A 501c3 dedicated to overcoming the challenges of FPIES by offering tools for education, support, and advocacy to empower families and the medical community.
Joined September 2012
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- Following 1,525
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1,053 Photos and videos
For families living with FPIES, the real challenges often appear in everyday settings — especially school. Guest Blog with Parent Teacher Path: A 3-part blog series- How Parent Teacher Path Supports Families. – The FPIES Foundation
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"If you are early in your FPIES journey, know that combining trusted medical care with supportive resources can help you feel informed, empowered, and supported every step of the way".
fpiesfoundation.org/guest-bl…
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Inspired by his son and the challenges families often face in everyday settings, including school, Ken created Parent Teacher Path, read more about it on our guest blog post:
fpiesfoundation.org/guest-po…
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Find graphics for #RDD on National Organization for Rare Disorders, Inc. (NORD) website- Rare Disease Day (RDD) Resources (link in comments)
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Specialized foods and formulas are essential to effective treatment. Tell Congress why the bipartisan Medical Foods & Formulas Access Act (H.R. 5684 / S. 3304) is urgently needed. Take Action Today! #MedicalNutrition nutritionequity.org/takeacti…
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If you find a need of a feeding tube to support nutrition through your #FPIES diagnosis, know you are not alone. Feeding Tube Awareness Week: Tell Others - Oley Foundation. oley.org/page/FT_Awareness_W…
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If you or someone you love relies on medical nutrition, your story matters. Tell Congress why the bipartisan Medical Foods & Formulas Access Act (H.R. 5684 / S. 3304) is urgently needed.
Take Action today! nutritionequity.org/
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This week is Tube Feeding Awareness week, internationally (next week in the United States). Join in and build awareness! Although having #FPIES does not mean you will need a feeding tube, some may need this medical intervention. #YouAreNotAlone .
Jan 31
It’s Feeding Tube Awareness Week!
Join us in raising awareness, celebrating the tube-feeding community, and sharing support and education.
Get involved this #FTAW2026 👉 resources, #MyTubie stories, #FTAWLightUp landmarks, virtual education and more: feedingtubeaware.com.au/
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29 Oct 2025
Teal pumpkins, safe treats, 'switch witch', are all ways to help your little ones enjoy the fun, even if it looks a little different. You can start your own traditions! fpiesfoundation.org/trick-or…
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28 Oct 2025
Please consider contacting your US Rep in support of The ADINA Act - this Act will require plain-language labeling of all major food allergens and gluten-containing grains in medications! Visit ADINAAct.com to learn more! #ADINA
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28 Oct 2025
We love to see more and more research into understanding #FPIES!
24 Oct 2025
Could prolonged breaks from eating #egg yolk actually trigger #FPIES? 🥚
A study from suggests consistent, short-interval consumption (e.g., every 1-3 days before 8 months) might be key to prevention! 🤔
🔗 bit.ly/3WgHKF9
@FPIESFoundation #IKNOWNOWFPIES @kfatweets
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14 Oct 2025
Recognizing our FPIES Allies! Dr. Qian Yuan, FPIES Foundation MAB member, food allergy advocate, Researcher, & Pediatric Gastroenterologist at MGH will be honored as a Champion in Food Allergies by the Asthma and Allergy Foundation of America, New England Chapter Fall Gala!
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14 Oct 2025
In honor of #GlobalFPIESDay today, we are giving away a copy of this "I Have FPIES" book- generously donated by the author! Send us a note to our inbox (contact@thefpiesfoundation.org) with what FPIES means to you and you will be placed in a drawing for the book! #FPIES
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13 Oct 2025
Global FPIES Day is tomorrow, Tuesday Oct. 14, 2025!
Be sure to check out our website for ways you can learn and share more about FPIES! fpiesfoundation.org/global-f…
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8 Oct 2025
Awareness on a local platform is powerful; awareness on a national and global scale can be life-changing for the entire #FPIES community. #GLobalFPIESDay
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7 Oct 2025
Global #FPIES Day is just one week away! A time to come together and focus on ways to enhance our community's understanding of FPIES- through tools such as education, resources and advocacy. Join us! fpiesfoundation.org/global-f…
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2 Sep 2025
Dine Allergy Safe Club. We support SB68 – The ADDE Bill; which would require restaurants in California to label the #Top9 food allergens on menus. We’re calling on: California Assemblymembers-vote YES on SB 68; Governor Gavin Newsom (@cagovernor)- sign SB 68 into law #SB68ADDE
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1 Sep 2025
It's our Anniversary! 14 years ago, the Foundation was founded because we knew it was vital to the #FPIES diagnosis to have the insights from a collaboration of community voices. These voices created the cornerstones of The FPIES Foundation and remain at the heart of the mission
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