Joined June 2009
- Tweets 819
- Following 50
- Followers 1,881
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436 Photos and videos
Jun 2
📷 New Chiari research update! A recent study compared the anatomical structures of Chiari 0 and Chiari 1.
PDF version: conquerchiari.org/library/in…
#Chiari #ChiariResearch #ConquerChiari #Syringomyelia
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Jun 1
🔬 New Chiari research update! A recent study explored how age may influence symptoms and experiences in children with Chiari, highlighting important differences between younger and older patients.
PDF version: conquerchiari.org/library/in…
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May 28
New Chiari research update! A large study comparing surgical techniques found important differences in syrinx reduction and revision surgery rates.
PDF version: conquerchiari.org/library/in…
#Chiari #ChiariResearch #ConquerChiari
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Apr 30
Eye-Related Symptoms
PDF Version: conquerchiari.org/library/in…
#chiariresearch #conquerchiari #chiarimalformation #chiariawareness #ccwaa26
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Apr 29
Advanced Imaging Reveals Damage To Cerebellar Connections #ConquerChiari #ChiariResearch #CerebellarTonsils
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Apr 10
📷Conquer Chiari
Overview of Chiari Research
Chiari malformation is often misunderstood and underdiagnosed. This video aims to educate, support, and raise awareness for those affected and their families.
youtu.be/6KTjpKRcNYc
#conquerchiari #chiariawareness #chiarimalformation
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Feb 27
Research Update | February 2026
Exploring Racial/Ethnic Differences in the Chiari Experience
PDF version: conquerchiari.org/library/in…
#chiariresearch #AllOfUs #conquerchiari #chiarimalformation #chiaristrong
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Feb 25
Research Update | February 2026
Surgical Outcomes Data From Over 500 Pediatric Patients
PDF version: conquerchiari.org/library/in…
#chiarimalformation #conquerchiari #chiariresearch #pediatricchiari #SurgicalOutcomes #chiariawareness
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Feb 17
🎥Impact of Chiari – Cognitive Impact
Chiari malformation is often misunderstood and underdiagnosed. This video aims to educate, support, and raise awareness for those affected and their families.
youtu.be/_DZB2-HWx4U
#conquerchiari #chiariawareness #chiarimalformation
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Feb 13
🎥Impact of Chiari – Physical Disability
Chiari malformation is often misunderstood and underdiagnosed. This video aims to educate, support, and raise awareness for those affected and their families.
youtu.be/XXDvc2YkISU
#conquerchiari #chiariawareness #chiarimalformation
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Feb 12
📷Impact of Chiari – Module 1: Pain
Chiari malformation is often misunderstood and underdiagnosed. This video aims to educate, support, and raise awareness for those affected and their families.
youtu.be/ksZ36tXuf1s?si=jg1E…
#conquerchiari #chiariawareness #education #research
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Jan 30
Research Update | Jan 2026
Report on 510 Pediatric Surgical Patients Provides Valuable Data for Parents
PDF version: conquerchiari.org/library/in…
#conquerchiari #pediatricchiari #ChiariMalformationAwareness #chiariawareness #chiariresearch
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Jan 27
Research Update | Jan 2026
Largest Chiari Pregnancy Study To Date With Over 2000 Patients
PDF version: conquerchiari.org/library/in…
#chiari #ChiariMalformationAwareness #chiariresearch #chiaripregnancy #conquerchiari
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Jan 8
📢 Compartimos nuestro video en español: ¿Qué es Chiari?
Parte de un nuevo proyecto 2026 con más recursos y videos en español para nuestra comunidad.
¡Pronto más novedades!
¿Qué otro idioma te gustarÃa ver? #cerebelo #cerebro #malformacióndechiari
youtu.be/qNTID7Y3evo?si=8QKj…
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18 Dec 2025
December 2025 Research Update: A meta-analysis of 380 pediatric Chiari patients found decompression surgery improved scoliosis in 48% and stabilized it in 9%. Outcomes varied by age and curve severity.
PDF version: conquerchiari.org/library/in…
#chiariresearch #scoliosis #neurosurgery
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16 Dec 2025
December 2025 Research Update: Tonsillar Manipulation During Surgery. Review of recent large-scale studies comparing Chiari decompression techniques using standardized outcome and complication data. Read more: conquerchiari.org/library/in…
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12 Dec 2025
Conquer Chiari is proud to reach a major milestone — 100 peer-reviewed research papers.
Read the abstract of our 100th publication here: pubmed.ncbi.nlm.nih.gov/4137…
Thank you to our researchers, supporters, and the Chiari community for helping advance progress.
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20 Nov 2025
Virtual Reality Effective at Treating Chronic Pain
PDF Version: conquerchiari.org/library/in…
#chiaricommunity #chiariresearch #chiarimalformation #chronicpain #conquerchiari
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19 Nov 2025
Hearing Loss and Chiari
PDF version; conquerchiari.org/library/in…
#chiarimalformation #chiariresearch #chiaricommunity #hearingloss #conquerchiari
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17 Nov 2025
Chiari Academy: Finding a Doctor
Not sure where to start when choosing the right doctor for your Chiari diagnosis? This video breaks down what to look for and how to feel confident in your care.
youtu.be/nXOHWFqsKyY?si=192i…
#chiarimalformation #chiariacademy #conquerchiari
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