@ChloeSApter profile picture
Chloe Apter (she/her) @ChloeSApter

Autistic ADHDer, mental/physical illness, iatrogenic harm, co-production, MSc Psychology & Learning Disability student. Views own, personal account.

Joined February 2012
  • Tweets 4,845
  • Following 254
  • Followers 2,471
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Chloe Apter (she/her)@ChloeSApter
Apr 24
How do autistic adults make sense of being assigned the "challenging behaviour" label? *RECRUITING PARTICIPANTS* I am autistic & I have been assigned the "challenging behaviour" label Supervisor: @drstevenkapp Email Chloe.Apter@myport.ac.uk to express interest/for more info
I'm Chloe, a master's student at the University of Portsmouth. I am autistic and I have been assigned the "challenging behaviour" label. Eligibility: - Autistic (formally diagnosed or self-identified) - Age 18 - UK-based - You have been assigned the "challenging behaviour" label by staff/clinicians/professionals in an education, health, and/or care context Participation* involves one of either: - An online interview** - An in-person interview in London, UK*** All participants will be offered the interview questions in advance This research has been given ethical approval If you are interested in taking part or want more information, please email Chloe.Apter@myport.ac.uk Supervisor: Dr Steven Kapp *Please note, there is unfortunately no financial remuneration for participation due to this research being for a master's degree **Having your camera on or off is acceptable, as is using the chat function or participating via email ***In a mutually agreed public place in London, UK

ALT I'm Chloe, a master's student at the University of Portsmouth. I am autistic and I have been assigned the "challenging behaviour" label. Eligibility: - Autistic (formally diagnosed or self-identified) - Age 18 - UK-based - You have been assigned the "challenging behaviour" label by staff/clinicians/professionals in an education, health, and/or care context Participation* involves one of either: - An online interview** - An in-person interview in London, UK*** All participants will be offered the interview questions in advance This research has been given ethical approval If you are interested in taking part or want more information, please email Chloe.Apter@myport.ac.uk Supervisor: Dr Steven Kapp *Please note, there is unfortunately no financial remuneration for participation due to this research being for a master's degree **Having your camera on or off is acceptable, as is using the chat function or participating via email ***In a mutually agreed public place in London, UK

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I used to work supporting autistic adults given the "challenging behaviour" label. Then, I was diagnosed as autistic & given the "challenging behaviour" label myself. Are you a UK autistic adult who has received this or a similar label? Chloe.Apter@myport.ac.uk @drstevenkapp
I'm Chloe, a master's student at the University of Portsmouth. I am autistic and I have been assigned the "challenging behaviour" label. Eligibility: - Autistic (formally diagnosed or self-identified) - Age 18 - UK-based - You have been assigned the "challenging behaviour" label by staff/clinicians/professionals in an education, health, and/or care context Participation* involves one of either: - An online interview** - An in-person interview in London, UK*** All participants will be offered the interview questions in advance This research has been given ethical approval If you are interested in taking part or want more information, please email Chloe.Apter@myport.ac.uk Supervisor: Dr Steven Kapp *Please note, there is unfortunately no financial remuneration for participation due to this research being for a master's degree **Having your camera on or off is acceptable, as is using the chat function or participating via email ***In a mutually agreed public place in London, UK

ALT I'm Chloe, a master's student at the University of Portsmouth. I am autistic and I have been assigned the "challenging behaviour" label. Eligibility: - Autistic (formally diagnosed or self-identified) - Age 18 - UK-based - You have been assigned the "challenging behaviour" label by staff/clinicians/professionals in an education, health, and/or care context Participation* involves one of either: - An online interview** - An in-person interview in London, UK*** All participants will be offered the interview questions in advance This research has been given ethical approval If you are interested in taking part or want more information, please email Chloe.Apter@myport.ac.uk Supervisor: Dr Steven Kapp *Please note, there is unfortunately no financial remuneration for participation due to this research being for a master's degree **Having your camera on or off is acceptable, as is using the chat function or participating via email ***In a mutually agreed public place in London, UK
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Are you a UK-based autistic adult who, like me, has been described as having "challenging behaviour", "behaviour that challenges", "problem behaviour", or "behaviours of concern"? 📧 Please email Chloe.Apter@myport.ac.uk to participate in my research. Supervisor: @drstevenkapp
I'm Chloe, a master's student at the University of Portsmouth. I am autistic and I have been assigned the "challenging behaviour" label. Eligibility: - Autistic (formally diagnosed or self-identified) - Age 18 - UK-based - You have been assigned the "challenging behaviour" label by staff/clinicians/professionals in an education, health, and/or care context Participation* involves one of either: - An online interview** - An in-person interview in London, UK*** All participants will be offered the interview questions in advance This research has been given ethical approval If you are interested in taking part or want more information, please email Chloe.Apter@myport.ac.uk Supervisor: Dr Steven Kapp *Please note, there is unfortunately no financial remuneration for participation due to this research being for a master's degree **Having your camera on or off is acceptable, as is using the chat function or participating via email ***In a mutually agreed public place in London, UK

ALT I'm Chloe, a master's student at the University of Portsmouth. I am autistic and I have been assigned the "challenging behaviour" label. Eligibility: - Autistic (formally diagnosed or self-identified) - Age 18 - UK-based - You have been assigned the "challenging behaviour" label by staff/clinicians/professionals in an education, health, and/or care context Participation* involves one of either: - An online interview** - An in-person interview in London, UK*** All participants will be offered the interview questions in advance This research has been given ethical approval If you are interested in taking part or want more information, please email Chloe.Apter@myport.ac.uk Supervisor: Dr Steven Kapp *Please note, there is unfortunately no financial remuneration for participation due to this research being for a master's degree **Having your camera on or off is acceptable, as is using the chat function or participating via email ***In a mutually agreed public place in London, UK

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Are you autistic? Have you been described as having "challenging behaviour", "behaviour that challenges", "problem behaviour", or "behaviours of concern"? I would love to hear about your experiences for my MSc research. 📧 Chloe.Apter@myport.ac.uk Supervisor: @drstevenkapp
I'm Chloe, a master's student at the University of Portsmouth. I am autistic and I have been assigned the "challenging behaviour" label. Eligibility: - Autistic (formally diagnosed or self-identified) - Age 18 - UK-based - You have been assigned the "challenging behaviour" label by staff/clinicians/professionals in an education, health, and/or care context Participation* involves one of either: - An online interview** - An in-person interview in London, UK*** All participants will be offered the interview questions in advance This research has been given ethical approval If you are interested in taking part or want more information, please email Chloe.Apter@myport.ac.uk Supervisor: Dr Steven Kapp *Please note, there is unfortunately no financial remuneration for participation due to this research being for a master's degree **Having your camera on or off is acceptable, as is using the chat function or participating via email ***In a mutually agreed public place in London, UK

ALT I'm Chloe, a master's student at the University of Portsmouth. I am autistic and I have been assigned the "challenging behaviour" label. Eligibility: - Autistic (formally diagnosed or self-identified) - Age 18 - UK-based - You have been assigned the "challenging behaviour" label by staff/clinicians/professionals in an education, health, and/or care context Participation* involves one of either: - An online interview** - An in-person interview in London, UK*** All participants will be offered the interview questions in advance This research has been given ethical approval If you are interested in taking part or want more information, please email Chloe.Apter@myport.ac.uk Supervisor: Dr Steven Kapp *Please note, there is unfortunately no financial remuneration for participation due to this research being for a master's degree **Having your camera on or off is acceptable, as is using the chat function or participating via email ***In a mutually agreed public place in London, UK

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Chloe Apter (she/her) retweeted
Lucy Easthope@LucyGoBag
Jun 1
Until we stop struggling with the idea that some health setting cultures are rotten and some practitioners do not practice with compassion and dignity, we will never improve them
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Chloe Apter (she/her) retweeted
Ian Birrell@ianbirrell
May 25
So many broken promises and missed targets - so 15 years after the ‘watershed’ of Winterbourne View, autistic people & citizens with learning disabilities still suffer state-sanctioned abuse. My @theipaper column on a scandal dragging on in plain sight inews.co.uk/opinion/autistic…

Autistic people are enduring state-sanctioned torture in the UK. Yet we do nothing

Beneath the surface of each scandal is the medically and morally indefensible system

inews.co.uk
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It's a sad indictment of NHS mental health services that whilst I was in crisis, my (wonderful!) counselling psychologist had no choice but to discharge me from eating disorder therapy for ARFID "as a strategic move" to get me urgent support from crisis services.
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Chloe Apter (she/her) retweeted
Dr Jay Watts@Shrink_at_Large
May 1
Are you Autistic and have you been given the ‘challenging behaviour’ label? If yes, and you have the spoons, please consider participating in our wonderful Chloe’s study. #ActuallyAutistic
Chloe Apter (she/her)@ChloeSApter
Apr 24
How do autistic adults make sense of being assigned the "challenging behaviour" label? *RECRUITING PARTICIPANTS* I am autistic & I have been assigned the "challenging behaviour" label Supervisor: @drstevenkapp Email Chloe.Apter@myport.ac.uk to express interest/for more info
I'm Chloe, a master's student at the University of Portsmouth. I am autistic and I have been assigned the "challenging behaviour" label. Eligibility: - Autistic (formally diagnosed or self-identified) - Age 18 - UK-based - You have been assigned the "challenging behaviour" label by staff/clinicians/professionals in an education, health, and/or care context Participation* involves one of either: - An online interview** - An in-person interview in London, UK*** All participants will be offered the interview questions in advance This research has been given ethical approval If you are interested in taking part or want more information, please email Chloe.Apter@myport.ac.uk Supervisor: Dr Steven Kapp *Please note, there is unfortunately no financial remuneration for participation due to this research being for a master's degree **Having your camera on or off is acceptable, as is using the chat function or participating via email ***In a mutually agreed public place in London, UK

ALT I'm Chloe, a master's student at the University of Portsmouth. I am autistic and I have been assigned the "challenging behaviour" label. Eligibility: - Autistic (formally diagnosed or self-identified) - Age 18 - UK-based - You have been assigned the "challenging behaviour" label by staff/clinicians/professionals in an education, health, and/or care context Participation* involves one of either: - An online interview** - An in-person interview in London, UK*** All participants will be offered the interview questions in advance This research has been given ethical approval If you are interested in taking part or want more information, please email Chloe.Apter@myport.ac.uk Supervisor: Dr Steven Kapp *Please note, there is unfortunately no financial remuneration for participation due to this research being for a master's degree **Having your camera on or off is acceptable, as is using the chat function or participating via email ***In a mutually agreed public place in London, UK

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Chloe Apter (she/her) retweeted
Stop Oxevision@StopOxevision
Apr 29
A NHS Trust was ordered to pay compensation to a patient over use of Oxevision (LIO) - what does this mean for other Trusts? What does the guidance from NHSE and CQC say? Plus, read our letter to NHS England asking them to take action stopoxevision.com/2026/04/29…

Trust ordered to pay compensation to patient over use of Oxevision - Stop Oxevision

An NHS Trust has had to pay out to a patient after she complained to the Ombudsman about the use of Oxevision during her time as an inpatient. This is not unique - all Trusts are at risk of having to...

stopoxevision.com
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I am still looking to speak to more UK-based autistic adults who have been assigned the "challenging behaviour" label (like I have). Participation in my research can be over email, video call/chat (camera on or off), or in a public place in London. Supervisor: @drstevenkapp
I'm Chloe, a master's student at the University of Portsmouth. I am autistic and I have been assigned the "challenging behaviour" label. Eligibility: - Autistic (formally diagnosed or self-identified) - Age 18 - UK-based - You have been assigned the "challenging behaviour" label by staff/clinicians/professionals in an education, health, and/or care context Participation* involves one of either: - An online interview** - An in-person interview in London, UK*** All participants will be offered the interview questions in advance This research has been given ethical approval If you are interested in taking part or want more information, please email Chloe.Apter@myport.ac.uk Supervisor: Dr Steven Kapp *Please note, there is unfortunately no financial remuneration for participation due to this research being for a master's degree **Having your camera on or off is acceptable, as is using the chat function or participating via email ***In a mutually agreed public place in London, UK

ALT I'm Chloe, a master's student at the University of Portsmouth. I am autistic and I have been assigned the "challenging behaviour" label. Eligibility: - Autistic (formally diagnosed or self-identified) - Age 18 - UK-based - You have been assigned the "challenging behaviour" label by staff/clinicians/professionals in an education, health, and/or care context Participation* involves one of either: - An online interview** - An in-person interview in London, UK*** All participants will be offered the interview questions in advance This research has been given ethical approval If you are interested in taking part or want more information, please email Chloe.Apter@myport.ac.uk Supervisor: Dr Steven Kapp *Please note, there is unfortunately no financial remuneration for participation due to this research being for a master's degree **Having your camera on or off is acceptable, as is using the chat function or participating via email ***In a mutually agreed public place in London, UK

Chloe Apter (she/her)@ChloeSApter
20 Aug 2024
They say: "You have challenging behaviour". I say: "I am a multiply neurodivergent, traumatised person - who has faced immense iatrogenic harm - experiencing overwhelming distress & sensory overload in a highly activating, triggering environment. I am doing my best to cope".
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Chloe Apter (she/her) retweeted
Chloe Apter (she/her)@ChloeSApter
23 Aug 2024
As a trauma survivor, I am always sceptical of someone when they deem something to be a "safe space". It's paternalistic - who decides what constitutes a "safe space"? Professionals. How can everyone feel safe in the same conditions? I believe in more nuanced "safer spaces".
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Chloe Apter (she/her) retweeted
Chloe Apter (she/her)@ChloeSApter
23 Aug 2024
TW: suicide attempt, self-harm Once, I was in A&E after a suicide attempt. A man (who was there for a suicide attempt too) hugged me without consent whilst I was hurting myself. I screamed & began to cry & shake. Healthcare professionals chastised me for being "mean" to him.
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Chloe Apter (she/her) retweeted
Chloe Apter (she/her)@ChloeSApter
24 Aug 2024
As an autistic ADHDer, I often prefer phone calls to written communication. This is because: a) I'm painfully impatient. b) Written communication involves waiting for a response. I cannot cope with the uncertainty about what the response will be. Communication is nuanced.
Autism-101@Autism1o1
22 Aug 2024
Some autistic people find making phone calls extremely stressful and unpleasant and will avoid them at all costs. Please don’t try and force your communication preferences on others. image: anon
Two illustrated characters are having a conversation. The first character is trying to get the second one to phone someone and the second character doesn’t want to. Person One: CALL THEM Person Two: I SENT THEM AN EMAIL Person One: IT’S BETTER TO CALL THEM Person Two: I ALSO TEXTED THEM Person One: JUST CALL THEM! Person Two: I’LL SEND THEM ANOTHER EMAIL!

ALT Two illustrated characters are having a conversation. The first character is trying to get the second one to phone someone and the second character doesn’t want to. Person One: CALL THEM Person Two: I SENT THEM AN EMAIL Person One: IT’S BETTER TO CALL THEM Person Two: I ALSO TEXTED THEM Person One: JUST CALL THEM! Person Two: I’LL SEND THEM ANOTHER EMAIL!

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Chloe Apter (she/her) retweeted
Chloe Apter (she/her)@ChloeSApter
24 Aug 2024
TW: restraint, physical assault What DID NOT make it into my healthcare record: being physically assaulted & restrained in A&E. What DID make it into my healthcare record: when there was an empty Nando's bag in my flat during a Mental Health Act assessment. Laugh or cry.
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Chloe Apter (she/her) retweeted
Chloe Apter (she/her)@ChloeSApter
27 Aug 2024
Once, upon discharge from a psychiatric crisis assessment unit, I was reprimanded for my "non-engagement". My crime - I was told - was politely saying "no thanks" each time an overzealous support worker asked me if I wanted to do some colouring in with her or play a boardgame.
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Chloe Apter (she/her) retweeted
Chloe Apter (she/her)@ChloeSApter
18 Sep 2024
I've written articles on my experiences of mental illness & iatrogenic harm. Despite these articles being in the public realm, I hugely appreciate people reaching out for consent to use my writing for training purposes. This consent means more to me than they probably know.
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Chloe Apter (she/her) retweeted
Chloe Apter (she/her)@ChloeSApter
21 Sep 2024
TW: abuse 🧵Some thoughts on dissociative identity disorder not being perceived as "relatable", "palatable", or "the right" response to complex trauma: 1/20
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Chloe Apter (she/her) retweeted
Chloe Apter (she/her)@ChloeSApter
30 Sep 2024
Fellow late-diagnosed autistics... Let's remember that a childhood autism diagnosis does not necessarily mean someone received good, neuroaffirmative support. Listen to those who say their childhood diagnosis facilitated mistreatment, diagnostic overshadowing, discrimination.
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Chloe Apter (she/her) retweeted
Chloe Apter (she/her)@ChloeSApter
6 Oct 2024
All autistic people have the right to self-define how they experience being autistic. For me, autism is a different - not lesser - way of being. I do not describe it as a condition or a disorder, but as an "often disabling difference". This is how I interpret my autisticness.
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Chloe Apter (she/her) retweeted
Chloe Apter (she/her)@ChloeSApter
12 Oct 2024
Short🧵on a psychiatric hospital admission where I acquired the label of "challenging behaviour", experienced highly restrictive practice, & and had an unsafe discharge.
Chloe Apter (she/her)@ChloeSApter
12 Oct 2024
🧵2 years ago today, I arrived at a psychiatric hospital: detained under the Mental Health Act. The hospital was new, with double beds & TVs in bedrooms. But I acquired the label of "challenging behaviour" & was subjected to a cruel regime of extensive restrictive practice. 1/8
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Chloe Apter (she/her) retweeted
Chloe Apter (she/her)@ChloeSApter
8 Nov 2024
Reason 64783 why the Mental State Examination (MSE) is problematic: Today, a GP wrote in my appointment notes that I was "appropriately dressed". I was wearing pyjamas.
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