Connecting with women with diagnosed or suspected endometriosis and/or PCOS for support, sharing and collective action #deedsnotwords
Joined November 2021
- Tweets 439
- Following 111
- Followers 116
- Likes 527
39 Photos and videos
Pinned Tweet
12 Oct 2022
Breaking with my hiatus to share a few dreams here:I wish we had healthcase systems that:
- Do not take a 'one size fits all' approach
- Do not treat women with disdain for wanting more personalised support
- Truly work for women
You're not awkward for challenging broken systems
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23 Oct 2024
It's hard to listen to people tell you not to get angry about an issue that doesn't affect them.If the healthcare system actually worked for those with conditions like PCOS or Endo, I'm sure I'd be able to 'chill out' too... this is why community & allyship is so important!
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EndoPcoSOS retweeted
Endometriosis Reminders ✨
- Not everyone can afford surgery
- Not everyone has supportive partners/family
- Not every medication works for everyone
- Self-care is essential, not selfish
- Your pain is valid, even if others can’t see it
- You’re not alone
💛
#endometriosis
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13 Oct 2024
Finally, some sense! And on this subject...Shout-out to the PE teacher who ripped up a note my mum wrote when I was in agonising pain & said loudly so others could hear: 'Periods AREN'T a reason not to do P.E.' 🤯
theguardian.com/education/20…
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11 Oct 2024
💯
10 Oct 2024
Medicine is full of bias against:
- Women
- Interns
- General Practitioners
- Ethnic and Racial Minorities
- Graduates of Foreign Medical Schools
- Anyone not a doctor
Improving the culture of medicine starts by treating each other in a more humane and compassionate manner.
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EndoPcoSOS retweeted
10 Oct 2024
Period pain policy reversed as school apologises bbc.in/3zXk7dd
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10 Oct 2024
What a compassionate message ❤️
9 Oct 2024
Sending huge love to all my fellow ME sufferers and all those with chronic conditions. My book doesn’t just speak to that but that was my story, and I know that sadly there a millions who also suffer from similar. Big hopeful hug to you ❤️
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EndoPcoSOS retweeted
9 Oct 2024
“Maybe if you didn’t think about your illness, it wouldn’t effect you so much”
I wish it worked that way!
Unfortunately, chronic illness doesn’t take a break when I’m not thinking about it.
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EndoPcoSOS retweeted
9 Oct 2024
Get your #PCOSMerch & help raise awareness whilst supporting Verity’s work in fighting for better outcomes for all 💜💜
pcosmerch.com
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10 Oct 2024
That moment when someone close to you, who never quite seemed to fully believe your symptoms actually sees you during a flare up...
#Endo #PCOS #WomensHealth #Endometriosis #Heavyperiods
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EndoPcoSOS retweeted
8 Oct 2024
The fact we still 16 years on from when I was dismissed & ridiculed at times in school for my painful periods (which was later diagnosed in stage 4 severe endometriosis), & we are still no further forward is beyond me
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6 Oct 2024
People healthcare profit = a broken system where vulnerable people get taken advantage of
#healthinequity #womenshealth #healthcare #healthempowerment #PCOS #Endo #peopleoverprofit
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4 Oct 2024
The healthcare system does a great job of keeping women feeling small...because there's not enough money invested into women's health conditions, we're still mostly using models based on the male body etc. It's 2024. It's about time things changed. Women are being failed.
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4 Oct 2024
The
Healthcare
System
Doesn't
Work
For
Women
And
This
Needs
To
Change
Now
#womenshealth #healthinequity #PCOS #endo #endometriosis
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3 Oct 2024
Women
Deserve
To
Be
Treated
With
Respect
Especially
When
It
Comes
To
Healthcare
#Womenshealth #healthinequity #PCOS #Endo #Endometriosis
And that's the tweet!
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2 Oct 2024
Waited months for private gynae referral. Ask to be referred to a nutritionist to support natural management of symptoms.Get told they don't know any specialists and that 'there's loads of nutrition advice for PCOS on social media.' People pay up to £220 for these consultations!
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EndoPcoSOS retweeted
18 Sep 2024
Recording available: PCOS at Work, a webinar in our Menstrual Health at Work series about PCOS at work. In this webinar, with @veritypcos, we explain what PCOS is and how employers can support staff with the condition.
Available at: endometriosis-uk.org/webinar…
#PCOSAwarenessMonth
ALT Image description: A yellow background with a laptop showing the PCOS at work webinar. Above the laptop text in a notifications style bubble reads 'Recording available'
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EndoPcoSOS retweeted
16 Sep 2024
📢 A N N O U N C E M E N T 📢
@VerityPCOS & @cardiffuni are so excited to announce the official launch of our @LindAlliance Priority Setting Partnership for #PCOS. The #JLAPCOS PSP will create the Top 10 research priorities for PCOS in the UK.
📷 Some of our steering group
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3 Sep 2024
YES Demi! So inspired by you opening up about your endometriosis on #loveisblinduk. Great interview too! Now where do we get more amazing and empowering specialists like Dr Nitu? ❤️ #endometriosis #endo #womenshealth youtu.be/E7o-9PWMBqw?si=pfbW…
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1 Sep 2024
Really good article, thar resonates a lot and also highlights some of the cultural/societal challenges of managing #PCOS faced by women in Africa, and Nigeria specifically
1 Sep 2024
“The first doctor I saw kept arguing with me over my symptoms and refused to accept my earlier diagnosis.”
The realities of women living with #PCOS often go unnoticed and are not taken seriously by medical professionals.
#WorldPCOSDay
humanglemedia.com/the-effect…
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1 Sep 2024
*that (when are we getting that long-awaited 'edit' button on here? 😁)
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