A lifespan learning network of patients, families, clinicians, and researchers seeking to transform outcomes for people with single ventricle heart disease.
Joined January 2021
- Tweets 484
- Following 215
- Followers 1,038
- Likes 596
242 Photos and videos
Pinned Tweet
8 Aug 2025
In case you missed it, FON & NPC-QIC are now the Single Ventricle Outcomes NEtwork (SV-ONE)! Catch up with us on LinkedIn (linkedin.com/company/sv-one/), Facebook (facebook.com/singleventricle… ), or Instagram (instagram.com/singleventricl…) for the latest updates!
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FON retweeted
10 Jun 2025
Apply to join the SV-ONE Quality Improvement Workgroup by June 30! The Workgroup is seeking new volunteers to join beginning this summer. We welcome multi-disciplinary perspectives, individuals with SVHD, & family members to this team. Details: buff.ly/7EWGLok
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27 Jun 2025
On July 1, we will officially transition to SV-ONE! We are excited to enter this next phase of our journey and continue striving to transform outcomes for all individuals with single ventricle heart disease. Connect with us on LinkedIn to follow along: linkedin.com/company/sv-one/
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28 May 2025
Last call to join the Single Ventricle Patient Day (SVPD) Planning Committee! Committee members help plan and coordinate SVPD for our Fall Learning Session! All individuals with single ventricle aged 14 are encourage to apply ASAP at buff.ly/Wh9rhHm !
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23 May 2025
Exciting news: We recently expanded our Active Living with Fontan Circulation Toolkit to include resources for adolescents and adults! Visit fontanoutcomesnetwork.org/re… to learn more! #Fontan #fontancirculation #heartwarrior
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20 May 2025
Today is your last chance to register for our Spring 2025 Virtual Learning Session, taking place tomorrow! This year's theme is Transitions, focusing on our transition to SV-ONE and our evolving lifespan approach as a network! Visit buff.ly/o6FHTPY to register for free!
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8 May 2025
We have some exciting Breakout Sessions planned during our Spring 2025 Virtual Learning Session! Clinicians, individuals with single ventricle heart disease, and their family members are welcome to attend on May 21! Register for free: fontanoutcomesnetwork.org/..…
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25 Apr 2025
Our Spring 2025 Virtual Learning Session is less than a month away on May 21! This year's theme is Transitions. Will you be joining us? Visit npcqic.org/events/spring-202… for additional details and to register!
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25 Apr 2025
Join Sisters by Heart for a special webinar on Wed. 4/30, featuring a presentation from Jesse Hansen, MD about the FON Physical Activity & Exercise QI Project and how physical activity is being redefined for those living with SVHD. Visit docs.google.com/forms/d/e/1F… to register!
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FON retweeted
4 Apr 2025
Registration is open for our Spring 2025 Virtual Learning Session, taking place on May 21! This year's theme is Transitions. Visit fontanoutcomesnetwork.org/ev… for additional details and to register!
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22 Apr 2025
We have a new FON #HeartHero to celebrate! Say hello to Kate! Kate is actively involved in cheer, dance and student organizations like Student Council and National Honor Society! Learn more about Kate's story fontanoutcomesnetwork.org/ne…
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2 Apr 2025
The deadline to submit a Research Letter of Intent has been extended to April 15, 2025! Please visit fontanoutcomesnetwork.org/re… for more information!
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14 Feb 2025
#CHDAwarenessWeek Did you know? Individuals affected by congenital heart defects often need ongoing medical care throughout their lives.#HeartMonth #CHDAwareness
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12 Feb 2025
Care centers: Today is the last day to submit your commitment to join the FON Physical Activity & Exercise Improvement Project! Check your email for your invitation packet and commitment form!
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11 Feb 2025
#CHDAwarenessWeek Did you know? Having a CHD can increase an individual's risk of developing certain medical conditions. #HeartMonth
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10 Feb 2025
#CHDAwarenessWeek Did you know? Thanks to advancements in CHD research and care, there's more than 2 million #HeartWarriors currently living in the United States! #HeartMonth
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