Research Fellow @MedicineUoN & PhD student @magnifysrc@sheffielduni🎓 & @ActionPFcharity💜 alumni • Passionate about lived experience • Living with CF🫁

Joined January 2014
56 Photos and videos
Pinned Tweet
A proud moment 🥹 Thank you to everyone that contributed to the development of the toolkit 🙌🏻 #CysticFibrosis #MRI
🚨Our CF MRI toolkit - now live! 🫁🧰 Co-developed with people with CF, carers, healthcare professionals & researchers, it contains various resources to support communication of lung MRI results in CF: xerte.nottingham.ac.uk/play_…. Please share! #MRI #CysticFibrosis
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Thank you so much for the incredible support for my research 🫶🏻 Excited for the launch of the toolkit! #CysticFibrosis #MRI
We’ve now collected the data we needed from the research interviews to finalise our toolkit to help support the communication of lung MRI scan results! A huge thank you for all the support and interest - the toolkit will be live very soon! #MRI #CysticFibrosis
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🎙️ Living & Breathing It Ep 8 🎙️ @leicsparta’s lived experience story is out now👇🏻 Spotify: open.spotify.com/episode/2YF… Apple: podcasts.apple.com/gb/podcas… Trigger warning: Please note that there are references to mental illness throughout the episode. #LivedExperience #Podcast
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Grateful for any further help in sharing details of the this current phase of my PhD please🙏🏻 #CysticFibrosis #MRI
Do you have CF? Or care for those that do? Please take part in our research interviews to help support communication of scan results: forms.office.com/e/LhwrsFVfM… No time for an interview? Please give us feedback on our poster instead: forms.office.com/e/yC6ksnyP2… #MRI #CysticFibrosis
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Dan Beever retweeted
We've launched a blog! Read the first edition of 'In Focus' on our website here: magnifysrc.carrd.co/#infocus #MRI #CysticFibrosis
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🎙️Living & Breathing It Ep 6 & 7🎙️ @karen_packwood’s lived experience journey is out now👇🏻 Spotify: open.spotify.com/show/1rqpDA… Apple: podcasts.apple.com/gb/podcas… Trigger warning: Please note there are references to war & its impact throughout both episodes.#LivedExperience #Podcast
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24 Oct 2025
Grateful for any help in sharing details of the next phase of my PhD please🙏🏻 Looking forward to sharing the resources we’ve developed! #CysticFibrosis #MRI
Are you interested in taking part in research into lung MRI in cystic fibrosis? Please take part in our research interviews to help support communication of scan results: forms.office.com/e/LhwrsFVfM… #MRI #CysticFibrosis
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Grateful for the opportunity to present at #UKCFC about the cystic fibrosis lung MRI toolkit we’ve been developing. We're keen to get views from the wider community on what we've produced so far - please tell us what you think here: forms.office.com/e/yC6ksnyP2… #CysticFibrosis #MRI
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Dan Beever retweeted
We're excited that all of our PhD students will be presenting their research at UKCFC - if you're interested in finding out more about what they've been up to then there's still time to sign up!👇 tickets.cysticfibrosis.org.u… #UKCFC #MRI #CysticFibrosis #CFTrust
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17 Jul 2025
The second part of my chat with Vicky Lang is out now!👇🏻 Spotify: open.spotify.com/episode/62f… Apple: podcasts.apple.com/gb/podcas… Trigger warning: Please note that there are references to abuse throughout the episode. #LivedExperience #Podcast
26 Jun 2025
🎙️Living & Breathing It Episode 3🎙️ Part 1 of Vicky Lang’s lived experience journey is out now👇🏻 Spotify: open.spotify.com/episode/2KH… Apple: podcasts.apple.com/gb/podcas… Trigger warning: Please note that there are references to abuse throughout the episode. #LivedExperience #Podcast
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🚨Out now!🚨 Grateful to Bethinn for reflecting on the European Cystic Fibrosis Society conference (ECFS) with me, with both of us living with & researching CF. Spotify: open.spotify.com/episode/5IX… Apple: podcasts.apple.com/gb/podcas… #ECFS25 #CysticFibrosis #LivedExperience #Podcast
27 Jun 2025
🎙️Living & Breathing It Episode 4 out Tuesday!🎙️ A special episode drops on Tuesday as I reflect on ECFS ‘25 with Bethinn Evans - available below👇🏻 Spotify: open.spotify.com/show/1rqpDA… Apple: podcasts.apple.com/gb/podcas… #ECFS25 #CysticFibrosis #LivedExperience #Podcast
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27 Jun 2025
🎙️Living & Breathing It Episode 4 out Tuesday!🎙️ A special episode drops on Tuesday as I reflect on ECFS ‘25 with Bethinn Evans - available below👇🏻 Spotify: open.spotify.com/show/1rqpDA… Apple: podcasts.apple.com/gb/podcas… #ECFS25 #CysticFibrosis #LivedExperience #Podcast
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26 Jun 2025
🎙️Living & Breathing It Episode 3🎙️ Part 1 of Vicky Lang’s lived experience journey is out now👇🏻 Spotify: open.spotify.com/episode/2KH… Apple: podcasts.apple.com/gb/podcas… Trigger warning: Please note that there are references to abuse throughout the episode. #LivedExperience #Podcast
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13 Jun 2025
Very pleased to have won the Judges Choice award at the School of Medicine Research Impact Forum today for my presentation on my PhD research! Of course it’s also #WearYellowDay so I was dressed accordingly! #CysticFibrosis #MRI #CFweek #CFTrust #PhD
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Excited to be at #ECFS with the poster from the first phase of my PhD - will be around to talk about it in the poster session this afternoon! #CysticFibrosis #MRI
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28 Mar 2025
🎙️Living & Breathing It Episode 2 out now!🎙️ Thanks again to @sarahthejourno for being on the podcast! Spotify: open.spotify.com/episode/2iq… Apple: podcasts.apple.com/gb/podcas… #EndometriosisAwareness #LivedExperience #Podcast

26 Mar 2025
🚨Living & Breathing It Episode 2! 🚨 We are back (finally!) - so grateful to @sarahthejourno for sharing her journey living with & researching endometriosis - drops Friday👇🏻 Spotify: open.spotify.com/show/1rqpDA… Apple: podcasts.apple.com/gb/podcas… #LivedExperience #Podcast
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26 Mar 2025
🚨Living & Breathing It Episode 2! 🚨 We are back (finally!) - so grateful to @sarahthejourno for sharing her journey living with & researching endometriosis - drops Friday👇🏻 Spotify: open.spotify.com/show/1rqpDA… Apple: podcasts.apple.com/gb/podcas… #LivedExperience #Podcast
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Really looking forward to this co-production element of my PhD - please share! 🙌🏻 #CysticFibrosis #MRI
We are still looking for people with CF & those with experience of working in CF care to join the MAGNIFY team and be part our Toolkit Development Group - more information is available here: magnifysrc.carrd.co/#tdg #MRI #CysticFibrosis
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28 Feb 2025
Thank you so much for the incredible support with this 🫶🏻 Excited for the co-production to come! #CysticFibrosis #MRI
We’ve now collected the data we needed from the discussion groups to move forward with developing a toolkit to help support the communication of lung MRI scan results! A huge thank you for all the support and interest - stay tuned for what comes next! #MRI #CysticFibrosis
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19 Feb 2025
One last push on my focus groups - looking to hold a final session with healthcare professionals. All the details are in the post below - please share! #CysticFibrosis #MRI

ALT The Countdown Begins GIF

We are still looking to speak to more healthcare professionals about the use of lung MRI in CF care. Please join one of our discussion groups to help support communication of scan results: forms.office.com/e/VEwKsS4fL… #MRI #CysticFibrosis
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