Our mission is to improve the lives of the 130,000 🇺🇸 living with Primary Biliary Cholangitis (#PBC) through comprehensive support, education & advocacy
Joined December 2024
- Tweets 956
- Following 173
- Followers 61
- Likes 835
265 Photos and videos
Here is an inspirational article to start your week! Do not despair, there is always hope, and you are never alone!
#primarybiliarycholangitis
#AutoimmuneDisease
#RareLiverDisease
nz.news.yahoo.com/liver-tran…
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Join PBC Awareness, NFP, in recognizing World Liver Day on Sunday, April 19th! Organizations worldwide will show their commitment to raising awareness of liver health and patient care.
#worldliverday #liverhealth #PBCAwareness
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To anyone who has felt let down because Ursodiol isn’t working well enough…
We see you. And we want you to know: This is not your fault, and you are not out of options.
#PBCawareness #UrsodiolNotWorking #PBCwarriors
medscape.com/viewarticle/new…
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Here's the four stages of Primary biliary cholangitis (PBC)
#liverhealth
#PBCAwareness
via @Healthline
healthline.com/health/primar…
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PBC Awareness, NFP retweeted
2 days away! The 2026 ReBirthday Celebration is almost here 💚💙
Join us for this special virtual event honoring liver transplant recipients and the incredible power of organ donation. Don't miss the opportunity to hear inspiring stories, celebrate hope, and learn about the life-saving impact of liver transplantation.
🗓️ April 11
🖥️ Free & virtual
👉 Register today: alf.social/rebirthday26
#ReBirthday #DonateLife #LiverTransplant #ThinkLiverThinkLife #ALF50
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If you would like to become a volunteer and assist us in our mission to raise awareness of PBC and support the PBC community, please fill out the form in the link below.
#PrimaryBiliaryCholangitis #PBCCommunity
form.jotform.com/26098408514…
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Approximately 130,000 Americans are living with Primary Biliary Cholangitis, a rare autoimmune liver disease. Your generous donation is essential to advancing our mission. app.teamfi.works/fundraiser/…
#PrimaryBiliaryCholangitis #patienteducation #liverhealth
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Join an Ipsen sponsored PBC webinar on April 28th!
Join Ipsen for an informative PBC webinar:
cloud.us-patient.ipsen.com/W…
#PBChealth
#liverhealth
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PBC Awareness, NFP retweeted
#RareandReady members - we need your help! Fill out this action alert from @EveryLifeOrg: everylifefoundation.quorum.u…
‼️Attention California residents‼️
The California General Assembly has introduced A.B. 1798, a critical bill that protects patients from genetic discrimination and ensures continued participation in lifesaving research.
Members of the Assembly Committee on Insurance have the opportunity right now to support this important legislation. Your story matters! Share why genetic nondiscrimination matters to you and how it impacts your life.
Urge committee members to support this bill by filling out our action alert ➡️ everylifefoundation.quorum.u…
Read more about the bill ➡️ calmatters.digitaldemocracy.…...
We look forward to following this bill's progress as it advances through the California legislature.
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A new study shows that men with PBC may face more severe liver problems and worse outcomes than women. Knowing this helps doctors monitor male patients more closely and tailor treatment plans.
#LiverHealth #MensHealth
nature.com/articles/s41598-0…
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Our next PBC Warrior interview features Tom Zimmerman from New York. He is a recently diagnosed PBC patient and is actively involved in the PBC Awareness community. #PBCawareness #PBCWarriors
youtu.be/10Mc_9FM9MI
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This symptom is often overshadowed by fatigue and pruritus, but it can cause stress in many PBC patients. Roughly 25%-50% of newly diagnosed patients report experiencing this symptom. If you are able to decipher the anagram, comment your guess below!
#pbchealth
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New hope for understanding PBC?
Scientists found a protein called IGFBP4 that acts like a "signal" in the body of people with Primary Biliary Cholangitis (PBC). That could lead to better, earlier diagnosis. #PBCwarrior #LiverResearch #Autoimmunedisease
medpagetoday.com/resource-ce…
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Medicaid provides essential health coverage for over 90 million low-income individuals in the United States. #MedicaidMatters
April is #MedicaidAwarenessMonth 💙
HFS connects millions of Illinoisans to care, from checkups to mental health support. We’re here to help you stay covered and supported.
#WeImproveLives #HealthcareEquity #HealthcareMatters
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Today, on April 1st, we observe the National Day of Hope. For the thousands living with PBC, hope looks different than it does for most.
“We must accept finite disappointment, but never lose infinite hope.” Dr. Martin Luther King Jr.
#PBCAwareness #NationalDayOfHope #Hope4PBC
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B.I.G. News! We're headed to @blackingastro’s #ABGHSUMMIT26 in Chicago on May 1! Can’t wait to see you there! Register today at blackingastro.org!
whova.com/embedded/event/R3s… via @blackingastro @LmarieAsad
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RT @ASTRO_org: On #NationalDoctorsDay, we celebrate all physicians for the care they provide to their patients every day.
A special thank…
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PBC Awareness, NFP retweeted
Being a Doctor is more than a profession, it's a calling.
Doctors don't just treat illness, they restore hope, and work to save lives every single day.
Happy National Doctors' Day to those who show up and gives their all for humanity!
#NationalDoctorsDay #Emzor #Dedication
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PBC Awareness, NFP retweeted
#Letter
▶️Letter to the Editor: Pre-Treatment Liver Stiffness Is a Stronger Predictor of Hepatocellular Carcinoma Development Than Post-Treatment Liver Stiffness After Hepatitis C Virus Eradication
👉doi.org/10.1111/hepr.70071
#LiverX @WileyHealth
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PBC Awareness, NFP retweeted
Mar 30
Coffee? ✔️ Healthy breakfast? ✔️ Workspace ready? ✔️
Living with PSC can mean being hyper-aware of how we start our day. We aren't just getting ready; we're managing symptoms, protecting our energy, and giving ourselves the best chance to thrive. What's your morning routine?
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