@CSI_KCL research on the needs of CYP with life-limiting conditions (C-POS); family experiences of newborn screening (ReSPoND); & CYP facing bereavement (SCYP)
Joined September 2018
- Tweets 600
- Following 1,570
- Followers 808
- Likes 573
108 Photos and videos
Pinned Tweet
28 Aug 2024
We are excited to share our final C-POS study newsletter. Please get in touch for more information on the project, or to request a PDF copy of the newsletter #pedpc @DrLucyCoombes @DEBraybrook @HannahM_Scott20 @childhealthqld @StarshipFDN @CSI_KCL @EAPCvzw @PalliativeMedJ
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CYP Research in Palliative Care retweeted
24 Oct 2024
Hoping to see lots of you there in person @TheAPPMuk @hospiceuk @RCPCHtweets @doctor_oxford #ppc @Tog4ShortLives ether
30 Sep 2024
š£š£ UPCOMING EVENT - Palliative care for children and young people
Wednesday 6th November 2024, 13:00-16:30
Online and in-person @CSI_KCL
FREE to attend, register here: buytickets.at/facultyofnursiā¦
Fantastic programme š
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CYP Research in Palliative Care retweeted
10 Sep 2024
New paper - please stop asking professionals about barriers to #pedpc we need to make changes and evaluate to improve ā¦@CSI_KCLā© ā¦@RHardingCSIā© ā¦@CYP_CSIā© ā¦@TrueColoursTrusā© ā¦@Tog4ShortLivesā© ā¦@TheAPPMukā© journals.sagepub.com/doi/10.ā¦
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CYP Research in Palliative Care retweeted
2 Oct 2024
Such a pleasure to share the stage with ā¦@doctor_oxfordā© this evening (my twitter hero!)- we must work together to improve care for children with palliative care needs and their families ā¦ā¦@CSI_KCLā© ā¦#pedpc ā¦@Tog4ShortLivesā©
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28 Aug 2024
Childrenās Palliative Care Outcome Scale (C-POS) Videos Launched: ehospice.com/inter_childrensā¦
#pedpc @ehospicenews @ICPCN @CSI_KCL @KingsNursing @DaniellaLogun @TheAPPMuk
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CYP Research in Palliative Care retweeted
C-POS:UK is the first tool developed to improve health outcomes for children with palliative care needs in the UK. What are the benefits for healthcare professionals? @HannahM_Scott20 conducted research as part of her PhD & this is what she found: buff.ly/4dVNY4f
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CYP Research in Palliative Care retweeted
21 Aug 2024
An important step in #PCOM development is #cognitive testing to establish comprehensibility, comprehensiveness, relevance & acceptability. @DrLucyCoombes led a cognitive interview study to test and refine the initial versions of C-POS #pedpc. Full article: doi.org/10.1177/026921632412ā¦
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CYP Research in Palliative Care retweeted
19 Aug 2024
Excited to share these two short videos (for families & #pedpc professionals), about the potential benefits of C-POS (@CYP_CSI @CSI_KCL), developed based on findings & recommendations from my #PhD with #PPI
Professionals: youtube.com/watch?v=wNeOWqFkā¦
Families: youtube.com/watch?v=0UMJdSAzā¦
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14 Aug 2024
C-POS:UK - for health and social care professionals supporting children and young people with life-limiting and life-threatening conditions and their families:
youtu.be/wNeOWqFkz-Q?featureā¦
@KingsNursing @CSI_KCL @ARC_S_L @HorizonEU @ERC_Research @Tog4ShortLives @TheAPPMuk #pedpc
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14 Aug 2024
C-POS:UK - for families of children and young people with life-limiting and life-threatening conditions: youtu.be/0UMJdSAzz9U?featureā¦
@KingsNursing @CSI_KCL @ARC_S_L @HorizonEU @ERC_Research @fabian_trust @DaniellaLogun @Tog4ShortLives @TheAPPMuk #pedpc
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CYP Research in Palliative Care retweeted
7 Aug 2024
What are the benefits, risks, barriers & facilitators to implementing PCOMs into paediatric palliative care #pedpc? @HannahM_Scott20 led a qualitative interview study to find out.
š°Full article: doi.org/10.1177/026921632412ā¦
šPodcast: traffic.libsyn.com/secure/saā¦ / podcasts.apple.com/gb/podcasā¦
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CYP Research in Palliative Care retweeted
23 Jul 2024
How do #children & #YoungPeople use #language to describe their own #LifeLimiting/#LifeThreatening condition #pedpc? @CSI_Linguist undertook a secondary #DiscourseAnalysis to find out. Full article: doi.org/10.1177/026921632412ā¦
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CYP Research in Palliative Care retweeted
26 Jul 2024
Delighted to participate in the final @CYP_CSI C-POS project meeting. Robust. Scientifically complex in leadership. 76 UK sites, over 500 participants, CYP, Parents, HSCPs & commissioners. 20yrs of waiting @fabian_trust @DrLucyCoombes @HannahM_Scott20 @RHardingCSI @DEBraybrook
26 Jul 2024
The C-POS study held their final steering group meeting. We're really grateful to the sites that have supported recruitment & especially grateful to our #PPI members (@DaniellaLogun @fabian_trust). We're in our final week of recruiting families to our study before analysis begins
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26 Jul 2024
The C-POS study held their final steering group meeting. We're really grateful to the sites that have supported recruitment & especially grateful to our #PPI members (@DaniellaLogun @fabian_trust). We're in our final week of recruiting families to our study before analysis begins
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26 Jul 2024
Podcasts for @PalliativeMedJ: journals.sagepub.com/page/pmā¦
Podcast 119 with @HannahM_Scott20: What are the anticipated benefits, risks, barriers & facilitators to implementing PCOMs into routine care for children and young people with life-limiting and life-threatening conditions?
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26 Jul 2024
Podcasts for @PalliativeMedJ: journals.sagepub.com/page/pmā¦
Podcast 109 with @HannahM_Scott20: Spiritual, religious, and existential concerns of children and young people with life-limiting and life-threatening conditions: A qualitative interview study
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