The Sickle Cell Disease Coalition is an international alliance aiming to improve outcomes for individuals living with #sicklecell. Together, we can #ConquerSCD!
Joined August 2017
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22 Mar 2024
Want a sneak peek of the #SCD Stakeholder Database?: bit.ly/3VgN9g4
Make sure you fill out the survey for your organization to be included: bit.ly/4au6iAw
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The SCDC is grateful to all the partners and members who joined the SCD Unified Action Forum. SCDC member Andres Vasconez Samaniego, MD, FAAP, shared a powerful reflection on his experience—highlighting collaboration, listening, and unified action across the SCD community.
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The SCDC is looking for ideas for future Peer Learning Exchanges. These sessions strengthen organizations! Swipe through past topics and imagine what you could share. Have an idea for a session? Email coordinator@scdcoalition.org.
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Flash Friday shares what's new, needed, and next in the sickle cell community. SCDC members, send your items to coordinator@scdcoalition.org by May 25. #SickleCell #SCDC #FlashFriday
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Today is Clinical Trials Day—honoring patients, investigators, and teams advancing care. ASH supports every trial stage, from design to training.
Discover resources and fuel your next breakthrough here: ow.ly/q8yT50Z2rbR
#ClinicalTrialsDay #Hematology #ClinicalResearch
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Help us amplify what’s happening across the sickle cell community. The SCDC Update lands in inboxes on the last Friday of the month! We’re looking for news, events, opportunities, and tools to share with our network.
Send submissions by May 22 to coordinator@scdcoalition.org
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Stigma grows silently for those with SCD. This Mental Health Awareness Month, join SCDAA P.O.W.E.R. ECHO on May 28 to explore mental health in SCD care. Register: ow.ly/pLJU50Z1Sew #MentalHealthAwarenessMonth #SickleCell #SCD #MentalHealth
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This #NationalNursesWeek, SCDC celebrates #ThePowerOfNurses in sickle cell disease.
On May 20, join the IASCNAPA “Advancing Nursing Excellence in SCD” Congress to deepen knowledge in global wellness, holistic care & shared wisdom. Register: ow.ly/HlWh50YYt5t
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Join HHS Office of Minority Health for Part 1 of a two-part roundtable on key elements, challenges, and best practices in comprehensive SCD care (including nutrition).
📅 May 14 | 2–3:30 PM ET
🔗 Register here: ow.ly/cfNC50YVb31
#SCD #HHS
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“Save the date!” We’d love to… but first, we need the dates. We’re building the SCDC spring and summer calendar. Got events, advocacy actions, webinars, or deadlines for the sickle cell community? Email coordinator@scdcoalition.org so we can spread the word.
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April is Medicaid Awareness Month. Medicaid is a lifeline for many people with sickle cell disease, but gaps and barriers remain.
Urge your members of Congress to cosponsor the Sickle Cell Disease Comprehensive Care Act: ow.ly/x1Tt50YN8WH
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Flash Friday is coming up, and we want to feature your work! Our members-only SCDC newsletter drops the first Friday of each month—share your news, events, and resources by April 24 to be included.
Send submissions to coordinator@scdcoalition.org
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Registration is still open for the ASH SCD Away Elective Rotation! This 1-month experience gives heme/onc fellows hands-on training in caring for people living with sickle cell disease.
Apply by May 1, 2026: ow.ly/4am750YN7IS
#SickleCellDisease #MedEd #HemeOnc #ASH
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Can AI be trusted for sickle cell disease education? 🤖🩸
Join our Peer Learning Exchange on April 21, 2026 at 10:00 a.m. ET to explore SickleCellPedia as a real-world AI case study.
Register: ow.ly/BZV550YLnMA
#SickleCellDisease #AIinHealthcare #SCDCPartner
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We’re already in month four, which means you know what’s coming: the SCDC Update hits inboxes the last Friday of the month. Got news, events, opportunities, or resources for the sickle cell community? Send your submissions by April 20.
Email: coordinator@scdcoalition.org
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Thank you for joining the SCD Unified Action Forum! 🎉 Please complete our post-event survey to help improve future events: ow.ly/9zIL50YJ6Fh #SCDUnifiedActionForum #SCD
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We’re a week away from the SC3 Leadership Summit and SCD Unified Action Forum in Atlanta — and we’re coming from Washington, DC! ✈️
We’re excited to join such a diverse group of stakeholders to advance unified action for people living with SCD.
Where are you traveling from? ⬇️
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Flash Friday submissions are open! ⚡️
Looking for new items to feature in our members-only April Flash Friday newsletter.
Have news, events, resources, or opportunities to share? Send them in by April 1 (no April Fools joke 😉).
Submit to: coordinator@scdcoalition.org
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Planning an event for the sickle cell community? Let’s amplify it. 🔊
Hosting a workshop, webinar, summit, training, or community gathering? We can feature it on the SCDC events calendar to help you reach more stakeholders.
Send event details to: coordinator@scdcoalition.org
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Now accepting submissions for the March SCDC Update!
Have news, events, opportunities, or resources the sickle cell community should know about? Share them so we can amplify your work in our next newsletter.
Send your items or questions to coordinator@scdcoalition.org.
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We're excited to start the SCDC Research & Innovation Subcommittee tomorrow, March 18, shaping a new series on sickle cell disease research and its experts.
Join us! Apply here: ow.ly/IPtl50Ys1H4
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