In sickle cell disease, red blood cells, which are normally round and flexible, become sickle-shaped, like crescent moons. These misshapen cells are what give the disease its name and can block blood flow, causing severe pain and complications. Learning the facts about sickle cell disease is the first step in raising awareness and standing with Sickle Cell Warriors. 🔗 Learn more: FSCDR.org #SickleCellAwareness #WarriorsWithin #COECommunity #FSCDR #SCDSupport #FSCDRFlorida #CentersofExcellence

❤️Thank You for Making the 2026 FSCDR Symposium unforgettable ❤️ When researchers, healthcare professionals, patients, caregivers, Warriors, partners, and supporters come together, progress happens. Thank you to everyone who attended, presented, sponsored, exhibited, volunteered, and supported the 20th Annual Sickle Cell Disease Research and Educational Symposium & the 49th National Sickle Cell Disease Scientific Meeting. Your passion, expertise, and commitment made this year’s Symposium a remarkable gathering filled with scientific discovery, meaningful connections, collaboration, and hope. Together, we are advancing research, improving care, and reshaping the future of sickle cell disease. Thank you for being part of this historic event. We look forward to welcoming you back June 10–14, 2027. #FSCDR #SickleCellDisease #SickleCellResearch #SickleCellCare #HealthcareInnovation #MedicalResearch #ClinicalResearch #SickleCellCommunity #SickleCellWarriors #TheGoldenAge

Panama City, Florida — our Sickle Cell Center of Excellence is here to provide expert care, support, and resources for individuals living with sickle cell. 📍 1328 Jenks Ave, Suite B Panama City, FL 32401 🕘 Monday–Friday | 8:30 AM – 5:00 PM Learn more about our services at fscdr.org. #FSCDR #SickleCellAwareness #CenterOfExcellence #PanamaCityFL #SickleCellSupport #PatientCare #CommunityCare #Florida

Partnership makes a difference.  Shakevia’s Sickle Cell Anemia Foundation, focused on raising awareness of sickle cell disease, continues to join efforts with the Foundation for Sickle Cell Disease Research. Through education, awareness, and shared initiatives, this collaboration helps bring more attention and resources to individuals and families affected by sickle cell disease. Learn more: fscdr.org #SickleCellDisease #SickleCellCommunity #FSCDR

Sunday, June 7, 2026 4:30 PM - 6:00 PM Oral Abstract Breakout Session II  Clinical/Translational | Location: Atlantic D Health Services/Quality Improvement | Location: 253AB Psychosocial | Location: 250AB View the full 2026 Symposium schedule and find session details here: fscdr2026.eventscribe.net/ag…  #FSCDR2026 #SickleCellDisease #SickleCellAwareness #HealthcareInnovation #ResearchMatters #SickleCellResearch

A powerful voice for a historic year: The Golden Age. We are thrilled and honored that Viola Davis — award-winning actress, producer, New York Times bestselling author, and EGOT icon — will be the Foundation Keynote Speaker at the 2026 Symposium. Sunday, June 7, 2026 | 12:00 PM EST Fort Lauderdale, FL & Global Livestream As we celebrate the 20th Anniversary of the Symposium — The Golden Age, Viola’s story of resilience and triumph reflects the strength and spirit of Sickle Cell Warriors worldwide. Join us for this historic keynote and milestone year in Fort Lauderdale or on livestream from anywhere in the world. We hope to see you there. #SickleCell #FSCDR #GoldenAge #2026Symposium #ViolaDavis #SickleCellWarriors

Sunday, June 7, 2026 8:15 AM - 8:25 AM Welcome from the 2027 Scientific Chair 8:25 AM - 8:40 AM Revascularization Surgery: Another Option to Prevent Stroke in Children with Sickle Cell Disease 8:40 AM - 9:40 AM 2026 FSCDR Sickle Cell Pain Symposium: A Holistic View of Pain in Sickle Cell Disease: Mechanisms and Treatment Approaches, Session 1 10:00 AM - 11:00 AM 2026 FSCDR Sickle Cell Pain Symposium: A Holistic View of Pain in Sickle Cell Disease: Mechanisms and Treatment Approaches, Session 2 11:00 AM - 11:30 AM 2026 FSCDR Sickle Cell Pain Symposium: A Holistic View of Pain in Sickle Cell Disease: Mechanisms and Treatment Approaches, Q&A View the full 2026 Symposium schedule and find session details here: fscdr2026.eventscribe.net/ag…  #FSCDR2026 #SickleCellDisease #SickleCellAwareness #HealthcareInnovation #ResearchMatters #SickleCellResearch

Get ready for an unforgettable evening! The Valerie Tyson Band will perform live during FSCDR’s Presidential Dinner Reception on Saturday evening at the 20th Annual Sickle Cell Disease Research and Educational Symposium & 49th National Sickle Cell Disease Scientific Meeting. This is your evening. The Presidential Dinner Reception and Live Show is open to all registered Symposium attendees and will bring the sickle cell community together for a night of extraordinary live entertainment, joyful celebration, and meaningful connection.  Register and join us tonight for every inspiring moment the Symposium has to offer. edgereg.net/er/Registration/…

Saturday, June 6, 2026 4:30 PM - 5:30 PM ET The Nursing Symposium - Advanced Practice Providers as Sickle Cell Specialists: What are the most effective models of care? 5:30 PM - 6:00 PM ET Practical Tips to Make Your Clinical Trial Successful - for Participants, Clinical Research Staff and Investigators 6:30 PM - 8:30 PM ET FSCDR's Presidential Dinner Reception and Live Show with The Valerie Tyson Band - All Invited! View the full 2026 Symposium schedule and find session details here: fscdr2026.eventscribe.net/ag…  #FSCDR2026 #SickleCellDisease #SickleCellAwareness #HealthcareInnovation #ResearchMatters #SickleCellResearch

Saturday, June 6, 2026 12:30 PM - 1:30 PM ET Product Theaters & Lunch 1:30 PM - 2:00 PM ET 20 Years of Scientific Advancement in Sickle Cell Disease 2:00 PM - 4:00 PM ET Dr. Kwaku "KOF" Ohene-Frempong East Meets West Global Sickle Cell Disease Symposium View the full 2026 Symposium schedule and find session details here: fscdr2026.eventscribe.net/ag…  #FSCDR2026 #SickleCellDisease #SickleCellAwareness #HealthcareInnovation #ResearchMatters #SickleCellResearch

Educational Sessions 11:00 AM - 12:30 PM ET 11:00 AM - 12:30 PM ET Location: Atlantic D: Educational Session on Clinical Endpoints in Sickle Cell Disease Location: 253AB: Educational Session on Genomics, and Bioethics in Sickle Cell Disease Location: 250AB: Educational Session on Initiatives in Sickle Cell: From Bench to Bedside Location: 251AB: Educational Session: From Recognition to Integration: 20 Years of Progress in Behavioral and Mental Health in Sickle Cell Disease View the full 2026 Symposium schedule and find session details here: fscdr2026.eventscribe.net/ag…  #FSCDR2026 #SickleCellDisease #SickleCellAwareness #HealthcareInnovation #ResearchMatters #SickleCellResearch

7:30 PM - 9:30 PM ET Hope in Action: An Inspiring Evening with Ryan Clark | Dinner Provided Ryan Clark joined ESPN as an NFL analyst in February 2015 on the same day he retired from professional football. Clark regularly appears on NFL Live, First Take, Get Up and SportsCenter throughout the year. Clark, who suffered a splenic infarction during his playing career due to sickle cell trait, has been involved with sickle cell awareness, research, treatment, and programming. In 2012, he formed Ryan Clark’s Cure League to raise awareness about the sickle cell trait with hopes of eventually finding a cure. View the full 2026 Symposium schedule and find session details here: fscdr2026.eventscribe.net/ag…  #SickleCell #FSCDR #GoldenAge #2026Symposium #RyanClark #ViolaDavis #SickleCellWarriors

Friday, June 5, 2026 4:50 PM - 6:15 PM ET Investigational New Drug, Device and Therapeutics Symposium 6:15 PM - 7:30 PM ET Welcome Reception and Poster Session in Exhibit Hall 7:30 PM - 9:30 PM ET Hope in Action: An Inspiring Evening with Ryan Clark | Dinner Provided View the full 2026 Symposium schedule and find session details here: fscdr2026.eventscribe.net/ag…  #FSCDR2026 #SickleCellDisease #SickleCellAwareness #HealthcareInnovation #ResearchMatters #SickleCellResearch

Friday, June 5, 2026 1:45 PM - 3:15 PM ET Historic Landmarks in Research and Care of Patients with Sickle Cell Disease 3:20 PM - 4:20 PM ET The Patient Symposium: Empowering Patients to Advance Sickle Cell Policy View the full 2026 Symposium schedule and find session details here: fscdr2026.eventscribe.net/ag…  #FSCDR2026 #SickleCellDisease #SickleCellAwareness #HealthcareInnovation #ResearchMatters #SickleCellResearch

Friday, June 5, 2026 8:30 AM - 7:30 PM ET Registration Open 9:30 AM - 11:00 AM ET Special Symposium: Advancing Biomarkers in Sickle Cell Disease: Regulatory Pathways, Clinical Integration & Patient-Centered Endpoints 11:30 AM - 11:45 AM ET Welcome Address: The State of Sickle Cell Disease in the Golden Age & Celebrating 20 Years of The Symposium 11:45 AM - 12:45 PM ET Access to Care Keynote Presentation: Research and Real-World Impact in Sickle Cell Disease View the full 2026 Symposium schedule and find session details here: fscdr2026.eventscribe.net/ag…  #FSCDR2026 #SickleCellDisease #SickleCellAwareness #HealthcareInnovation #ResearchMatters #SickleCellResearch

This Saturday night, The Valerie Tyson Band takes the stage live during FSCDR's Presidential Dinner Reception at the 20th Annual Sickle Cell Disease Research & Educational Symposium & 49th National Sickle Cell Disease Scientific Meeting. Get ready for an evening filled with incredible music, meaningful connections, and a celebration of the warriors, families, healthcare professionals, and researchers who continue to move the sickle cell community forward. ✨ Live Entertainment ✨ Networking & Community ✨ Celebration & Inspiration ✨ An Unforgettable Experience If you're registered for the Symposium, you're invited to join us for this special evening. Not registered yet? There's still time to be part of an event that brings together leaders, innovators, and changemakers from across the nation. Register today: edgereg.net/er/Registration/… #FSCDRSymposium2026 #FSCDR20Years #20YearsOfImpact #TheJourneyContinues #SickleCellCommunity #SickleCellWarriors #AdvancingSickleCellCare

Thursday, June 4, 2026 7:00 AM - 5:00 PM ET Registration Open 7:00 AM - 5:45 PM ET Grant Writing Institute (GWI) 1:00 PM - 5:00 PM ET Update on Stroke Prevention Strategies in Children with Sickle Cell Disease and Engagement Workshop View the full 2026 Symposium schedule and find session details here: fscdr2026.eventscribe.net/ag…  #FSCDR2026 #SickleCellDisease #StrokePrevention #PediatricHematology #SickleCellAwareness #Neurology #Neurosurgery #HealthcareInnovation #ResearchMatters #SickleCellResearch

Dr. Philipp Aldana will speak at the Revascularization Surgery: Another Option to Prevent Stroke in Children with Sickle Cell Disease Session on Sunday, June 7, 2026 | 8:25 AM - 8:40 AM ET.  Attendees of this session will learn about treatment options to prevent stroke in children with SCD, identify the findings to support a diagnosis of moyamoya in the brain, and describe the different clinical scenarios in which patients can be referred for evaluation for surgical revascularization for stroke prevention. Join us in Fort Lauderdale for this important session! Register today to secure your spot at the Symposium: edgereg.net/er/Registration/…

Join us June 5–7, 2026, in Fort Lauderdale, FL for the Symposium. Celebrate 20 years of scientific collaboration, clinical breakthroughs, and real progress for Sickle Cell Warriors. Be part of the conversation and reshape the future of sickle cell care. Spots are filling fast. Register Now! fscdr2026.eventscribe.net #SickleCell #FSCDR #GoldenAge #2026Symposium #SCD #SickleCellWarriors #ViolaDavis

The Foundation for Sickle Cell Disease Research is honored and thrilled to announce that Alexander "A-Rod" Rodriguez, 14x MLB All-Star and a 2009 World Series Champion with the New York Yankees will deliver Special Remarks during the Presidential Welcome Address at the 20th Annual Sickle Cell Disease Research and Educational Symposium & 49th National Sickle Cell Disease Scientific Meeting. Alex is an Emmy Award-winning MLB analyst for Fox Sports. He has been a judge and investor on ABC’s Shark Tank, mentored financially distressed ex-athletes on CNBC’s Back in the Game, and co-hosts the video series The Deal with Bloomberg Originals’ chief correspondent Jason Kelly, interviewing CEOs, entrepreneurs, and sports legends. Alex recently wrapped his seventh year as a guest lecturer at Stanford Graduate School of Business, where he teaches a class called Strategic Pivoting. Committed to creating opportunities for young people to succeed, Alex serves on the Board of Trustees of the University of Miami, on the Board of the Boys and Girls Club of America, and is in the Boys and Girls Club of America Alumni Hall of Fame. In 2025, Alex became the controlling owner of the NBA’s Minnesota Timberwolves and Minnesota Lynx after joining the ownership group in 2021, where he serves as Co-Chairman alongside partner Marc Lore. Join us as we continue to change the conversation and reshape the future of sickle cell care. We are in the golden age! Be a part of this historic moment by securing your spot at the Symposium. Register Now: fscdr2026.eventscribe.net/