Happy International Albinism Awareness Day 🌺🌸🌺
🎉HAPPY INTERNATIONAL ALBINISM AWARENESS DAY 2026🎉
Today I join the rest of the world to commemorate the International Albinism Awareness Day under the theme "Proudly My Skin". This theme speaks to lived realities that us as people with albinism live with from the day we are born to the day we die. Despite lack of melanin in the skin, hair and eyes we are whole. My skin is part of me and my identity. Against social constructs, beliefs, myths and misconceptions that has haunted albinos as a result of our skin leading to harmful practices, we rise to voice out, speak out and educate society that we are one. Diversity is not a mistake. It is part of God's creation and the beautiful design of our universe.
Yet while we fight ignorance and stigma, another battle continues silently. Skin cancer continue to take lives of our brother's and sisters prematurely. For us access to sunscreen and protective clothing is a human right issue. I have personally experienced the effects of unprotected exposure to the sun especially during my childhood. My skin became a source of pain, barrier to enjoy life like other kids and psychological trigger due mocking and name calling that came with it.
This is the reason why l stand up to be counted among those putting up a fight against skin cancer even with zero resources, will is stronger. As people we cant continue to loose loved ones due to skincancer, a preventable and a preventable disease. Personally l have witnessed 32 patients due in our care due to advanced nature of their cancers. It cant continue lets join hands to fight this.
To my beloved government of Zimbabwe, please l know you are overwhelmed by government wide budgetary demands. Our ask is this , the World Health Organization last year reinstated the sunscreen back on the Essential Medicines List, l therefore plead you to align our customs regulations to this monumental resolution. Our skin health matters, we can only be full proud our skin when we we are not penalised for even attempting to protect it. Allow us to import sunscreen without payment of duty. Declassify it from the cosmetics list that pays customs duty. Parliament of Zimbabwe and other government agencies lets work together to come up with the National Action Plan on Albinism, a legal framework that will assist government to include and mainstream albinism in its planning.
Always remember any one of us is a carrier of the albinism gene and tommorow might be you who will have a child or family member with albinism. Lets act not to ensure that we make skin healthcare accessible to all PWA regardless of location, status and diversity.
My name is Queen of BaTonga, the only white bone who speaks unapologetically speaks venac, daughter of the BaTonga Royal Tribe, blood of the Zambezia and the Nyaminyami ancestral lineage. A proud fearless fighter for the human rights of people with albinism in and beyond Zimbabwe. My skin my pride, my identity.