Jon Shaw Foundation in memory of Jon “Supporting young people with epilepsy. Improving the mental health of bereaved siblings. Promoting awareness of SUDEP.”
Joined December 2019
- Tweets 1,013
- Following 78
- Followers 143
- Likes 345
497 Photos and videos
Pinned Tweet
7 May 2024
We are absolutely thrilled to be chosen as one of the charity partners for HBL Associates. The return of their Charity 5-a-Side Football Tournament is on July 5th, 2024. If you would like to get involved, contact manchester@hbl.ltd Spread the word
#HBLCharityFootball
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So pleased for Jon Shaw Foundation. This belongs to everyone concerned.
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Good luck Alice and Christine for your run in the London Marathon today. You’ve trained hard, you’ll smash it!
justgiving.com/page/alice-ew…
justgiving.com/page/christin…
Running for #epilepsy #bereavement #sudep @FoundationJon
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30 Jul 2025
Reaching out to siblings and close friends who have lost a love one and struggling to manage the trauma alone. If the loss was due to an accident, trauma, or suicide, was it sudden or after a long illness it doesn’t matter, we are here. @sandbachnews @CreweNub @nantwichnews
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23 Jun 2025
The team at The White Lion are in training for this years mega stomp for JSF, 70 miles over 2 days, Manchester to Crewe, via Runcorn, Frodsham, Chester and Nantwich. They have just opened the just giving page for donations. If you can spare ££ thank you, if not then please share
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9 Jun 2025
🔔 Important notice 🔔
Due to a significant increase in demand over recent weeks, applications for funding for medical equipment are closed until 01 August. This will allow us time to process the backlog. Please note that applications for bereavement support remain OPEN.
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6 Jun 2025
Great news, schools in the Alexandra Academy Trust are raising funds for JSF. Jon was a pupil at @monkscop so we have a close connection. Thank you to all for choosing us to benefit from your sports days. Have lots of fun. #independenceinepilepsy #epilepsyawareness
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21 May 2025
Feeling inspired by this year’s marathon? Looking for a new challenge? We are now accepting applications to run for Jon Shaw Foundation at next year’s TCS London Marathon. Download your application from our website here: jonshawfoundation.org #awareness #londonmarathon
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3 May 2025
Reaching out to those who need us but more areas to contact. Help us to spread the word, the word is support. #EpilepsyAwareness #sudepawareness #epilepsysupport @BrainAblaze @EpilepsyAlarms @epilepsy_scot @admodularLTD @CheshireLiveCrw @CreweNub @thecat1079 @Sandbachtownfc
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28 Apr 2025
We receive at least 15 applications for support every month which can cost our charity as much as £7500. This fabulous donation from @admodularLTD will ensure that we can continue supporting the many young people who reach out for help. We are all eternally grateful.
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20 Apr 2025
Good luck tomorrow Mark
20 Apr 2025
The countdown has started! Tomorrow I'll be doing the @CoalRace fundraising challenge for @FoundationJon There's still time to make a donation if you can via my JustGiving page justgiving.com/page/mark-bic…
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18 Apr 2025
Thank you to everyone who has helped us grow and reach hundreds of young people living with epilepsy. @BBCNWT @BBCRadioStoke @GuyWithEpilepsy @RagNBoneMan @EpilepsyAlarms @BrainAblaze @wesstreeting @thecat1079 @CreweNub @crewealexfc @CheshireLiveCrw @admodularLTD
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Jon Shaw Foundation retweeted
3 Apr 2025
I am running in this years 62nd world coal carrying championship veteran’s race at 11:30am on Easter Monday raising funds for the @FoundationJon who provided a seizure alert watch for our daughter to allow her Independence.
justgiving.com/page/mark-bic…
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22 Mar 2025
Jon Shaw Foundation was registered in memory of Jon, he should be 25 today but we lost him to SUDEP in June 2019. We should have known about the risk, we didn’t.
#sudep #EpilepsyAwareness @FoundationJon
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20 Mar 2025
#independenceinepilepsy #epilepsy #sudep #seizures
JSF helping young people gain the confidence to achieve on their own terms with the reassurance that help will arrive when they need it.
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14 Mar 2025
Although Raven and Hunter are now adults, they still require constant care, especially due to the risk of Sudden Unexplained Death in Epilepsy (SUDEP). Jon Shaw Foundation has been incredibly generous, their kindness has helped ease some of our burdens.
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14 Mar 2025
To Jon Shaw Foundation, we extend our deepest gratitude. Your assistance has made a profound difference in our lives, and we are so thankful for your support. As a family, we are committed to continuing this journey with love
Thank you for helping us keep our family safe.
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9 Mar 2025
This year our theme is inspiring independence in epilepsy to reflect the bedrock of our charity objectives. Keep watching our socials leading up to the 26th for news about what we’re doing, & how you can help. @BBCRadioStoke @CreweNub @CheshireLive @RagNBoneMan @TommyFreemo15
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11 Feb 2025
Three of the 18 young people we supported last month #Epilepsy #sudep @GuyWithEpilepsy @PAMEawareness @BrainAblaze @admodularLTD @BBCNWT @GranadaReports
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5 Feb 2025
So proud to be helping Billy Rae to go on to Uni. Good luck in all you do. #EpilepsyAwareness #sudep #seizure @GuyWithEpilepsy @BrainAblaze @PAMEawareness @EpilepsyAlarms @epilepsy_scot @ConnorNaismith @wesstreeting @admodularLTD @MornflakeCereal @GMB @BBCBreakfast @BBCNWT
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26 Jan 2025
Another busy year for JSF with 16 monitors and 5 pillows donated this month. Thank you supporters and fundraisers for making this possible. @ConnorNaismith @EpilepsyAlarms @PAMEawareness @FundraisingYES @admodularLTD @youngepilepsy @Eurocamp_UK @CranageHall @wesstreeting
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