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FOP Friends @FOPFriends

FOP is one of the rarest and most debilitating conditions known to medicine, causing bone to form in muscles. Charity #1147704

Joined January 2012
  • Tweets 2,147
  • Following 520
  • Followers 727
1,446 Photos and videos
Happy St Andrew's Day to all our Scottish supporters! 🏴󠁧󠁢󠁳󠁣󠁴󠁿 #FOPFriends #FOP
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Today is Black Friday!🛍️ Don't forget to use easyfundraising when you online shop to help support us! Choose FOP Friends as your charity of choice and easyfundraising donates a part of what you spend without costing you any extra! Happy shopping! 🛍️ #FOP #FOPFriends #BlackFriday
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Happy Diwali to all those celebrating today! ✨ May this year's festival of lights bring festivities and the victory of spiritual goodness ❤️ #FOP #FOPFriends #HappyDiwali
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Happy Halloween!🎃 We hope everyone has a spooktacular holiday and enjoy the scary festivities! We would love to see some costumes (they get better every year!) so don't hesitate to share!👻 #FOP #FOPFriends #HappyHalloween
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And just like that, the autumn season begins!🍁 With the autumnal season upon us, remember to keep wrapped up in the upcoming months! 🍁 #FOP #FOPFriends #FOPAwareness
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📰Our newsletter is now available online! Catch up on our latest news, photos and fundraisers, and also read Nadine's Q&A with us 😍 🧡A huge thank you to everyone who gives us so much joyous news to share and celebrate.🧡 fopfriends.com/about-fop-fri… #FOPFriends #StrongerTogether
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🐝The wait is over for our friends who came to the conference! Your teatowels are on their way! We hope they bring you happy memories from our time together. #FOPFriends #CureFOP #StrongerTogether
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Please join us in congratulating Faye on her graduation from Manchester University! Faye graduated with a First Class Honours Degree in Psychology. Such a proud moment for her and her family. We wish her every success in the next chapter 😍
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🧡We were delighted to have the Oxford Research team present at our conference a few weeks ago. 📊They have produced an update on their work, which we are pleased to share with you. 🔗You can read it here: loom.ly/Kl-cwR8
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🇺🇸Happy 4th July to our friends and families in America! Enjoy your celebrations with family, friends, food and fireworks! 🎆
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🇨🇦Wishing our special friends at @fopcanada a very Happy Canada Day! 🏔️A beautiful country with beautiful people and beautiful landscapes! ❤️Enjoy your time with family and friends
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🇸🇪Day 2 of the DDF in Sweden, and Chris opens the session. 📉Another day packed with presentations from pharmaceutical reps and physicians. 🧡We are grateful for the bright minds who are researching into FOP, giving everyone affected by it HOPE.
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🤩We have places available at marathons around the country - we even have places in international marathons! 🏃Visit fopfriends.com/r4c to see what opportunities are available. 💬If there isn't a race that takes your fancy, get in touch and we'll see what we can do.
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🌞 As the Chair of the International Presidents' Council, Chris gave the welcome and introduction. 🧡They heard from some of the pharmaceutical companies who are leading the way with research. 🌎There were opportunities for the organisations to share and reflect on their work.
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Today officially marks the start of summer!☀️ We cannot wait for the sunny days to come! Have you got any summer plans? Let us know! ☀️ #FOP #FOPFriends #Summer
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Any guesses what we've been up to in the office today... #FOPFriends #StrongerTogether #Conference2024 🧡💛💚💙
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Eid Mubarak to our families and friends who are celebrating. May this Eid bring peace, joy, and blessings to you and your family.🧡
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Wishing all our dads, daddies, step-dads and grandads a very Happy Father's Day! Thank you for everything you do. Enjoy your day!
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🎁Happy Birthday FOP Friends!!!🎁 🎂Today we are 11 years a charity! 🧡A big thank you to everyone who has been with us on the journey to build FOP Friends into a small but mighty charity! 🎉Here's to the next chapter... #StrongerTogether #CureFOP #FOPFriends #FOP #RareDisease
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📢BREAKING NEWS📢 A limited number of extra places for the Manchester Half Marathon 2024 have just been released! 📆Sunday 13th October 2024 🐝Manchester 🏃13.1 miles 💵 £26 to register your place 🌐loom.ly/ZU8phRc What are you waiting for? Secure your place now!
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