Cure CMD’s mission is to advance research toward treatments for congenital muscular dystrophies and empower those living with CMD.
Joined November 2011
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Register for our virtual Ask the Expert series!
SELENON: Apr 25 11am ET
bit.ly/ExpertSELENON
COL6: Apr 25 12pm ET
bit.ly/ExpertCOL6
aDG: May 2 1pm ET
bit.ly/ExpertaDG
LAMA2: May 9 11am ET
bit.ly/ExpertLAMA2
LMNA: May 9 12pm ET
bit.ly/ExpertLMNA
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📢 An update on Dr. Carsten Bönnemann’s transition to St. Jude Children’s Research Hospital & the continued leadership of CMD research at the National Institutes of Health under Dr. Reghan Foley. 🧬
🔗 Learn more: curecmd.org/post/bonnemann-t…
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LAST CHANCE! If you are attending Rare Disease Week on Capitol Hill representing the CMD community, we want to help support you. Fill out our 2026 Travel Support Application by Friday, February 6th. form.jotform.com/26010743144…
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Do you plan to attend Rare Disease Week on Capitol Hill? We want to support you in representing the CMD community! Fill out our 2026 RDW Travel Support Application by Friday, February 6th. form.jotform.com/26010743144…
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LAST CHANCE TO ORDER! Our See's Candies Valentine's fundraiser closes 1/30, shop now for your purchase to support our cause!
🍫 curecmd.org/sees-candy
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We’re thrilled to join accessiBe’s nonprofit partner community, reinforcing our commitment to accessibility for all. Their accessWidget tool is now active on curecmd.org.. We’re proud to stand with 600 nonprofits promoting digital inclusion. 🌐
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Order by January 30th to get your sweet treats in time for V-Day! 🧡💙 Support our See's Candies fundraiser, every purchase gives back!
🍫 curecmd.org/sees-candy
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Attending Rare Disease Week on Capitol Hill? We want to support you in representing the CMD community! Fill out our 2026 RDW Travel Support Application by Friday, February 6th. form.jotform.com/26010743144…
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You can get sweet Valentine's treats & support our cause courtesy of See's Candies! Shop our sweet treats shop today & every purchase gives back!
🍫 curecmd.org/sees-candy
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The time is NOW to help support NIH funding. Send your Members of Congress a letter to support this critical medical research funding. mda.org/supportNIH
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Our Valentine's See's Candies Fundraiser is live! Every item you purchase contributes to our cause. Thanks for your support!
🍫 curecmd.org/sees-candy
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It's a crucial period for NIH funding negotiations with bipartisan appropriators debating the final details of a package soon to be unveiled. Send your Members of Congress a note supporting NIH funding. mda.org/supportNIH
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Applications are now open for @MDAorg's 2026 Summer Camp. mda.org/press-releases/appli…
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Community member, Erika, shares her journey living with CMD in her latest book, It's Normal to be Different: Rolling Through Life With Muscular Dystrophy. musculardystrophyuk.org/abou…
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Rare Disease Week on Capitol Hill 2026 Registration is Now Open!
This event brings together rare disease advocates from across the country to make their voices heard with their Members of Congress.
📆 February 24 - 26, 2026📍Washington, D.C.
REGISTER: everylifefoundation.org/rare…
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Don’t forget about our $100,000 match opportunity!
Get those donations in before end of year to DOUBLE your impact: curecmd.org/2025
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Our Season of Giving is well underway. You can truly make a difference for CMD. Help fuel research & hope for our community.
Don't Miss Our $100,000 Match Opportunity: curecmd.org/2025
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Collaboration between researchers and CMD families is what drives progress.
Researcher, Veronica Pini & CMD Dad, David Dildine explain their perspectives.
Support progress in CMD science: curecmd.org/2025
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In this last video of our Season of Giving spotlight series, Dr. Pamela Barraza-Flores shares how a chance connection led to a game-changing collaboration, bringing new technology into CMD research.
Support science: curecmd.org/2025
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