We are the forum for parents and carers of children and young people age 0 to 25 with special educational needs and disabilities (SEND) in East Sussex.
Joined December 2019
- Tweets 244
- Following 149
- Followers 218
- Likes 64
125 Photos and videos
❗️East Sussex has received the OFSTED call!
An area SEND inspection of local services has been announced. Complete the parent carer survey here: ofsted.smartsurvey.co.uk/s/A…
You can do so anonymously. It closes at 9am on Tuesday 12th November - not long, so please spread the word. 🙏
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11 Jul 2024
Summer newsletter out now! It contains important results from our recent surveys: communication while waiting for CAMHS assessment/support, and our general parent carer survey 2023-24. Plus loads more.
espcf.org.uk/espcf-newslette…
#EastSussex #SEND #parentcarers
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11 Jun 2024
We're in Eastbourne at the @Care4theCarers annual conference, celebrating parent carers & talking about the challenges we face. We're also running a workshop with @AmazeSussex on the transition to adulthood for young people with #SEND.
#CarersWeek #EastSussex #parentcarers
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Come along to @thepelham on Friday 14th June, 10am to 12 midday, for our #SEND info & coffee morning with the support group ImPACT. Drop in & chat about your situation, peer to peer support, SEND paperwork, signposting to legal info. All parent carers in East Sussex are welcome.
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We'll be at the Kings Centre in Eastbourne on Tues 11th June for the @Care4theCarers conference, talking about transition to adulthood for young people with SEND: the support available in East Sussex & the issues facing you and your family. Register here:
eventbrite.co.uk/e/annual-ca…
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🙏A huge thank you to all our brilliant volunteers: the parent carer reps, steering group members, those working behind the scenes, and everyone who shares their experiences with us. Your knowledge and dedication is invaluable and we're so grateful to you.
#volunteersweek
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23 May 2024
❓🤔Can you help strengthen the voice of parent carers & SEND families and improve outcomes for children in #EastSussex? Check out this exciting & flexible opportunity to come & work with us: espcf.org.uk/engagement-work…
#specialeducationalneeds #disabilities #parentcarers #children
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14 May 2024
New update on East Sussex commissioning, including new brokerage programme, short breaks hours, and feedback on smaller/'sole trader' providers:
espcf.org.uk/commissioning-u…
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❗️Sussex parent carer forums call for urgent action to tackle alarming situation facing SEND families with children and young people on the neurodevelopmental pathway.
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❗️ East Sussex parent carers, please complete our short poll if your child or young person is on a waiting list for autism or ADHD assessment, or for mental health support: forms.office.com/e/pjnbRdsz6…
#parentcarers #SEND #CAMHS #EastSussex
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14 Dec 2023
☃️ ESPCF winter newsletter out now! With news about our joint #PDA position statement; #CAMHS parent carer group progress; #neurodevelopmental pathway report; annual survey; the government's review of elective home ed guidance. And much more.
🌐 espcf.org.uk/espcf-newslette…
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📢Parent carers: Tell us your views on special educational needs & disabilities (SEND) services and support in East Sussex, in our first ever annual parent carer survey: forms.office.com/e/FceCpdWAG…
Survey closes midnight 17 December 2023.
We need to hear from you!
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23 Nov 2023
It's Carers' Rights Day 2023! Find out more: carersuk.org/news-and-campai…
And know what you are legally entitled to:
mobiliseonline.co.uk/carers-…
#carersrightsday #parentcarers #specialeducationalneeds #disabilities
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East Sussex Parent Carer Forum - ESPCF retweeted
Would you like to join the Ross Care Service User Engagement Forum and be involved in shaping better services? Register via - forms.gle/44TiKPiyg5UytBxz9
@NHSSussex @EastSussexCC @RossCare @EEspcf @Care4theCarers
ALT Ross Care Wheelchair Service User Forum Meeting 3 09th November 2023: 12- 2 pm Physical Meeting at Ross Care Service Centre Unit 8 & 9 Alder Close, Eastbourne, BN23 6QF To register your place, please scan the QR code or email to EastSussexCheo@Rosscare.co.uk
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East Sussex Parent Carer Forum - ESPCF retweeted
24 Oct 2023
Got questions about masking? Check out Amaze's quick guide for parent carers: loom.ly/NfBNTbg
We worked with people with lived experience of autism/ADHD & masking to adapt a leaflet for B&H schools that was co-produced by BHCC, Seaside View, Amaze, PaCC & B&H pupils.
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23 Oct 2023
🚕 Read our recent update on home-to-school transport, following our meeting with the transport hub at East Sussex County Council: espcf.org.uk/transport-octob…
We talked about:
🟢Familiarisation visits
🟢ID badges
🟢Application process
🟢Communication
#SEND #transport #parentcarers
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13 Oct 2023
Thank you to the parent carers who gave feedback on the East Sussex PDA position statement. A new version is coming very soon, with updated info including internal and/or masked or variable presentations of PDA, and a link to @PDASociety
Read more here: espcf.org.uk/pda-position-st…
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26 Sep 2023
A powerful account of a family experiencing EBSA - emotionally based school avoidance. Please read if you feel you can. We're so grateful to this parent carer and her son for sharing their story. 💜
espcf.org.uk/ebsa-for-me
#EBSA #schoolavoidanceawarenessweek #schooltrauma
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26 Jul 2023
👊 YOUR IMPACT 👊
Read about what happened when parent carers reviewed the wording in a letter on informed consent in the autism assessment process and challenged some of the principles involved:
espcf.org.uk/your-impact-ref…
#parentcarers #parentcarerforum #EastSussex #SEND
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