Diagnosed w/multiple myeloma 2010. Completely dependent on innovation & new drugs for survival. Fighting for affordable prices. Founder: @P4AD_ & @P4ADNOW

Joined February 2009
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We share our strength when we share our stories. Here's mine. Together we can restore balance to ensure we get the innovative new drugs we need at prices we can afford.
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They’ve lost Joe Rogan…

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Dominican Republic Travel Advisoryhttps://travel.state.gov/content/travel/en/traveladvisories/traveladvisories/dominican-republic-travel-advisory.html
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David Mitchell retweeted
Industry defenders will argue, “but Revlimid has competition.” Here’s @DavidP4AD explaining why that’s not actually true.
Revlimid is a cancer treatment that is marketed by Bristol Myers Squibb. It carries a list price of over $18,000 per cycle (given every 28 days). We investigated the patenting strategies around Revlimid. Here's what we found: đź“„206 patent applications have been filed đź“„117 patents have been granted These granted patents amount to 42.9 years of patent protection, approximately 2X the 20-year limit intended by the U.S. patent system. They have been used to block unlimited generic entry until January 2026, providing up to nearly 6 years of extra market exclusivity.
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The Partnership To Fight Chronic Disease-@pfcd-is a Big @PhRMA funded front that doesn't even have support from all the groups it lists on its website. In lobbying reports, PhRMA says the group is a subsidiary. Its Chair-Kenneth Thorpe-was paid $2M 2015-18 rollcall.com/2021/09/30/nonp…
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Millions of dollars of secret money from drug companies fund the efforts to undermine Medicare negotiation. The so-callled "pill penalty is a scam/joke. If pharma wants equal time to negotiation for all drugs, let's set it at 9 years. substack.perfectunion.us/p/p…
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Important note: The Trump @HHSGov appears to be taking good initial steps to lower Rx prices-implementing the 2022 drug law & especially moving ahead on Medicare negotiation. We applaud them. If this continues as their posture, they have our strong support fiercehealthcare.com/payers/…
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David Mitchell retweeted
❌ The ORPHAN Cures Act protects Big Pharma profits at the expense of patients and taxpayers. Congress should reject this loophole and pharma giveaway in order to keep Medicare drug price negotiations strong and put patients before drug company greed.
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Buyer Beware: The American Action Forum is a subsidiary of the American Action Network which has received-are you sitting down-more than $27 million from pharma since 2010. When you see anything from @AAF or @AAN , remember it's all drug company propaganda bought and paid for.

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As @POTUS meets for at least the 3rd time w/drug company execs, we continue to be disappointed that his administration has not met w/ patients--despite our repeated efforts to engage and offers of support to lower drug prices and help Make America Healthy Again. Below from @Axios
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There are many reasons for early & speedy approval of new cancer drugs in the U.S. One key reason is that the @US_FDA does a great job. We need to protect & support FDA for patients like me with incurable cancer who need new treatments, and millions of others. h/t @CancerResrch
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Drug companies continue to tell the courts and Congress that the new drug law that lowers prices is crippling them & harming R&D. Yet, so many of them tell investors they are killing it. Novartis reports best earnings in years. endpts.com/novartis-claims-b…
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RFK, Jr. says: "I met w/PhRMA. I met w/PBMs. My job is to meet w/all the stakeholders." We are patients-no stakeholders are more important. We've been trying to meet with him for almost 2 months. Today I reiterate our request for a meeting on behalf of patients.
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David Mitchell retweeted
We are here in front of Pharma HQ to deliver 202K petitions demanding Pharma and their allies drop the lawsuits and allow Medicare to negotiate. Which is the law! And we will not stop fighting. @P4AD_
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Good news from @CMSGov this AM! Trump Admin will move ahead with Medicare Rx price negotiation! Devil is in the details & how they may tweak the program. Bottom line for us: Do they deliver for patients by lowering prices by at least as much as in 1st round-- average 22%?
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Perhaps we'll learn how the Trump Admin plans to keep his promise to reduce drug prices as HHS nominee Robert F. Kennedy, Jr. appears before the Senate Finance Committee at 10am today. finance.senate.gov/hearings/…
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I went up to Capitol Hill yesterday to tell my patient story and emphasize the urgent need to continue implementing the IRA--especially Medicare negotiation. To do otherwise will make drug prices go up, hurting patients and millions of Americans.
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Love this shot! This is our work--getting patients and their stories before policymakers. And there ain't no higher policymaker than a President. Thanks to Judy for all she does for patients.
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CMS announces 15 more drugs now up for negotiation to lower prices & help make possible lower out-of-pocket expenses for folks on Medicare. The list includes one I take-Pomalyst. Sure hope the Trump Admin uses its bargaining skills to get us a great deal.npr.org/sections/shots-healt…
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Independent polling consistently shows overwhelming bipartisan support for expanded Medicare negotiation to lower Rx drug prices.
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