FND Ireland is the first Irish registered charity dedicated to advocating for and supporting those living with FND in Ireland ππ§‘
Joined April 2024
- Tweets 648
- Following 201
- Followers 276
- Likes 1,600
350 Photos and videos
Jun 13
As #NationalCarersWeek draws to a close, #FNDIreland wishes to show our appreciation for the incredible dedication of carers and family members in supporting those living with #FND.
We have met many carers at our peer support meetings, we simply say 'thank you for caring'. ππ§‘
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Jun 11
Delighted to see Rachael who lives with #FND interviewed in the @Independent_ie & @SligoChampion today about her 5k for FND fundraiser walk in Hazelwood, Sligo.
Rachael and her sister Elaine were joined by over 120 people on the day! ππ§‘
#FNDIreland
independent.ie/county/sligo/β¦
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Jun 5
Looking forward to our #FNDIreland Peer Support Meeting in Leitrim this month. Full details on the poster. Please email us or contact us via our website to register to attend. fnd.ie/contact-us/ ππ§‘
π Carrick-on-Shannon
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27th June 2026
β° 2pm
@ppnleitrim @DONPSI
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Jun 3
A massive THANK YOU to all those who took part in the Vhi Women's Mini Marathon to support #FNDIreland. πππββοΈ
Thanks to Ruby and her family and friends and to Kayleigh's friends Ciara, Lauren and Bernie for their support and for raising awareness of #FND. ππ§‘
#VhiWMM
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Jun 1
π’ Looking for your nomination π
Please nominate #FNDIreland for AIB Community Fund to give us a chance of securing up to β¬20,000 to support the 9,000 people living with #FND in Ireland. Scan QR code: enter our name, Registered Charity Number 20206785 and select Connacht. ππ§‘
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May 29
Looking forward to our #FNDIreland Peer Support Meetings in Dublin and Kildare. Please email us or contact us via our website to register to attend. fnd.ie/contact-us/ ππ§‘
π Blanchardstown
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13th June 2026
β° 10.00am
π Leixlip
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13th June 2026
β° 1.30pm
@DONPSI #FND
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May 28
We are delighted to support the @naiireland pre budget campaign.ππ§‘
** COMING SOON ***
The Right Care in the Right Place: NAI 2026 Pre Budget Campaign.
The Neurological Alliance of Irelands advocacy campaign in the lead up to this yearβs Budget focuses on access to neurology and neurorehabilitation services in line with the commitments within the current Programme for Government.
What are NAI Calling For:
1) Investment in regional neurology services and specialist pathways for early diagnosis in line with the Programme for Government commitment to investment in neurology services.
2) Investment to complete the rollout of community neurorehabilitation teams in line with the commitment within the current Programme for Government.
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May 27
A massive THANK YOU to all those who supported our #FNDIreland 5K for FND challenge in April, you raised β¬19,552. ππ
There is still time to support the amazing people who took part, you can donateΒ by scanning the QR code. ππ§‘
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May 25
In April, we had over 80 people attend our #FNDIreland peer support meetings in 8 locations countrywide: Dublin, Kildare, Louth, Waterford, Cork, Galway, Donegal & Leitrim. A huge thank you to everyone who attended & shared their experiences. Together, we support each other. ππ§‘
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May 22
#FNDIreland is delighted to support participation in research by Daniel McCabe at @QUBPsych which is open to those living on the island of Ireland. π§
There will be eligibility screening before sessions occur. We are not involved in screening, decisions, or study outcomes. ππ§‘
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May 21
As we celebrate National Volunteering Week, #FNDIreland wish to extend a massive THANK YOU to all our wonderful volunteers. Your commitment and dedication is so appreciated. ππππ§‘
#NVWIreland #FND @naiireland @DONPSI @ppnleitrim
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May 20
Interesting podcast from @EANeurology: FND in Children and Adults: Different or the same?
We are definitely seeing from those contacting us the prevalence of the first peak mentioned in the podcast of #FND onset in adolescents aged 12 to 16 years.
eancast.podigee.io/191-neue-β¦
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May 19
#FNDIreland was proud to present our poster: βUnmet Need in Functional Neurological Disorder: Evidence of Systemic Inequity from a National Patient Surveyβ using data from the @naiireland My Neuro Survey at the 62nd Annual Irish Neurological Association Meeting. ππ§‘
@DONPSI
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May 18
Delighted to have our executive director Joan Johnston, our founder Eamon McPartlin, our co-founder Dr Aoife Laffan, and our education liaison, Dr Owen Killian attend the 62nd Annual Irish Neurological Association Meeting. Thanks to Joan for hosting our #FNDIreland stand. ππ§‘
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May 14
Congrats to our Research Liaison, Daniel McCabe on winning the initial round of 3 minute thesis (3MT) competition (QUB Psychology). We wish Daniel all the best in the final.
Daniel's talk was βFunctional Neurological Disorder: The Disconnect Between Intention and Actionβ. ππ§‘
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May 13
#FNDIreland was delighted to be represented at the All Ireland Conference on Integrated Care yesterday by our Executive Director, Joan Johnston.
Joan contributed to two plenary sessions highlighting the critical role of integrated approaches in improving care and outcomes. ππ§‘
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May 12
Happy International Nurses Day. ππ§‘
We wish to thank in particular all those nurses who support those living with neurological conditions including #FND. Special mention to Annette Breen, Advanced Nurse Practitioner, @TUH_Tallaght & #FNDIreland committee member for her support.
Happy International Nurses Dayππ₯
Today, we celebrate all the incredibly hardworking nurses around the globe. Your compassion, dedication, and strength make a difference in the lives of so many patients and families.
NAI would like to show our appreciation for all the neurology nurses worldwide. During #BrainAwarenessWeek2026, we highlighted the importance of specialised neurology nurses and how they care for patients and families all over Ireland. See nai.ie for more information.
#InternationalNursesDay
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May 11
Great to have so many new faces attend our #FNDIreland peer support meeting in Cork last month for #FNDAwarenessMonth. A big THANK YOU to all those who attended and shared their experience of living with #FND.
Thanks to @Corkcoco for providing our meeting space.ππ§‘
@naiireland
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May 8
Take 5 minutes to view this video from teenager Molly's powerful speech on living with #FND to TD's and Senators in Leinster House on April 30th, 2026, which received a standing ovation. Share Molly's voice to change our healthcare system. ππ§‘youtube.com/watch?v=NamWrlEoβ¦
@naiireland
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May 6
Great interview with @DavidLewisPerez, a neurologist and psychiatrist. As Dr Perez says 'Functional Neurological Disorder (FND) is no longer a medical mystery'. ππ§‘
#FND #FunctionalNeurologicalDisorder
π’Check out this recent interview with @DavidLewisPerez and NPR about a musician with FND.
npr.org/2026/05/05/nx-s1-573β¦
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