Fighting for Fiona and a cure for Sanfilippo syndrome, aka MPS3A. Currently there is no available treatment. Funds & awareness need to be raised to save lives

Joined February 2017
66 Photos and videos
Fight for Fiona retweeted
RETWEET if you stand with President Zelensky!
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Fight for Fiona retweeted
💜🌍 Today is Rare Disease Day! 🌍💜 Together, we stand with the 300 million people worldwide living with rare diseases. In uniting on this day we can raise awareness, advocate for change, and promote a more equitable future! ⚖️ Learn more: rarediseaseday.org/
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Fight for Fiona retweeted
14 Oct 2024
This is @PeteButtigieg with the only acceptable answer.
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Fight for Fiona retweeted
FLORIDA EVACUEES 🚨 If you are headed North to escape the Cat 5 coming in and need a safe place to be, I have 5 acres available just off I-75N where we have WiFi, a generator, Laundry, parking , RV space some electrical and water hook-ups. Pets and large animals welcome. We can make it work just hit my DM’s or just reply below for directions. God Bless be safe ! 🇺🇸
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Fight for Fiona retweeted
As a doctor whose wife experienced 4 miscarriages amongst the 3, now healthy adult children we have raised, I can’t stop thinking about @JDVance’s answers on abortion during the VP debate. Here is the problem with his and Trump’s “leave it to the states” approach. 1/13
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Fight for Fiona retweeted
W dads
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Fight for Fiona retweeted
This ad is fantastic.

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Fight for Fiona retweeted
Some thoughts on the Trump shooting...
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Fight for Fiona retweeted
John Oliver on Project 2025 and a second Trump term. I was going to clip this segment out into shorter sections but decided to keep it together because it's too important and, frankly, it should terrify you.
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Fight for Fiona retweeted
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Fight for Fiona retweeted
🔥🚨BREAKING: Kamala Harris reacted to The Arizona Supreme Court ruling on abortion. Kamala stresses that if the U.S. Congress opposes this ruling Joe Biden will sign it into law.
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Fight for Fiona retweeted
5 Mar 2024
In 1995, 14 wolves were released in Yellowstone National Park. No one expected the miracle that the wolves would bring [📹 Protect All Wildlife]

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Replying to @OccupyDemocrats
I self-identify as a Christian. I work as a chaplain in a maximum security prison. I serve as an army chaplain, and I have been posted to places where most people wouldn't want to go. That means I've met a lot of people, some Christian, some atheist, some Muslim, and some adhering to other beliefs. The thing is, I try to view them all as human beings, rather than as Christian, atheist, Muslim, or adhering to other beliefs. I hope they see me as an ordinary, fairly decent human being, too. That's because the one thing we've in common is that we're humans, inhabiting the same earth, and bound by one obligation: To view and treat others the way we'd like them to view and treat us. Now, some would say, 'Hey, that's a Christian value!', and yeah, no, it isn't. It's been common practise in most civilisations throughout history, and that's why it features prominently in most religions. And basically, you're free to adhere to any religion, faith, or belief you like, or to any philosophy, world view, or politics, for that matter. That's a human right. But here's the thing: Everybody else has the exact same right. The. Exact. Same. Right. That means you can't force your religion, world view, or philosophy on other people. You may want to, but you can't. Period. So if a politician wants to enforce school prayer, ban certain books, keep women from basic health care such as an abortion, or finds it problematic that one in four identifies as something other than 'straight', or tries to promote legislation based on that politician's religion, philosophy, or world view, it's a no go. Your religion is nobody else's business. You can let it guide what you say, do, think, etc., but if you curtail other people's rights, based on your beliefs, be prepared to have to do what other people's beliefs want you to do. And what might that be? Well, some religions allow for beheading, whipping, the amputation of limbs, and slavery, and some claim that women, or people whose beliefs, sexuality, origin, or skin color differ from theirs, are inferior human beings. So if you force your views on others, be prepared to accept theirs if the tables should turn. Or else, let general principles be your guide when dealing with other people. Keep your faith, your beliefs, and your philosophies out of the equation, because they're yours. NOT everybody's. And you can't force them on anybody else. If, however, you're still prepared to restrict other people's rights and privileges, based on what you feel, believe, or pray for, then ask yourself 'Would I be okay with having my rights and privileges restricted, based on what other people feel, believe, or pray for, even if I disagree with those people and their beliefs..?' If the answer is 'no', there's your clue to what you should do, and especially to what you should most specifically not do. Have a nice day.
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Fight for Fiona retweeted
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Fight for Fiona retweeted
Kashmir (Led Zeppelin) performed by kids. This is so damn cool!
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Fight for Fiona retweeted
🚨🚨🚨 WOW : A father of a child who was killed in the Uvalde school shooting SLAMMED Texas legislators for their “useless thoughts and prayers.” Brett Cross boldly testified in front of a Texas House committee in support of legislation that would raise the minimum age to buy semi-automatic weapons from 18 to 21. Brett Cross: “I’m so sick of hearing those three words from our elected officials… While your prayers may have comforted you, they did nothing to absolve our pain... Your thoughts and prayers didn’t stop an 18 year old from purchasing two high powered semi automatic rifles and all of those rounds of ammunition. Your thoughts and prayers didn’t stop us from having to bury our children and two teachers.Your thoughts and prayers haven’t done anything in the 329 days since Uziel was shot through his stomach exiting his spine. Your thoughts and prayers are useless unless you have thought and prayed for legislation that you can help enact that could change this.” And now today, President Biden announced the first-ever White House Office of Gun Violence Prevention to “end the scourge of gun violence,” to be overseen by Vice-President Harris. Thank you so much to Brett Cross and these BRAVE parents for speaking out! 💙💙💙
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Fight for Fiona retweeted
22 Aug 2023
We will not abide. With @NoRadsToTheNads
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Fight for Fiona retweeted
This is a statement from two of the people who wrote Florida's new education standards on slavery. In it they give several names of people to exemplify slaves who learned skills they applied later in life. Let's go through the supposed truth of this list one by one.
Want the truth on Florida’s African American History Standards? See statement below from experts who crafted them. “Any attempt to reduce slaves to just victims of oppression fails to recognize their strength, courage and resiliency during a difficult time in American history.”
Community note
This list is supposedly of enslaved people who "developed ... trades from which they benefitted" but nearly all of these people were either never enslaved, or never held the jobs described on the list. Some examples: en.wikipedia.org/wiki/Ned_Cobb en.wikipedia.org/wiki/Lewis_How… en.wikipedia.org/wiki/James_For… en.wikipedia.org/wiki/William_W… en.wikipedia.org/wiki/Betty_Was… Here is a summary of the errors on the list: twitter.com/etotheipie/sta…
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