🧵On Friday last week DRFX did its first bit of good. The chromebook in the picture was dropped off with a mum. She will be using it to manage her daughter's food intake, recipe management and talking with her daughter's expert dietitian.
2/It wasn't the only thing we dropped off, there was bakeware as well. A lot of food preparation is required and sometimes cooking "en masse" is the best way to go.
It is early days, but this mum is pretty sure her daughter is responding to the therapy.
3/If you would like to help us do more of this you can donate here to our Give a Little page givealittle.co.nz/.../helpin….... Our founder, Andy, is running and raising again. Every little helps.
So @fromengland is 4 weeks away from his half marathon. Getting sponsored again so that we can help NZ families on Keto therapy for their child with epilepsy. The ROI on the therapy, when successful, is 4.5X!! Helping with the cost of food is the least we can do.
1. Back on the road again. @fromengland is training for another half marathon. 5 weeks to go and more money to raise. Plans are afoot for helping a family in NZ whose daughter has just started Medicalised Ketogenic Therapy for her epilepsy. More on that soon.
A thread about Murph and DRFX.
At the beginning of this week I crossed another thing off my list. Doing Murph with a vest on. My vest is a little lighter at 7kgs (not RX), but today is Friday 29th April and I did Murph on 25th April (ANZAC Day) and my legs are still sore.
5/ This was number 6, it will probably be just as hard next year without the vest on. I will keep on doing it until I am not able to. And I will use me, Murph and running as a way of drawing attention to fundraising for MKT and DRFX.
6/ If you read this and feel like dropping a donation please do. There is a new page up which you can see here. givealittle.co.nz/cause/help… I have started the ball rolling.
As always thank you for your support. Stay well.
@JessicaManins @beyondvrgames, Jonathan Jansen from @esports_nz and just announced @immersve very own @missbare_eth will cover new opportunities being created within new tech, games, web 3.0, NZ eSports & the eBlacks, payments, community management.
👋 GM CNFT fam
We are super excited to present you the third part of Utility for Frescos.
A partnership that was born with the amazing artist @failoften
We are working together to also deliver metaverse wearables for the Frescos Family 🎉
#CNFTProject#cnfts#MetaverseNFT
Thanks to the fab team at @angelprotocol you can now give directly to DeFi Ripple Effects, and help NZ children with Refractory Epilepsy. angelprotocol.io/app/charity…
That's where you go. You can get an emailed receipt. Super simple and so appreciated. Please give it a try.
You probably don't know, but when helping to provide food for someone on medicalised ketogenic therapy, you need scales that are accurate to 0.1gram. And they retail at around $500. It is items like this we are looking to help with. To find out more go to drfx.xyz
We mentioned the CENNZnet App Hub was just the start.
Litho is also making a comeback this year. We had a sneak peek at the designs in progress, you can expect:
- UI upgrade
- Streamlined buy & listing experience
We're only getting warmed up, 2022 LFG.
Over the past couple of weeks we have been learning what help looks like. For us to start providing help we have a little bit more to raise. If you know artists that might like to be a part of Art for Epilepsy please tag and intro them. Thank you for your help.