The @CF_Foundation Michigan-NW Ohio Chapter supports the search for a cure for #cysticfibrosis and works to add tomorrows for people with #cysticfibrosis
Joined April 2013
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CFF Michigan Chapter - Serving Michigan & NW Ohio retweeted
23 Jan 2020
“Tomorrow’s Leaders has been rewarding because I’m growing professionally and we’re making a difference in the lives of so many—including my own.” – Cody, an adult with #cysticfibrosis
Are you a young professional looking to expand your network and make a difference?
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Today is Teen Advocacy Day! More than 70 teen advocates from across the U.S. will be in Washington, D.C., to meet with members of Congress to discuss the critical need for comprehensive health care for people living with CF. #advocacy #cysticfibrosisfoundation #untilitsdone
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Support people with #cysticfibrosis in #Ohio by asking the senate to restore funding for the Over 21 #BCMH program: act.cff.org/fSESJIJ The senate votes soon on this important issue, so act now! #cfadvocacy
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As we wrap up walk season, we wanted to give a special thanks to our National Elite Sponsor, AbbVie! We'd also like to give a shout out to all of our other National Sponsors including Gilead, Genentech and Vertex, and our outstanding corporate supporter, American Airlines!
It's now easier than ever to get the help with insurance, financial, or legal issues! Contact the Compass team by phone or email at 844-COMPASS or compass@cff.org, or get connected by filling out the BRAND NEW online form by following this link: cff.org/Assistance-Services/…
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Join me & support people with #cysticfibrosis in #ohio! Ask the senate to restore funding for the Over 21 #BCMH program – this would restore coverage for visits to care centers & inpatient stays for adults w CF! #cfadvocacy act.cff.org/IVQVV4F
We'd like to give a big shout out to Team Hunter, Jennifer Krause, and St. Michael’s Lutheran School for a successful school fundraiser! Grades K-8 participated in a walk (some students even ran!) several weeks ago and were able to raise over $1,300 for the CF Foundation!
We'd like to give a special shout out to Lorenzo’s Lung Walkers and Martin Elementary School for a successful Penny Wars fundraiser! They raised over $2,100 for the Cystic Fibrosis Foundation! 🎉 Thank you so much for all your hard work and dedication! You guys are incredible!
CFF Michigan Chapter - Serving Michigan & NW Ohio retweeted
21 May 2019
“What a great pleasure and honor it has been for me to work alongside you to improve the lives of people with CF.” A special message from President and CEO Preston W. Campbell, MD.
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With the Michigan-NW Ohio's Great Strides season in full swing, we'd like to take a moment to recognize our Great Strides sponsors whose support makes us Stronger Together!
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CFF Michigan Chapter - Serving Michigan & NW Ohio retweeted
29 Apr 2019
We’ve made great strides in our search for a cure for #cysticfibrosis, but we can’t do it alone. That’s why we’re thankful for AbbVie, Genentech, Gilead, and Vertex, our 2019 @CF_GreatStrides sponsors. Together, we’re moving one step closer to a cure for CF. #GreatStrides
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Thank you @lpohutsky19 for taking time to meet with us today and discuss CSHCS and CF Advocacy! #cysticfibrosis #cfadvocacy #michigan
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CFF Michigan Chapter - Serving Michigan & NW Ohio retweeted
24 Apr 2019
Thank you Rep. Hank Vaupel for letting us share our story today! #CysticFibrosis #cfadvocacy #michigan
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3 Apr 2019
Meaningful meeting this morning with constituent @CF_Foundation advocates concerning BCMH funding and how it benefits local families.
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Thank you Rep @JamieCallender for taking time to chat with us about #CFAdvocacy #ohio #cyaticfibrosis
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From all of us here at the Michigan/Northwest Ohio Chapter, HAPPY VALENTINE’S DAY! We love each and every one of you, and so greatly appreciate all you do. Have a great day celebrating with those you love!
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Gather the kids, pop some popcorn & make some hot cocoa! Join us for a fun evening in your pajamas on Thurs, Jan. 24 from 7:15-8 pm for our 2019 virtual pajama kickoff party for Great Strides! We’ll be live on FB (also in pajamas!) answering all your GS questions & playing games!
Many people with CF will need to choose their 2019 health insurance plan in the coming weeks. Compass case managers can help with this complicated process!
CFF.org also has information to help with the decision-making process.
cff.org/Assistance-Services/…