The European Pulmonary Fibrosis Federation (EU-PFF) is a European Federation of national #IPF & #PF/#Pulmonaryfibrosis patient associations.
Joined June 2016
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After the incredible success of our 2024 summit, we're excited to bring the community together once again. Patients, caregivers, healthcare professionals, policymakers, and industry leaders will gather to shape the future of #PulmonaryFibrosis patient care across Europe.
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π Live international webinar via Zoom | Free registration
Pulmonary alveolar proteinosis (aPAP) is a rare lung condition that can be difficult to diagnose and manage β especially when it intersects with #pulmonaryfibrosis.
π Register now: bit.ly/3VZ8av4
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π΄ Live Webinar | 7 October
β‘οΈ "Issues in Oxygen Therapy in Europe"
Leading experts will discuss these challenges and explore what can be done to improve oxygen provision for people with pulmonary fibrosis in Europe.
π Register here to join us: bit.ly/4mQELhF
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#Announcement We are wrapping up our presence in X. A huge thank you to everyone who has been part of this community! Stay connected and get future updates through our website, buff.ly/3XRSwmK, and other channels.
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#Announcement We are wrapping up our presence in X. A huge thank you to everyone who has been part of this community! Stay connected and get future updates through our website, buff.ly/3XRSwmK, and other channels.
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π¬ Living with a lung condition can have a significant impact on mental health.
On 25 February at 13:00 CET, join a webinar, organised by @europeanlung, exploring the important link between lung conditions and mental health!
π buff.ly/42UVTfG
#MentalHealthAwarenes
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A huge thank you to Boehringer Ingelheim! Your invaluable support has been crucial in making the EU-PFF Patient Advocacy Forum possible. If you're interested in supporting the 2025 Patient Advocacy Forum or exploring potential collaboration opportunities, weβd love to chat!
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π« Healthy lungs are essential for a healthy life! π«
Earlier this week, Healthy Lungs for Life brought lung health checks to the @EuroParl_EN, the event highlighted policy actions to prevent lung disease & promote early diagnosis.
Learn more π buff.ly/3WPUnaW
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π¨ Save the Date! π¨ The EU-PFF Patient Advocacy Forum is in Frankfurt, April 24-27, 2025! π This members-only event will bring together patient advocates & healthcare leaders to shape the future of patient care. Weβre excited to collaborate with partners to improve outcomes!
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π Honoring care in Pulmonary Fibrosis during #QualityOfLifeMonth: Managing comorbidities like heart disease & sleep disorders can improve life for patients & caregivers. Key areas:
π¬οΈ Dyspnoea π€§ Cough πͺ Fatigue π Anxiety & Depression
Let's raise awareness & support!
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π Exciting news, EU-PFF community! π The recording of our 2nd webinar from the 2024-2025 series (Jan 15) is now available. π₯ Missed it? Catch up anytime, anywhere! π― Watch here: buff.ly/42jGd5E
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π Understanding the Impact of Pulmonary Fibrosis on Quality of Life π We honor the resilience of those with pulmonary fibrosis. It affects not only physical health but emotional well-being and social connections. Let's raise awareness and offer support! ππ
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π’ LAST CALL Webinar #2: Nutrition & Pulmonary Fibrosis
ποΈ Wed, 15 Jan 2025
β° 18:00β19:00 CET
Rasleen Kahai, Senior Dietician, will present diet tips for managing weight, appetite, and treatment side effects for #PF patients.
Donβt miss it & register here buff.ly/41FwMwS
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π± January is International Quality of Life Month! Let's raise awareness about well-being, especially for those with pulmonary fibrosis. Together, through care, resources & research, we can help improve lives. Join us to inspire support & resilience! π #QualityOfLife
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REMINDER Webinar #2: Nutrition & Pulmonary Fibrosis
ποΈ Wed, 15 Jan 2025
β° 18:00β19:00 CET
Rasleen Kahai, Senior Dietician, will talk about weight management, appetite, & treatment side effects for #PF patients.
Donβt miss the opportunity β register now buff.ly/41FwMwS
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2024 was a year of progress, fueled by the dedication and collaboration of
our member organizations, scientific advisory board, patient community, healthcare
professionals, and industry partners. As we prepare to welcome 2025, we thank you for being part of this journey!
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ππ Sofia hosted the 2nd Annual CILDAPANET Meeting, uniting patient orgs, doctors, & researchers to tackle interstitial lung diseases. Key moments π expert talks, innovative ILD care approaches, & plans to expand collaboration in Central & Eastern Europe. π‘π€ #CILDAPANET #ILD
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π Webinar #2: Nutrition & Pulmonary Fibrosis
ποΈ Wed, 15 Jan 2025
β° 18:00β19:00 CET
Join Rasleen Kahai, Senior Dietician, to explore diet tips for managing weight, appetite, and treatment side effects for #PF patients.
Donβt miss it β register now buff.ly/41FwMwS
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Weβre excited to share the amazing awareness video created by the Hellenic Pulmonary Fibrosis Association, Lungs of Life! You can see more of their work here!: buff.ly/41CVPRc
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Tomorrow Dec 14,πSofia hosts the 2nd Annual Meeting of CILDAPANET, uniting patient organisations, doctors, researchers & allies from across Europe to tackle ILDs & NCDsπ«Let's improve care, awareness & policies together! π #PulmonaryFibrosis #LungHealth #StrongerTogether
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