Joined March 2021
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π¨We need your help!
PLEASE share our message. β»οΈ
More details below...
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Clinically Vulnerable Families πππ retweeted
πMeningitis vaccines will be offered to y13s this summer.
We welcome this news, but we question the lack of vaccines for current university students and young people.
Halls are not the only transmission risk - as proven by the nightclub outbreak.
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Clinically Vulnerable Families πππ retweeted
Jun 12
Meningitis Now welcomes the announcement by the @UKHSA of a new #vaccination programme for 18-year-olds and young adults as a major step forward in the fight to help protect people from the disease.
Read our full statement regarding the news here: π bit.ly/4ecT4L2
ALT Breaking news graphic: A group of individuals hold signs reading "No Plan B for Men B. Join the fight. Get the vaccine." in front of the UK Parliament building. They appear to be advocating for a vaccine programme for young people, as announced by UKHSA.
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Clinically Vulnerable Families πππ retweeted
Weβve campaigned for over a decade to close the UKβs MenB protection gap. Today the UK government has announced a one-off, targeted programme in England π
Read why we think progress mustn't stop there π meningitis.org/news-and-blogβ¦
#Meningitis #MenB
ALT Vinny Smith, Meningitis Research Foundation Chief Executive, speaking at an event and emphasising why progress on meningitis protection must continue, holding papers and a microphone.
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Clinically Vulnerable Families πππ retweeted
While this is great news, but for those currently at university the risk remains.
Jun 11
π¨ NEW: The Government has announced all Year 13 pupils starting university this September will be offered the MenB vaccine
The first dose will be given from July and the second in August
Under-25s starting university for the first time will also be eligible
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Clinically Vulnerable Families πππ retweeted
Jun 11
The PCR positivity map is out and it's another poor week for reporting, with data delays owing to the late May Bank Holiday mentioned on DASH.
Adjusted national positivity is 2.89%.
jamestindall.info/skeuomorphβ¦
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A&E patients with non-urgent ailments may be told to come back later under @NHSEngland plans: NHS bosses urge all @NHSProviders hospitals in England to use βdigital triageβ process to combat overcrowding in emergency services via @denis_campbell
theguardian.com/society/2026β¦
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A nice article from Long Covid physio recognising that lived experience can fundamentally change the direction of research and make it more relevant.
New article released today by our team. We highlight how the lived experience can and should be part of all stages of research and never just tokenism.
Patients are the expert in their condition and there is always more to hear and learn from them.
link.springer.com/article/10β¦
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Clinically Vulnerable Families πππ retweeted
Jun 9
This was a headscratcher. How do you...
Highlight an issue that isn't well understood
Draw attention to the clean air campaign
Represent this positively
Have a message that makes people curious
In the context of a street art festival?
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This is quite a familiar list of Clinically Vulnerable people to pneumonia who should be offered vaccination, with a couple of less obvious additions.
People with:
π Cochlear implants
π Cerebrospinal fluid leaks
Jun 10
The pneumococcal vaccine helps strengthen your protection against these illnesses and is available to people with diabetes for free via the NHS. Speak to GP if you have missed yours.
π nhs.uk/vaccinations/pneumocoβ¦
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Measles is highly contagious and airborne.
πVaccines save lives.
π¨Improving air quality in schools could save lives too. Installing effective air filtration would help reduce the spread of airborne diseases, including measles.
@bphillipsonMP
Jun 11
Two children die from measles as England data shows 100 new infections theguardian.com/society/2026β¦
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This is an important reminder!
πNot just to elderly people (as pictured) but to people with conditions making them severely immunosuppressed or immunocompromised.
β³οΈYou have less that 3 wks to book your vaccine.
Anyone in the #WestMidlands who's not sure if they're eligible for the #COVID19 vaccine this #spring - check our blog bit.ly/CovidSpringBooster202β¦
Final appointments will be on 30 June - with the last day to book on the #NHS national booking system on 29 June bit.ly/COVID19VaxBookings
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Clinically Vulnerable Families πππ retweeted
π¨NEW: Our 2026 Voting Accessibility Audit looked at whether the Electoral Commission's new guidance for Clinically Vulnerable voters was actually being implemented at polling stations.
The headline finding?
It helped people vote more safely! β¬οΈ
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Children in shielding households also became a new - and widely unrecognised - group of carers.
When people think of adult social care and the pandemic, care homes often come to mind.
But the majority of care in the UK takes place in people's own homes - delivered by care workers and by millions of unpaid carers.
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For immunosuppressed / immunocompromised families like Ryan's the risk and impacts didn't end when Boris Johnson claimed the end to "restrictions" was "a moment of pride".
1/ βIβm worn out already and Iβm 26 and thatβs the lasting impact of the pandemicβ
Ryanβs story featured in the Inquiry's Module 6 Impact Film, shown on the first day of Module 6 public hearings in June 2025.
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Awareness was another challenge.
7 respondents said they learned about the changes too late to benefit, or not at all.
Most people who knew about the new provisions had learned through CVF rather than official communications.
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Perhaps the most encouraging finding is that the guidance worked.
People returned to in-person voting.
The challenge now is making sure the protections described in the guidance are consistently communicated, understood and implemented.
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The Electoral Commission's revised guidance was a genuine step forward and we welcome it.
Our report sets out what worked, where implementation fell short, and how we believe accessibility could be improved further.
Read the full report here:
clinicallyvulnerable.org/posβ¦
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Staff masking was the weakest area.
The guidance says masks should be available for staff on a "See a mask, wear a mask" basis.
Yet most respondents reported staff did not put on a mask when assisting them.
π£οΈ "No one put on a mask when I entered masked."
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Ventilation also remained broadly positive.
π« 80% of polling stations had at least one external door open.
π 83% who monitored COβ readings recorded measurements below 800ppm.
Clean air is an important part of accessibility.
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ALT CO2 readings inside polling stations (ppm) 2024 (n=14 measured) 2026 (n=18 measured) Polling stations <700 suitable (2024: 9, 2026: 13) 700-800 limit (2024: 3, 2026: 2) 801-1000 (2024: 2, 2026: 2) 1000 poor (2024: 0, 2026: 1) Figure 4. CO2 readings inside polling stations. Most readings were within the suitable (<800 ppm) range in both years.
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But implementation was inconsistent.
Of 32 in-person ID checks involving masked voters:
π³ 11 were outdoors
π 8 people removed their masks indoors
Most voters were not proactively offered the outdoor option.
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