Our mission is to advance research for improved dystonia treatments and a cure, promote awareness, and support the well being of affected individuals.
Joined December 2008
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1,268 Photos and videos
Toledo Dystonia Zoo Day is Aug. 15!
Join the DMRF for a day of community, connection and purpose as we raise awareness and funds for dystonia research.
Whether you're living with dystonia, supporting a loved one or want to make a difference, register NOW!
bit.ly/48oRVMH
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Jules van Dongen has completed his Pedals & Points bike ride and raised >$14k benefiting the DMRF!
Our thanks to Jules, his wife, Lisa, and his family whose support helped make this journey possible. Thank you for turning miles into hope.
bit.ly/4om5hBV
#dystonia
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It's the LAST DAY to support Jules van Dongen and his Pedals & Points fundraiser for the DMRF!
Your donation supports research, awareness and the dystonia community.
Help get us to the finish line and close strong.
Donate now: bit.ly/4nX76ov
#dystonia #dmrf
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Stay in the know about what is happening with research, advocacy, education and other resources in the #dystonia community with the DMRF monthly e-newsletter.
The June e-news is now available: conta.cc/3Qb0AOy
#dmrf
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Renew your DMRF membership by June 15 and get a free gift, the summer edition of the Dystonia Dialogue, 15% off DMRF merchandise and access to research updates.
Annual Membership is $40 and supports the programs of the DMRF.
Renew NOW: bit.ly/48ZrYmL
#dystonia #dmrf
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Join us TONIGHT for a webinar with the Dystonia Coalition and the efforts on dystonia research and patient advocacy collaboration.
Speakers:
• Hyder A. “Buz” Jinnah, MD, PhD
• Joel S. Perlmutter, MD
June 8, 2026
6 PM CT / 7 PM ET
Register Now: bit.ly/4un052U
#dystonia
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The DMRF invites you to a webinar focused on the Dystonia Coalition and its mission to advance research through collaboration.
Hear from recognized leaders in dystonia research.
Monday, June 8, 2026
6:00pm CT | 7:00pm ET
Register here:
bit.ly/4un052U
#dystonia #dmrf
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Don’t miss this upcoming DMRF webinar exploring the work of the Dystonia Coalition and the future of dystonia research.
Featuring:
Hyder A. “Buz” Jinnah, MD, PhD
Joel S. Perlmutter, MD
Monday, June 8, 2026
6:00pm CT | 7:00pm ET
Register: bit.ly/4un052U
#dystonia #dmrf
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The DMRF invites you to a webinar focused on the Dystonia Coalition and its mission to advance research through collaboration.
Hear from recognized leaders in dystonia research.
Monday, June 8, 2026
6:00pm CT | 7:00pm ET
Register here:
bit.ly/4un052U
#dystonia #dmrf
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Alexandra Thele, MD, University Hospitals Cleveland, received a DMRF Clinical Fellowship. Mentored by Aasef Shaikh, MD, PhD., Dr. Thele will begin her fellowship in July 2026, spend year 1 in clinical training with year 2 focusing on clinical research.
bit.ly/49ggpKb
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Dakota Peacock, MD, Stanford U, received a DMRF Clinical Fellowship. Under the mentorship of Jennifer O’Malley, MD, PhD., he will begin his fellowship at Stanford in July 2026 spending year 1 receiving clinical training with year 2 on clinical research.
bit.ly/49ggpKb
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The Pedals & Points tour rolls on June 9 into Richmond, VA — 2 days before the fundraiser ends June 11!
Join Jules van Dongen as the campaign races to raise funds for dystonia research.
Follow the tour, and help us finish strong.
Donate Now: bit.ly/4nX76ov
#dystonia
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Your support advances dystonia research: We appreciate our members’ ongoing support which enables the DMRF to fund grants and fellowships for dystonia research. Renew your DMRF membership by June 15 and receive a free gift.
bit.ly/48ZrYmL
#dystonia #dmrf
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Don’t miss this upcoming DMRF webinar exploring the work of the Dystonia Coalition and the future of dystonia research.
Featuring:
Hyder A. “Buz” Jinnah, MD, PhD
Joel S. Perlmutter, MD
Monday, June 8, 2026
6:00pm CT | 7:00pm ET
Register: bit.ly/4un052U
#dystonia #dmrf
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June is National Migraine & Headache Awareness Month: Headaches are frequently reported symptoms in people with cervical dystonia (CD). The DMRF has resources available for people with CD and other types of dystonia.
bit.ly/3SWwwDY
#dystonia #dmrf #dystoniafoundation
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Viviana Hernández Castañón, PhD, Virginia Tech U, received a Postdoctoral Fellowship for “Predictive Modeling of Dystonic Biomarkers Using Minimally Invasive EEG Recordings.” She seeks to find early brain markers that might detect dystonia sooner.
bit.ly/4nJmFQG
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Pedals & Points ends June 11!
After being diagnosed with task-specific dystonia, Jules van Dongen channeled his experience into raising awareness and funding for the DMRF.
Let’s end strong and fuel critical dystonia research.
Donate here: bit.ly/4nX76ov
#dystonia #dmrf
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Dystonia is a neurological disorder that affects the physical body. See our brochure for individuals and caretakers to address the non-motor symptoms of dystonia, which may include psychiatric and cognitive issues, decreased sleep, and pain.
bit.ly/3TkZrls
#dystonia
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Join the DMRF and the Dystonia Coalition for a special webinar:
🔹Hyder A. “Buz” Jinnah, MD, PhD
🔹Joel S. Perlmutter, MD
They’ll discuss the the Coalition’s work and the impact of collaborative research.
June 8, 2026
6p CT/7p ET
Register:
bit.ly/4un052U
#dystonia #dmrf
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