Supporting people who have Down's syndrome to live full and rewarding lives.

Joined June 2009
8,174 Photos and videos
Researchers from the University of Manchester are looking for adults who have Down’s syndrome between the ages of 18 and 50 to take part in a study about testing people’s hearing using a test called Auditory Steady State Response or ASSR. Please click here to find out more/find out how to take part: downs-syndrome.org.uk/news/n… *Please note that the DSA supports the aims of this study but any text describing/advertising the study is provided by the research team.
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The World Cup 2026 starts today! Will you be tuning in?⚽ Let us know in the comments what country you're supporting! Remember, if you're getting involved in any World Cup celebrations, we would love some 'selfie' type video clips - they only need to be short, snappy recordings. Please film in portrait (if possible) on your phones and then send to comms@downs-syndrome.org.uk #FifaWorldCup2026
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Sensory processing Awareness Webinar Friday 3 July 2026 | 1-2pm | Free This 60-minute online webinar for parents and practitioners will provide information on sensory processing in children who have Down’s syndrome. If you'd like to attend, click here: downs-syndrome.org.uk/our-wo…
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The Community Transport Association is researching the transport barriers faced by disabled children and young people, and parents and carers play a vital role in this. This survey is for: - Parents and carers of disabled children and young people aged up 25 - Young people aged 16-25 with a lived experience of disability. Funded by Motability Foundation, this survey is gathering real experiences to help shape more inclusive and accessible transport solutions for families. Share your views and be part of the change: accessiblesurveys.com/v2/1qc… The deadline for responses is 30 June. #CommunityTransport #Accessibility #HaveYourSay #ParentCarers
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'How is menstruation experienced by adolescents with Down syndrome in the UK?' To read about the findings from this research study, click here: downs-syndrome.org.uk/our-wo… *Please note that the DSA supports the aims of this study but any text describing/advertising the study is provided by the research team.
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Down’s Syndrome Association Helpline We can talk to you at any stage of your pregnancy. We are available for calls every weekday from 10 am - 4pm or you can contact us by sending an email to info@downs-syndrome.org.uk. Your call or enquiry will remain confidential. We can answer your questions and guide you to relevant accurate information. Tel 0333 1212 300.
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Did you know that thyroid issues are common in children and adults who have Down’s syndrome? Our thyroid resource tells you about symptoms, testing and treatment. Link here: downs-syndrome.org.uk/wp-con…
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World Cup 2026 call-out for content! ⚽ As the World Cup is soon approaching, we would love for you to send us your football/World Cup related content. We would love some 'selfie' type video clips if possible - they only need to be short, snappy recordings. Please film in portrait (if possible) on your phones and then please send to our email: comms@downs-syndrome.org.uk Examples before the tournament could include: •Good luck messages, favourite player, why you love football, what team you support and who would be in your dream team if you could build one? Before England’s first game on the 17 June: •What's your score prediction, who will score first, which player are you most excited to watch? Other questions could include player ratings after each game, your team performance thoughts, manager questions, showing us your football skills and anything else you can think of! We look forward to hearing from you and hope lots of you get involved! 🏆 #WorldCup #FifaWorldCup26
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Sensory processing Awareness Friday 3 July 2026 | 1-2pm | Free This 60-minute online webinar for parents and practitioners will provide information on sensory processing in children who have Down’s syndrome. To join us, please sign up here: downs-syndrome.org.uk/our-wo…
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'Do You See Me?' - Experts by experience talking to you about the DSA Listen Include Respect Project. Friday 19 June 2026 | 2.15-3.15pm | FREE Join our Inclusion Team and experts by experience for a one hour talk regarding the 2026 Learning Disability week theme 'Do You See Me.' We shall explore this year's theme while sharing personal anecdotes and practical advice for professionals. We will also talk about our DSA 'Listen Include Respect' (LIR) project. The talk highlights how inclusion is a continuous journey and examines key sections of the LIR international guidelines. There will be space for an open conversation about how these topics relate to people who have Down’s syndrome. We hope that people who have Down’s syndrome, family members and professionals will join us for this interactive event. Please register here: downs-syndrome.org.uk/our-wo…
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A team from the University of York, in collaboration with the University of Manchester and Down Syndrome Education International, are undertaking a trial of a new app designed to encourage babies who have Down’s syndrome to make more vocal sounds. *Please note that the DSA supports the aims of this study but any text describing/advertising the study is provided by the research team. Please follow the steps on the poster, if you'd like to be involved. Or click here for more information: downs-syndrome.org.uk/news/n…
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DSEngage Live | Weekly Workout 💪 Get your week off to a great start with a fun and enjoyable live workout. The live workouts can be easily adapted depending on your fitness level and will be fun for everyone. Next Session: Monday 1 June 2026. Time: 4 – 4.45pm. What you will need: •Comfy clothing and trainers/bare feet •Enough space to safely turn around and swing your arms as you dance and move •A glass/bottle of water. *Please take part at your own pace and stop at any time if you feel unwell. Participants take part in the activity at their own risk. Under 16’s must be supervised. Sign up here: downs-syndrome.org.uk/our-wo…
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'Down’s syndrome with complex needs parent/family carer regional support meeting' : Make sure to put this date in your diaries if you'd like to attend! It is soon approaching... In-person event – Central London. Monday 8 June 2026 | 10am – 3pm | FREE. We are pleased to be facilitating an in-person complex needs support meeting in Central London. By complex needs we usually mean that a person has an additional diagnosis such as, but not exclusively, autism. It will be an opportunity for parents to come together, meet each other, share experience and take part in facilitated discussions. The meeting will start at 10 am and finish at 3pm and lunch and refreshments will be provided. This event is for parents (or family carers) only and there is no care provision available. If you would like to know exact location before booking, please contact us. Or you can sign up here: downs-syndrome.org.uk/our-wo…
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Do you fit the criteria for this research study? If so, and you/your child would like to take part, please follow the steps on the poster. Thank you for your support.
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Eyecare Webinar for Adults Who Have Down’s syndrome - with Professor Margaret Woodhouse. 👁️ Wednesday 10 June 2026 | 12 noon to 12:45 pm | FREE This is an online webinar on Zoom for adults who have Down’s syndrome. The webinar will start with Maggie talking about how you can look after your eyes and then she will answer any questions you have. You are welcome to have a supporter with you during the webinar. If you'd like to attend, please sign up by clicking the link: downs-syndrome.org.uk/our-wo…
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Down's Syndrome Association retweeted
Have you listened to our latest #GPsTalkCancer podcast episode? @HallettJulian from @DSAInfo, outlines how primary care can tackle potential barriers to cancer screening programmes to improve uptake for people with learning disabilities. Listen now📲 pod.fo/e/413436
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Online Support Group for Families of People who have Down’s syndrome Aged 40 . Thursday 28 May 2026 | 10.30-11.30am | FREE This new support group is for parents and siblings who support a person age 40 and over. The group will involve facilitated discussions on relevant issues with occasional guest speakers. Please sign up here: downs-syndrome.org.uk/our-wo…
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Down's Syndrome Association retweeted
"...making something that might otherwise not be accessible, accessible."🎙️ Our latest episode of our #GPsTalkCancer podcast centres on cancer and learning disability, delving into change, consent and access to care with @HallettJulian from @DSAInfo. 🎧pod.fo/e/413436
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Our document explains the role of the speech and language therapist for primary school aged children who have Down’s syndrome. Please give it a read here: downs-syndrome.org.uk/wp-con…
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