Epilepsy says stop. We say go.

Joined November 2008
4,562 Photos and videos
Pinned Tweet
If I told you I have epilepsy… how would you react? 💜 Watch, reflect, and help normalise the conversation. 👉 Please share this video and help us change the narrative. #EpilepsyAwareness #ChangeTheNarrative #EndTheStigma
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Epilepsy Action retweeted
📣 NEW SHOW: Catch a brilliant line-up of comics at Gleeds on Wed 10th June 2026 with all proceeds going directly to @epilepsyaction! Featuring @jakelambertcom, Will Burns, Kat Ronson, Jack Gleadow, Alejandro Fernandez, Jack McClean & @seetadoescomedy 🎟️ bit.ly/EpilepsyActionGleeds
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Epilepsy Action retweeted
This week's Showcase Sunday Pick is... @epilepsyaction Epilepsy Action is a national charity providing information, advice & support for people with epilepsy You can find their details and those of others offering support in #Birmingham & #Solihull over @TWR_org
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Epilepsy Action retweeted
2 Dec 2025
My artwork is up for auction on National Doodle Day in aid of Epilepsy Action! I was honoured to be invited to contribute two drawings to this Christmas's  National Doodle Day, and I’m so excited to share that they are now live on eBay with bidding already underway! Every single penny raised will go directly to Epilepsy Action to support people living with epilepsy across the UK, research, support services, and life changing work. Here are the two pieces I created, especially for the cause. Check out National Doodle Day/Keith Boldy If you love Highland cows (or just love supporting an amazing cause), please consider placing a bid, sharing with friends, or simply spreading the word. Together, we can make a real difference! Thank you so much for your support. It means a lot to me. #NationalDoodleDay #EpilepsyAction #HighlandCow #CharityAuction
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Epilepsy Action retweeted
22 Sep 2025
It’s coming up to National doodle day again for @epilepsyaction and amazing charity please support by bidding on work by artists
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Epilepsy Action retweeted
"New data from @EpilepsyAction reveals that one in three people would panic when they saw someone having an epileptic [seizure], rather than supporting them." -- Do you think these stats hold true? #EpilepsyAwareness hellorayo.co.uk/hits-radio/c…

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Epilepsy Action retweeted
Rebekah Smith from @epilepsyaction raises awareness of epileptic seizures on #daytime with @avery_aston next! Tune in on FM, on DAB or online gateway978.com/live
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Epilepsy Action retweeted
Super excited to see @epilepsyaction's ‘Could I Count On You?’ campaign launch today – brilliantly created by the winners of The Creative Shootout 2025, @Boldspaceteam. Have a read, link in the comments 👇. And ask yourself, could they count on you?
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Epilepsy Action retweeted
We are so proud of this young man and his Mum who are running throughout September to raise funds for @epilepsyaction. Mum is running 60 miles and our young man is running as much as he can. What a fantastic effort! #epilepsyaction
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Epilepsy Action retweeted
Done! the night assent to the top of Mt Snowdon. Fantastic in horrendous conditions. Rained all the way up and down. With intervals of hail&sleet at the top. Not quite the sunrise they wanted. Thank you for all the support is just over £2000 for @epilepsyaction 👏🏻👏🏻👏🏻
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We’re thrilled to launch a limited-edition merch range, designed with Olivia Colman herself, to celebrate #NationalDoodleDay based on her doodle. Preorder your merch today: brnw.ch/21wUv1N And stay tuned… there’s so much more to come! #OliviaColman #DoodleDay2025
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🗣️ I've called for an update on epilepsy services following @epilepsyaction's Seizing Change report. Patients in the @HywelDdaHB area are waiting up to 36 weeks to be seen – the longest waiting time on record. ⚠️ The Welsh Gov must address waiting times and workforce shortages.
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5 years since the Cumberlege Report. No redress. No justice. Becci, Susan & Anna have a message for the government. Watch now: youtu.be/iPS5gxmPLbw Write to @wesstreeting and demand action.
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“We need redress with respect.” Susan trusted the system. She was never warned about valproate’s risks. 5 years since the Cumberlege Report, still no redress. Watch Susan’s story & write to @wesstreeting. youtu.be/iPS5gxmPLbw
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“That medication has caused him so much harm.” Becci’s child was harmed by valproate – and 5 years later, they’re still waiting for justice. Watch Becci’s story on YouTube & write to @wesstreeting to demand action. youtu.be/gA79fkwrKpg
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“We need to heal.” Susan and her daughter Anna are living with the effects of valproate. 5 years after Cumberlege, still no redress scheme. Watch their story. Write to @wesstreeting. youtu.be/qr69sZctvds Write to @wesstreeting and ask him to act.
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We stand with our ambassador Paula McGowan as she and Tom mark a major milestone in their campaign for safer, more personalised care. Find out more with our resource for people with epilepsy and learning disabilities: epilepsy.org.uk/professional… bbc.co.uk/news/articles/cd97…
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Doodlers Digest is a puzzle book from @epilepsyaction & @doodleday created to support wellbeing through mindful activities. The 12-page book is full of puzzles, drawing prompts & more delivered to you for a £10 monthly donation. Register your interest: epilepsy.org.uk/doodlersdige…
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🚨 Urgent PIP Update! 🚨 Thanks to YOU, we’ve reached 40% of MPs with our #DontTakeThePIP form! 🙌 But the vote’s next week – we need one final push: ✅ Fill in the form if you haven’t ✅ Ask your MP to vote NO Let’s protect PIP – together epilepsy.org.uk/DontTakeTheP…
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Our 'If I Told You' campaign shows epilepsy is more than seizures for many like Isabella it affects love, friendships, and daily life in ways many don’t see. Our new video explores this, watch now: youtu.be/DMoYoH9Civs?feature… Read Isabella's story here: getsurrey.co.uk/news/health/…
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