@CS_Foundation1 profile picture
CS Foundation đź’› @CS_Foundation1

The Chondrosarcoma Foundation was created to improve the lives of people living with this rare bone cancer. In loving memory of Shayna E. Kramer.

Joined May 2020
  • Tweets 312
  • Following 32
  • Followers 75
36 Photos and videos
Pinned Tweet
CS Foundation đź’›@CS_Foundation1
6 Jan 2022
#CSWeCare csfshayna.org
1
2
Join Us in Taking A First Look at the Chondrosarcoma Patient Registry csfshayna.org/join-us-in-tak…

Join Us in Taking A First Look at the Chondrosarcoma Patient Registry - CS Foundation

This coming Monday, May 22, we are going to do our first analysis of responses to the survey and take a first look at identifying trends and cause-effect relationships. Your responses to the survey...

csfshayna.org
2
5
94
Chondrosarcoma Foundation’s Third Anniversary Shows Appreciation to It’s Donors, Supporters and Partners csfshayna.org/chondrosarcoma…

Chondrosarcoma Foundation's Third Anniversary Shows Appreciation to It's Donors, Supporters and...

During the past three years many CS Patients, caregivers, family members and friends have supported the Foundation through their donations and fund-raising activities. We received donations from...

csfshayna.org
46
Chondrosarcoma Foundation’s Third Anniversary Shows Appreciation to It’s Donors, Supporters and Partners csfshayna.org/chondrosarcoma…
41
Chondrosarcoma Foundation Enters Fourth Year, Marks Progress csfshayna.org/chondrosarcoma…

Chondrosarcoma Foundation Enters Fourth Year, Marks Progress - CS Foundation

BOWIE, Maryland, May 12—The Chondrosarcoma (CS) Foundation will commemorate its third anniversary by continuing to educate the public about this rare bone cancer, advocate for patients fighting the...

csfshayna.org
142
Update on Chondrosarcoma Patient Registry csfshayna.org/update-on-chon…

Update on Chondrosarcoma Patient Registry - CS Foundation

The Chondrosarcoma Foundation in partnership with NORD® launched the Chondrosarcoma Patient Registry on March 1, 2023. The Chondrosarcoma Patient Registry is a platform for patients around the world...

csfshayna.org
2
1
79
Biomarkers of chondrosarcoma csfshayna.org/biomarkers-of-…

Biomarkers of chondrosarcoma - CS Foundation

Journal of Clinical Pathology J Clin Pathol. 2018 Jul; 71(7): 579–583. Published online 2018 Mar 28. doi: 10.1136/jclinpath-2018-205071 PMCID: PMC6204964 PMID: 29593061 Biomarkers of chondrosarcoma...

csfshayna.org
1
52
Update on INBRX Clinical Trials from Inhibrx csfshayna.org/update-on-inbr…

Update on INBRX Clinical Trials from Inhibrx - CS Foundation

The INBRX 109 Clinical Trials will shortly resume recruiting patients for their Phase 2 Clinical Trial treating patients with Conventional Chondrosarcoma with recurrence or metastasis. Listed below...

csfshayna.org
38
Chondrosarcoma Patient Registry at one month csfshayna.org/chondrosarcoma…

Chondrosarcoma Patient Registry at one month - CS Foundation

The Chondrosarcoma Foundation in partnership with NORD® launched the Chondrosarcoma Patient Registry on March 1, a little over one month ago. The registry currently has 60 participants. We want to...

csfshayna.org
27
Chondrosarcoma Patient Registry is moving forward. csfshayna.org/chondrosarcoma…
27
Chondrosarcoma Resistance to Radiation Therapy: Origins and,Potential Therapeutic Solutions csfshayna.org/chondrosarcoma…

Chondrosarcoma Resistance to Radiation Therapy: Origins and,Potential Therapeutic Solutions - CS...

Antoine Gilbert 1, Mihaela Tudor 2,3, Juliette Montanari 1, Kevin Commenchail 1 , Diana Iulia Savu 2 ,Paul Lesueur 4,5,6 and François Chevalier 1,* Simple Summary: This review article aims in...

csfshayna.org
1
1
143
The First Twerk Walking Out Of The Hospital After Kicking Cancer’s Ass Has To Be The Sweetest csfshayna.org/the-first-twer…

The First Twerk Walking Out Of The Hospital After Kicking Cancer's Ass Has To Be The Sweetest - CS...

Some of you may not know who Amber Sarcone is. In Philly, she’s a part of the royal family. Her family runs Sarcone’s Bakery, makers of some of the most delicious damn bread you’ll ever have the...

csfshayna.org
1
43
Revolutionary new bone cancer drug identified csfshayna.org/revolutionary-…

Revolutionary new bone cancer drug identified - CS Foundation

A research team led by Dr Darrell Green, a trustee of the Bone Cancer Research Trust, have identified a new drug that works against all main forms of bone cancer. Researchers at the University of...

csfshayna.org
3
3
184
Recruitment Efforts Underway for the Chondrosarcoma Patient Registry csfshayna.org/recruitment-ef…

Recruitment Efforts Underway for the Chondrosarcoma Patient Registry - CS Foundation

The Chondrosarcoma Foundation in partnership with the National Organization for Rare Disorders (NORD®) has launched the Chondrosarcoma Patient Registry. The patient registry creates a platform for...

csfshayna.org
28
Recruitment Efforts Underway for the Chondrosarcoma Patient Registry csfshayna.org/recruitment-ef…
2
1
84
Join us on Tuesday Night to Address Care to Treat Chondrosarcoma csfshayna.org/join-us-on-tue…

Join us on Tuesday Night to Address Care to Treat Chondrosarcoma - CS Foundation

The Chondrosarcoma Foundation is developing a Patient / Family/ Caregiver Advisory Board in the effort to create a voice for chondrosarcoma patient’s and caretakers to address concerns and advocate...

csfshayna.org
1
45
New Patient Registry Creates A Platform to Share Patient Journeys with Chondrosarcoma csfshayna.org/new-patient-re…

New Patient Registry Creates A Platform to Share Patient Journeys with Chondrosarcoma - CS Founda...

The Chondrosarcoma Foundation in partnership with the National Organization for Rare Disorders (NORD®) has launched the Chondrosarcoma Patient Registry. Chondrosarcoma is a rare bone cancer that...

csfshayna.org
23
New Patient Registry Creates A Platform to Share Patient Journeys with Chondrosarcoma csfshayna.org/new-patient-re…
16
Rare Disease Day 2023: Empowering Community Advocacy And Innovation csfshayna.org/rare-disease-d…

Rare Disease Day 2023: Empowering Community Advocacy And Innovation - CS Foundation

The time has come to make rare diseases a national public health imperative For decades, the rare disease community has been striving for greater recognition and scientific breakthroughs addressing...

csfshayna.org
1
1
130
Join the CS Foundation Patient / Caregiver / Family Advisory Board csfshayna.org/join-the-cs-fo…

Join the CS Foundation Patient / Caregiver / Family Advisory Board - CS Foundation

The Chondrosarcoma Foundation is developing a Patient / Caregiver / Family Advisory Board in the effort to create a voice for the chondrosarcoma community to address concerns and advocate for...

csfshayna.org
19
In Three Days: February 6: Chondrosarcoma Awareness Day csfshayna.org/in-three-days-…

In Three Days: February 6: Chondrosarcoma Awareness Day - CS Foundation

Join the Fight Wear A Yellow Ribbon on Monday, February 6. Post Your Picture to #CSWECARE Sign Our Petition for more Clinical Trials: www.csfshayna.org/support-cs-research/

csfshayna.org
1
1
166
Load more