham Childrens Cystic Fibrosis Unit retweeted
12 Apr 2024
We launched our Baby Box last year to support babies and toddlers aged up to 3 in hospitals and contribute to a feeling of normality. We've had some fantastic results!
👉🏻 Find out more about the impact of our Baby Box in our NEW impact report: starlight.org.uk/assets/docu…
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Birmingham Childrens Cystic Fibrosis Unit retweeted
17 Apr 2024
Please talk with your family about #organdonation
I am alive today thanks to my amazing #donor and #donorfamily
#shareYourWishes
Donatelife.net
Register ^^^ here
16 Apr 2024
This month make a point to talk to your family about organ donation. #DonateLifeMonth #DonorsAreSuperstars #DonateLife
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Birmingham Childrens Cystic Fibrosis Unit retweeted
18 Apr 2024
Your impact matters!
Every contribution, no matter how small, adds up to meaningful change in healthcare. Believe in the power of positivity and the difference you and your team can make. 💪
@RoyLilley @gbtpo
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