Official Twitter profile for the Hairy Cell Leukemia Foundation, a nonprofit dedicated to patient education and research in HCL. hairycellleukemia.org
Joined July 2021
- Tweets 536
- Following 124
- Followers 199
- Likes 144
468 Photos and videos
š Today, patients have more treatment options, more personalized approaches, and a better understanding of HCL than ever before.
š You can find the updated HCL guidelines on our published research page:
hairycellleukemia.org/publisā¦
#HairyCellLeukemia #HCLF #RareDisease #guidelines
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š¢ Billās story shows that even after several relapses, there are still effective treatment options. Research is moving forward, and new treatments are being studied.
Read stories from other patients at: hairycellleukemia.org/storieā¦
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On National Cancer Survivors Day, we celebrate every patient who has faced hairy cell leukemia.
You can share your story at this link: hairycellleukemia.org/share-ā¦.
#NationalCancerSurvivorsDay #HairyCellLeukemia #HCL
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š¢ Do you have questions about HCL?
Join us on Wednesday, June 17, from 2:00 to 3:00 PM ET for a free webinar with Dr. James Blachly from The Ohio State University, an HCL Center of Excellence.
Register here: hairycellleukemia.org/calendā¦
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The Hairy Cell Leukemia Foundation has identified hospitals across the country with real expertise in HCL, so you know where to go for help.
Explore our Centers of Excellence: hairycellleukemia.org/centerā¦
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We invite you to join us tomorrow for the Hairy Cell Leukemia Foundation's Community Roundtable.
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Tuesday, June 2nd
ā° 9:30 AM PT | 11:30 AM CT | 12:30 PM ET
š Online via Zoom
š Sign up here: hairycellleukemia.org/calendā¦
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Happening tomorrow!
Join us on June 1 at 12:15 pm Eastern to hear Dr. Michael Grever and Dr. Clive Zent discuss the latest guidelines for Hairy Cell Leukemia and HCL variant. There will be a webinar presentation followed by Q&A.
Sign up here: hairycellleukemia.org/calendā¦
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š¢ Mark your calendars for next Monday, June 1! Join Drs. Michael Grever and Clive Zent as they dive into the latest consensus guidelines for Hairy Cell Leukemia and HCL Variant.
Donāt miss outāregister today! hairycellleukemia.org/calendā¦
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Join the Hairy Cell Leukemia Foundation for our next Zoom-based Community Roundtable.
š
Tuesday, June 2nd
ā° 9:30 AM PT | 11:30 AM CT | 12:30 PM ET
š Where: Online via Zoom
Everyone is welcome!
š Register today: hairycellleukemia.org/calendā¦
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This June, the Hairy Cell Leukemia Foundation offers many ways to connect, learn, and get support.
Join the conversation, ask your questions, and connect with others who understand the HCL journey. Visit our program calendar and register in advance: hairycellleukemia.org/calendā¦
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š¢ Find out whatās new in the HCL guidelines!
Join us on Monday, June 1, at 12:15 PM Eastern for a webinar covering the updated consensus guidelines for Hairy Cell Leukemia and Hairy Cell Leukemia Variant.
Sign up here: hairycellleukemia.org/calendā¦
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TOMORROW! There's still time to join us for the next HCL Variant (HCLv) Community Roundtable!
Join us on Wednesday, May 20th!
š 2:00 PM ET | š 1:00 PM CT | š 11:00 AM PT
š REGISTER >> hairycellleukemia.org/calendā¦
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š¢ This article from @UTMDAnderson looks at how inflammation can help protect your body when you are injured, sick, or exposed to something harmful.
You can read the full article here:
mdanderson.org/cancerwise/hoā¦
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Stay informed and connected with the Hairy Cell Leukemia Foundation by signing up for our monthly e-newsletter!
Sign up via the link below:
lp.constantcontactpages.com/ā¦
Join our community and stay in the loop!
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š Weāre excited to announce our next HCL Variant (HCLv) Community Roundtable!
Please join us on Wednesday, May 20th, at 2:00 pm Eastern.
To register, visit: hairycellleukemia.org/calendā¦
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We invite you to join us tomorrow for our next HCL Women's Group Roundtable. The meeting starts at 9:30 am Pacific, 11:30 am Central, and 12:30 pm Eastern.
You can still register:
hairycellleukemia.org/calendā¦
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š¢ š Thank you for supporting the Hairy Cell Leukemia Foundation.
Your generosity makes a real difference for patients and their families.
To make a secure online donation, please visit: form-renderer-app.donorperfeā¦
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If your hairy cell leukemia returns, more treatment options are available today than in the past.
hairycellleukemia.org/2025-sā¦
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š Join us NEXT WEEK for our next Women's Group Roundtable on May 6th!
Open to all women impacted by HCL/HCL variant, this is a safe space for sharing and listening.
š REGISTER >> hairycellleukemia.org/calendā¦
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In May, weāre hosting two friendly, peer-led discussions on Zoom, and we hope you can join us.
Both sessions will be moderated by HCLF staff and volunteers, focusing on peer-to-peer support.
To sign up, visit our program calendar at hairycellleukemia.org/calendā¦
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